couple with IC

[Sunshine2574]

My husband and I have IC.....anyone heard of this?

[ICNDonna]

The only time I've ever heard of this is I read about two people with IC who met and later married - I believe they met at a support group meeting.

Donna

[statesboro]

I had never heard of that happening before. Wow! I am a male, by the way. I can figure both of you can understand each other.(unlike some posts that I have read so far) Of course, I don't know which one was diagnosed first. I am gonna figure you don't have children now. Has he ever been on here at all? I was just wondering. That was all.

[Sunshine2574]

No...no children. They told us we cannot have any. He had IC when he was younger and then we got married. I believe I must have had it when I was younger also but didn't know. He is convinced that mine has gotten worse since we met and got married. We have never met anyone that is married and has IC. And actually mine has gotten much worse to the point I have a hard time functioning on a normal day.

Yes he has been on here and asked if there have been other males with IC. Thank you.

[sshannon74074]

Did the doctor say you could not have children due to IC. Just wondering because I am male with IC and would like to have children

[ICNDonna]

Lots of people with IC have children --- did your doctor give you any reason for not having children? Maybe concern about genetics with two people with the condition?

Donna

[sshannon74074]

I haven't had a fertility test to see if I'm still viable. I'm forty and have had IC/PBS for 3-4 yrs and haven't had a lot of desire to be really sexually active due to the pain, but I manage. My fiance is also 40 with no children and we are kind of reaching the end of the line

[Sunshine2574]

We have both had fertility tests and they said that the chances of us getting pregnant on our own is about 2-3%. We cannot try artificial insemination as they said it will not work. They said our only chance would be INVITRO. But we do not have $20,000 to pay up front and there is NO insurance coverage here in TN. Also, they only give us a 25% chance. I have been having a terrible time just "trying" to get pregnant lately..the act itself if you will. As that is just excruciating. I wish you luck and if you have any questions just email me. We have been married for 5 years and have been trying since, but due to the increase in pain he does not want me to hurt:pray:

[mela414]

I'm sorry that both of you have this horrible condition. I hope you can give each other support when you need it. Loving support really does help and both of you know EXACTLY what the other is talking about. Good luck to you!

[Snowden1]

Sunshine,
Did one of you have this before the other? Have you thought about adoption. I had so much trouble trying to get pregnant with endometriosis and my husband and I were going to adopt. Then after all the fertility stuff, I got pregnant (9 years after my first daughter). I married pretty young, but also had to have a surgery to get pregnant with my first. Good luck to you:hi: