Does anyone else have burning pain on your vulva?

[Rita_Lorraine]

I have been having this awful burning pain on the outside of my vulva. It started after a recent IC flare up. My bladder pain, frequency, etc is now under control. But, now I don't know how to handle this burning pain. I saw my Uro last week and he gave me this Benedryl hyrdrocortizone creme and told me to use it. It seemed to help at first, but now my vulva is very red and burning even worse. Has anyone else had this problem, and how did you treat it? I'm so sick of doctors I could scream, so I am hoping for some home remedy. Do you think 100% aloe vera gel would help? Right now I am just taking warm baths, using Dove soap for sensitive skin and letting it air out. Grrrrr, I am so frustrated!!!!:confused: :( Any ideas would be appreciated.

Thank you all for listening. I wish us all painfree IC days.
Rita_lorraine :pray:

[HillaryD]

I have the exact same thing, mine is from Vulvodynia. My Uro put me on Neurontin for it a few weeks ago, but so far the Neurontin isn't doing anything. I have tried warm baths, and they help for a while, but the pain and buring always come back soon after. I don't know of any other options, but I go see my Uro again on the 13th of this month, so I will let you know if I find anything out. Good luck to you!
:grouphug:
Hillary

[kelly McC]

I do get that awhful burning when I have a bad flare and sometimes before my period. My gyn did some tests and said everything was fine but she did notice the area becomes quit irritated and red. She gave me a cream to use. It doesnot usually help . I never though of bringing it up to my uro. I'll ask him about it at my next appointment.
Kelly

[elsie123]

I also have vulvodynia. My uro prescribed estrogen cream and it has helped along with elmiron cream. THe elmiron cream is made by opening up elmiron capsules and adding to a plain vaginal cream. It has to be made special by a compound pharmasist. Many uro's are discovering that elmiron helps vulvodynia too since both diseases are related. Here is a link to the estrogen cream therapy.

http://www.vulvarpainfoundation.org/topical_estrogen_treatment.htm

[dyno]

Rita,
I would talk to your Dr. again and see if he can offer you something else to try. Hang in there and hopefully he can find something to work for you.:kiss:

[kadi]

Mine sounds less severe than yours, but the perineal wash bottle available from ICN helps a bit if you rinse while & after urinating. It keeps the urine from "burning" already irritated tissues. Also it helps to leave underwear off at night under nightgown. One doctor recommended not using "Always" pads, says they're more irritating. I don't know about that. An ice pack wrapped in a cloth for 20 min. at night can help. Also sleeping on side with small pillow between knees.

Oh, you might want to check out a low-oxalate diet. Some foods apparently make vulvodynia worse. (Black pepper, green beans, spinach - are the ones I remember off hand). If your symptoms fluctuate, might be worth it to keep a food diary & see if there's a pattern to flares.

Sorry, that symptom is especially annoying. Hope you find some relief soon.

[jala]

I had severe vulvar pain, like being on fire. I cannot use any soap, except Neutrogena Extra Gentle Cleanser (meant for face).

I take Calcium Citrate and it keeps it under control, but not if a flare hits. When I am in a flare, I use a steaming hot compress for instant relief. I then take Prelief (over the counter) to adjust the acidity in my body and stop the burning. The prelief takes a while to kick in, but usually solves the problem.

I have found that once I pass my trigger food, the burning stops. Jala.

[Laurenn]

I had a mild from of this---------and I found that for me it was related to one of
my trigger foods------------exactly like the last post. For this, my trigger food was
dairy products-----especially cheese (SIGH).
Hope this helps!.........sending HUGS,

Laurenn







:hi: :) :hi:

[ICNJess]

I also have Vulvodynia, and the first thing my gyn did was put me back on Elavil. I guess it is used for the pain. I didn't stay on it long, it just makes me more drowsy than anything. I have Vulvar Vestibulitis, so mine only flares up before periods and after sex, or sometimes if I change laundry detergents. :( I hope you are feeling better. :)

Hugs and love,
Jess

[gwyn]

i have the same pain too!!! and there is nothing i can do to make it feelbetter yet!!!!! how frustrating... makes me feel like punching myself there n numbing the pain... that is if i can punch hard enough to counter the pain in the first place!!

