Candidate for DMSO instillations?

[Lyn40]

My Uro has suggested the DMSO instillations for me several months ago and I keep putting it off. I guess I am not convinced I am the right candidate for it to be effective. I have IC symptoms all the time, but am not in constant pain. Although I believe the word 'pain' is debatable! I am in a bad flare about once every 4-8 weeks where it is unbearable (3-4 days at a time). But most days I have frequency and pressure, usually just uncomfortable enough to irritate me throughout the day (worse at night). I do not have the burning pain when I urinate, as I have seen so many IC patients describe.

My question is: I have read that DMSO helps with pain more than frequency. For those that are being helped by these treatments, WHAT KIND OF PAIN DOES THAT REFER TO? I am wondering if these treatments will lesson the severity of my flareups when they occur? Or will they help at all with the day to day spasms and pressure? I realize that none of us will know what helps until we try it, but just wanted to get some feed back.

I was on Elmiron for a year with no success. I have been on Atarax, Detrol, Ditropan XL, etc. I now take 10-20 mg of Elavil for sleeping. And yes, I do watch my diet carefully. Sometimes I know the cause of my flares, and sometimes I simply do not. Flares are getting harder to control.

Sorry this post is so long. Thank you for listening.

Lyn

:grouphug:

[Kathi]

I found that when I did DMSO it helped my frequency. At that time I didn't have much pain, so I guess it was easier for me to notice the differenc in frequency. As you said, you just don't know what will help each of us since we are all different. Hope you find your answer to the symptoms you're having. Hugs, Kathi:hi:

[ICNDonna]

It helps me with both the frequency and the pain.

Donna

[Dixiefireball]

it helped both with me my dmso which now i do at home when needed
they have been a God sent to me. I had tried everything even the dmso before but nothing helped not even the nerve blocks dont get me wrong they helped for a little while but not long enough (nerve block) but since i started the dmso it has helped me alot i know we are all diff. and I know this is weird but i wouldnt change a thing in the treatment i have right now Until there is a cure for this dis.
sending you hugs and prayers
Rhonda

[Lyn40]

Thank you all for the replies. Its good to know it may help with both pain and frequency.

Lyn
:grouphug: