Puppybreath
05-28-2010, 11:43 AM
I was finally diagnosed after lots of antibiotics and incorrect diagnoses of kidney stones, UTIs, irritable bowel, la, la, la.
I finally felt like I had an obstruction and found a urologist who correctly diagnosed me when he saw glomerulations (sp?) after a cystoscopy.
I did the whole program: DMSO installations, urinary frequency medications (which made me pee more and increased my thirst and constipation, all of which made me pee more frequently...kind of like the cure was worse than the disease).
I do think that the cystoscopies gave me the greatest relief because they expanded my bladder. I always felt better afterward. All this was complicated by a kink in my urethra, which made catheterizations quite painful.
I got hold of David Wise' book "Headache in the Pelvis." I started to doing the exercises, including external and internal trigger points.
My massage therapist, a trigger point specialist, asked me what I had been doing. He had noticed that my lumbar spine was relaxed and flat against the table. I told him and he said "Keep doing whatever you are doing!"
I went out to do the Stanford Protocol at David Wise's place in Sonoma. He had workded with a Stanford urologist to develop his own program based on trigger points and relaxation. Attendance required a consult with a urologist and had built a huge comfortable house to do workshops in on a property he owned.
He had an incredible physical therapist, Tim Sawyer, who did internal and external trigger point mapping. His wife Sara taught us how to use the Theracane and do stretches of the most important pelvic muscles. David did relaxation tapes and taught us about relaxation.
I do think that when you have chronic pain your nervous system gets stuck in fight or flight. Your nervous system is like a car stuck in 5th gear but the clutch is not engaged. At least that's how it was for me.
I was a psychologist with when I was diagnosed. Sometimes I would have to run down the hall to use the bathroom in the middle of sessions. After the Wise workshop I researched all kinds of relaxation and energy work to find out what might work best to help me relax. I went to every seminar I could, both medical and alternative.
It all works if I do the stretches, go to massage therapy (which is really stretches and trigger point therapy based on Aaron Mattes' program of physical therapy) and follow the Headache in the Pelvis book.
I stopped working 2.5 years ago when I tore up the cartilage in my right hip in a boating accident. I was diagnosed with fibromyalgia 20 years ago and the medications still cause me to be thirsty, but nothing like I was on the urological drugs.
Everyone has to find their own way. This one worked for me. If you are searching it might be worth a try.
I am happy to talk with you about it and share anything I know.
Please don't hesitate to write me if you have questions.
Beth and Augie, the wonder dog.
I finally felt like I had an obstruction and found a urologist who correctly diagnosed me when he saw glomerulations (sp?) after a cystoscopy.
I did the whole program: DMSO installations, urinary frequency medications (which made me pee more and increased my thirst and constipation, all of which made me pee more frequently...kind of like the cure was worse than the disease).
I do think that the cystoscopies gave me the greatest relief because they expanded my bladder. I always felt better afterward. All this was complicated by a kink in my urethra, which made catheterizations quite painful.
I got hold of David Wise' book "Headache in the Pelvis." I started to doing the exercises, including external and internal trigger points.
My massage therapist, a trigger point specialist, asked me what I had been doing. He had noticed that my lumbar spine was relaxed and flat against the table. I told him and he said "Keep doing whatever you are doing!"
I went out to do the Stanford Protocol at David Wise's place in Sonoma. He had workded with a Stanford urologist to develop his own program based on trigger points and relaxation. Attendance required a consult with a urologist and had built a huge comfortable house to do workshops in on a property he owned.
He had an incredible physical therapist, Tim Sawyer, who did internal and external trigger point mapping. His wife Sara taught us how to use the Theracane and do stretches of the most important pelvic muscles. David did relaxation tapes and taught us about relaxation.
I do think that when you have chronic pain your nervous system gets stuck in fight or flight. Your nervous system is like a car stuck in 5th gear but the clutch is not engaged. At least that's how it was for me.
I was a psychologist with when I was diagnosed. Sometimes I would have to run down the hall to use the bathroom in the middle of sessions. After the Wise workshop I researched all kinds of relaxation and energy work to find out what might work best to help me relax. I went to every seminar I could, both medical and alternative.
It all works if I do the stretches, go to massage therapy (which is really stretches and trigger point therapy based on Aaron Mattes' program of physical therapy) and follow the Headache in the Pelvis book.
I stopped working 2.5 years ago when I tore up the cartilage in my right hip in a boating accident. I was diagnosed with fibromyalgia 20 years ago and the medications still cause me to be thirsty, but nothing like I was on the urological drugs.
Everyone has to find their own way. This one worked for me. If you are searching it might be worth a try.
I am happy to talk with you about it and share anything I know.
Please don't hesitate to write me if you have questions.
Beth and Augie, the wonder dog.