[shellby]

pain
I feel just like I did when I was told that I have IC. PAIN, BURNNING, now my elbows and my right hip are having pain.
And Iam so scared to take my DMSO TX. that I just picked up yesterday. I wish I had somthing good to say. but you are not alone. you ever need to talk Im here. Good luck:pray:

[poetgirl]

Rita,

You may want to check out information under the Vulvodynia topic board.

When my vulvar vestibulitis acts up, I rinse with cool water after urinating and having sex, and when I bathe, it's with Cetaphil cleanser since it is very mild (milder than Dove.) I will also do lukewarm sitz baths with baking soda or place an ice pack there for 10-15 minutes. I have a steroid gel that my gynecologist prescribed which helps some but it can't be used more than a few days. I take 1200 mg of calcium citrate every day and I sleep without underwear at night. I also try to avoid wearing pantyhose whenever possible. (One trick to do if you have to wear pantyhose is to cut a hole in the crotch to reduce the pressure from the fibers on your vulva and to help air circulation.)

My monthly hormone changes were triggering VV flareups, so I was put on the birth control regimen where you only menstruate 4 times a year. That, and 25 mg of Elavil every night, got my VV under control. I had tried the estrogen cream and it didn't do anything for me.

A low oxalate diet may help you as well. I'm not as sensitive to food (although every now and then something will bother me) so it's not as much of an issue for me, but for other women, changing their diet helps immensely.

Good luck!

[classics]

Rita,

Your description sounds very much like mine. I used to have much more bladder frequency months ago, but that's not too bad now. But I've always had the burning .

I haven't been diagnosed with anything yet, but I suspect I have IC with cyclic vulvodynia . For me it flares mid cycle and just before "late" periods. I'm having a very hard time with it right now because my period is late. My doctors don't know what vulvodynia is. My gyn says you can only get it in the labias (inside the folds). My burning is just below the urethra. There's an indention in that gland called Hart's line, that is midway between the vagina and urethra. Burns like a lite match or hot sauce.

Just yesterday I finally got my uro to prescribe Elavil. I've already been using Estrace cream and have increased it to 2mg, twice a week. I took my first Elavil last night and I cut it in half so I was taking about 12 milligrams, instead of 25. I was very groggy and found myself snoring on the couch watching the 6 o'clock news. But from what I've heard that goggy feeling can pass. I've also tried diet changes, but haven't notice any significant change.

In the morning when I first get up I'm not too bad, but in the evening, it's terrible. I put an icecube in either a paper towel or condom and freeze the area. That's the only real relief I can get.

[Rita_Lorraine]

I Just wanted to thank everyone who has responded to my thread. I am truely thankful for everyones suggestions. I am writing them all down and hope that my GYN can help me. I am still in burning pain and it can be so frustrating! Wishing you all painfree days, Rita_Lorraine

[maddy39]

I have burning too..BUT it doesnt sem to be a Yeast infection or bacterial ( For reasons i cant say here,unless its in PM)..i dont have a discharge..went to the Gyn he didnt even culture me says i am ok..and he is VERY good.Knows me well as i had ALOT of yeast & bacterial infections.

SOME ONE mentioned MAYBEit was from MAcrobid...I AM ON THAT NOW..( was on it before in May ..i dont remember feeling this way)...Dr says and i have READ that it does NOT give you a yeast infetion like other anti-biotics can.

I take acidophilus too..
He said that helps to prevent them

I tried putting some water on teh area..( and dr has told me to use BALMEX) the water helped..
I actually get what LOOKS LIKE paper cuts

OHH he said he DOES NOT think i have Vulvadynia as we discussed THAT TOO

i was VERY GOOD yesterday..GOOD day and i had it then too

i cant understand what i did wrong:rolleyes:

yesterday i drank ALOT of water...didnt have any flares..
NO urethra burning or low AB burn

I THINK it may be just DRY..
BUT it burns :(

i am goign to ask URO if he thinks its from the Macrobid..

my Gyn said if it comes and goes leave it..IF he treats me ..i get SOME THING ELSE

and i realy dont think i have an infection..
sigh...

SOME ONE posted about HOT urine..i got that today..and i am drinkign water too

very confused..Maddy

[bridget29]

hey have the same problem my doc says it was a bacteria infection after my hydro was done last week i hope this may help cause i always do the pillow bath thing and never call and ask about it praying everybody has i good night

[maddy39]

I have heard of people getting infections from Dx testing...

what is a Pillow bath?

i havent done any testing..( except an in office cysto) Gyn didnt think i had any thing..he didnt even bother to culture me or even do a swab

[bridget29]

pillow between your legs while in your bed on your side plenty warm baths

[maddy39]

ok NOW i got it :)

I always sleep on my side..with a pillow between my knees..for my back..
NEVER take a bath..

ttys! Maddy

[GloriaP]

When I am in pain and in a flare I get so discouraged and go to this site it helps to know that I am not the only person suffering from the symptoms of this terrible disease.

