painful dmso instillations??? normal??

[BreezyDay]

I just had my 2nd DMSO instillation. Both treatments were so excruciating that attempting to hold it for 30 minutes was completely unachievable. Is this typical?

[ICNDonna]

My first few DMSO treatments were pretty awful, but then they helped for several years. At my request, they instilled lidocaine first, then the DMSO solution; that helped.

Donna

[kadi]

My first two DMSO cocktail instillations were very painful & my doctor only had me hold the solution 20 minutes. (I only lasted 8 minutes on the first one.) After that, they got easier & I got more IC symptom relief. The explanation I've heard is that the first few DMSO instillations, the cells "dump" their toxic contents & that after that, there isn't much left to release, so it gets easier as long as you have maintenance instillations.

That said, the rescue instillations of heparin, marcaine, sodium bicarbonate & water, help me a lot more & I learned to do them at home.

I hope you get good results & that you are feeling better soon,

[curlycue]

Diddo from what kadi said. My personal experience with DMSO was Awful, I know do the Heparin,lidocaine,sodium barcarbonate, it works great.

[snowgirl]

I get dmso instills with hydro twice a yr. Had one Monday. they use lidocaine or marcaine after to help with pain

I did 6 home instills of dmso few yrs back. I would take pyridium and one vicodin an hour before I would do the instill and it helped me a lot. I did them on saturday so I had all day to rest on Sunday. No way I could have done dmso instill and worked the next day. Yes more instills I did at home of the six less painful it got for me

I know dmso controversial now but for me it has helped me so much - so much.
I tried other instills but too painful- also my uro was old school and did not use a recipe like you gals on here instill. that is why I am hoping he suggests we possibly try home instills of lido, marcaine, heparin and solu cortef
I am concerned my drug prescription coverage wont pay for the meds. I read someone posted here lidocaine not expensive. I bet heparin and solu cortef expensive? OH some use sodium bicarb that makes sense for sure
Vicky
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[snowgirl]

I just had my 2nd DMSO instillation. Both treatments were so excruciating that attempting to hold it for 30 minutes was completely unachievable. Is this typical?

yes yes my friend > As Donna said ask for lidocaine to be used with dmso so it is less painful . I icant imagine dmso instills without lidocaine.
Can you take a pain pill before your go and/ or urerelle pyridium that helps me and of course have someone drive you if taking pain pill.
Hang in there I do think with these suggestions your dmso treatments could ease up for you. Like Kadi said and for me each one got little less painful . Just that one vicodin and pyridum an hour before helped tremendously. OH yes I remember I did give myself lidocaine instil and held that for 30 minutes then gave dmso instill on top of that

I just did 6 of them at home not sure why just 6 and no more at home now I get them under general anesthetic. Yes DMSO will stir things up a bit then settle down hope you get feeling better

we all have something different that works for all of us. good luck. vicky