i'm freaked out here

[Dixiefireball]

I found out yesterday when the doctor office called and changed my appt for surgery to may the 18th that while the doctor was removeing my hunners he was goiing to go ahead and do a Cystoscopy & Hydrodistention I'm really fearful of these because the last two i have had done HURTS ME!! i stay in awful pain for about two weeks and even tho i do feel that my bladder is some better from a year ago i'm still freaking on this I don't want this part done. but heck i'm not sure if they could even do it without doing the other. Can they??
:confused:
i'm so confused on this subject I still want it done but i still want more information can anyone help me here? i will be waiting to see what you have to say about this here i am scared to have this done but yet want it in hopes of less pain stressed out over family problems Oh what a mess i'm in.:shake: I feel that i'm starting to get depressed again I guess i made a mistake going off my lexapro i guess its time to start them again I just hate the thought of taking more medicine when i'm trying to stop taking medicine all together i'm so sick of popping a pill.:( Please help me here if you have had this done if so did they do the Cystoscopy & Hydrodistention on you also when doing this do they really have to do this also?
:confused: please help me i'm so confused.
thanks for your advice I would rather here it from my friends who has delt with this personally then to have a doctor to tell me about it or an rn to tell me about it who has never had it done.
sending you all my love
Rhonda

[blue]

I don't know anything about the Hunner's Ulcer's, I hope you get some answers. Maybe, they have to do it, to get everything, and give them a better view. I don't really know, just thinking aloud. Maybe, he's just going to make the most of you being put under, and get a good look at your bladder again.

[Audrey Rose]

Rhonda,
Big Hug and A :kissing:.
I am so sorry you are feeling confused and scared. I know that the lasering of the hunners is done by cystoscopy. That is the tube system with the camera and light that allows the instruments to be safely inserted into the bladder. And it seems to me that they would probably have to dilate your bladder a bit in order to get a good view of things. But I would think that they might be able to skip the full dilation, but I do not know that for sure. I think you should call your doctor tomorrow and ask him about it. Don't spend the next week worrying about it. He can tell you if he is able to perform the procedure without fully dilating your bladder. If he can, you can tell him that you do not want to be fully dilated. If there is a choice in the matter, it should be yours to make.

Good luck!! I am praying for your surgery so that all will go smoothly. Hey, maybe it was the hunners that caused you to have such bad flares after hydrodistension. So maybe you will not have problems this time around since they will be gone!!!
:thumbsup:

Love ya,

[Sarojini]

Yeah, Dixie, I'm sorry :( But I think Audrey Rose is right... they need to distend your bladder a little bit, I think, so they can get a good view of where the Hunner's Ulcers are. I think if you talk to your doc about your concerns he might be able to help you out a little.

Good luck.... :)

[LauraLynn]

Hi Dixie!!!

I feel your pain!! I am going for my first cysto/hydro with a biopsy tomorrow morning!!! I am also very scared and not really sure what to expect. After reading on this site I do feel sooooo much better though. The support is incredible!! I have not been offically diagnosed. I hope and pray for some answers to my misery tomorrow. Good luck to you I hope it not to painful for you!! Let us know how it goes. I will post how mine goes when I get feeling better.

[Dixiefireball]

I know this may sound silly but what is a distend of the bladder is that where they put liquid in it to see how much you hold:confused: sorry for so many question I will asked the doctor tuesday or the rn's when i go in to sign the papers but i want to asked my questions clearly so i can get a clear answer I want this but yet i'm scared thanks for all your support you are all my angels.
sending you all my love
Rhonda:kiss:

[ICNDonna]

Someone had already explained the cystoscopy is necessary to view your bladder so your doctor can deal with the ulcers. A hydrodistention is when water is put in your bladder and it is stretched. Your doctor will be better able to see the ulcers when your bladder is stretched. And the good thing is that some people do get real relief from just the stretching. I'm sure you will be sore for at least a few days, but try not to worry too much about it.

It's normal and natural to be a little nervous. Be sure to ask lots of questions so you'll feel more comfortable about the procedures.

Warm healing thoughts,
Donna

[Dixiefireball]

thank you donna for clearing that up for me i'm just so scared:(

[kadi]

Yes, be really specific with your doctor about what scares you & tell him exactly how long you felt bad & how much pain you had after your last cysto/hydro. When I told my doctor how scared I was, he remembered what I'd said & reminded me of how he would handle those issues right before I went into surgery. Also find out what kind of painkillers they'll be using & what you can take when you go home.

I didn't have hunners, but I had toredol in the IV, the bill also said they used morphine during the surgery, and I had Darvocet for afterwards, but only needed 2 doses of that.

It's perfectly natural & reasonable to be worried, so don't stress about going off the Lexapro, maybe you'll be okay when you get some reassurance on this. Maybe see how you feel when the surgery is done (and hopefully you feel way better!).

Will be praying for you and hope all goes well.

Love,

[tillysav]

Hopefully with the hunner's ulcers gone the pain after the procedure will not be as bad as it was in the past. Sorry, I do not know about hunner ulcers. I will say a prayer that you feel much better!:pray:

[moelissat]

:pray: Hey Dixie, Melissa here.I didn't know about the hunner's either.hadn't talked to you in a few weeks.Sorry to hear you're going through so much.I am scheduled for a hydro June 7.Don't think I've ever had one,but just trying not to get to freaked out.I will be praying for you.