I currently am using a cool water rinse for the vulva burning and a prescription hormone cream but it only helps for a very short time. My back just throbs with pain. I am currently taking 6 different med's for the IC which includes Elmiron I honestly do not know what sets off the flares. I will try some of the other suggestions posted. Thank you everyone for your participation and suggestions. Hoping tomorrow will be a better day for everyone.

[nsmith4366]

This sensation is from nerves inside the bladder actually that are either irritated by oxalate or a bladder flare (even a uti can do this). All the nerves are connected. Rinse with water after urination / if thought to be oxalate and eat a low oxalate diet and take calcium citrate with all meals for 3 months (2 pills). And/or - put vaseline or even better CRISCO - yes real crisco (not butter flavored ha ha) on any area there - it helps (don't know why but it makes my life possible when the oxalates are high). Just smear it on and be careful, no washing there with chemicals/just water - don't scratch - if using "pads" do not use ones with any scent or bakingsoda!!! Vitamin E oil also is soothing.

[Dianne]

I don't know if this will help anyone else but I'll just throw it out there. I was diagnosed with vulvodynia first. I couldn't sit in a chair for months. I finally went to a dermatologist who told me although I didn't culture yeast that I might have non-candida yeast which causes pain/burning as opposed to itching. He put me on a course of sporanox as opposed to diflucan. I was cured in 48 hours. I couldn't even believe it after months of suffering. I had trouble with it coming back so I was on/off sporanox for quite a while. I also started 1000mg. of N-Acetyl Glucosamine which seemed to restore the collagen to the tissues and get the nerve endings buried again. Eventually it just all went away and never came back but I know the sporanox cured me. In my case I think I had non-candida yeast deep into the tissues due to long term use of penicillin which we used back then for canker sores (apthous stomatosis, not herpes). My IC remains out of control but my vulvodynia is cured as long as I continue on the N-acetyl glucosamine (not glucosamine sulfate which killed my bladder.)

[maddy39]

I found it interesting in what you wrote here...

I was told i dont have VV & my Uro recently told me that i dont have enough symptons at this point to be IC..BUT i was just telling some one else here that i was feeling good..

well I JINXED my self :(

I have been drinking lots of water...becuase Uro told me too.He agreed with me that MAYBE all the coffee i had been drinking ( I was up to 6 cups) and the STRESS had messed up my bladder :(

I was even told at my Dentist office that I was dehydrated...i see now that i make more saliva..

IF i notice it then it must be happening..

but i had popcorn last night...DRANK WATER ALL DAY

i had 1 almost 8 oz glass...then 2 11 oz bottles....then........almost 2 16.9 oz

this morning i got up around 3:20 ( after not peeing since 9:15)& my urine smelled STRONG

So i went online..looked it up & it even took me to a post here ..
which said maybe i wasnt drinking enough water...

hmmmmmmmmmm i think i am ..

also MAYBE some thing i ate..

I called the Uros office....they said..MAYBE some thing i ate

hes not in :( wont be back til this time next week

i have been peeing all morning...
the last 3x was between 10:05 & 10:40

and i have a burning ( ?) around the labia area

SORRY ladies for the graphics

but i was always able to talk freely and write HOW I FEEL

i see most every 1 else does too

i had a PAIN in my rt side..the smallest part of my waist too

I WONDER if i didnt have a stone?

i wsitched to DECAFF..i drink 2 cups..and my water 1st thing

he said i should be OK with the decaff..

and MAYBE try prelief..

which i havent yet

i never noticed strong urine before..UNLESS i didnt drink enough wart & it smelled like coffee

which is not good..
ok enough said..
any input would be welcome..HOPE every 1 is well..
maddy

[navemj]

Hi,
I had the same thing a year ago. I got it after laparoscopy surgery. Mine was vulvodynia. I took elavil, and my gyno told me to put some olive oil on me down there. It is so soothing. I have to use it from time to time. I also used something called estrace compounded with elmiron. I wouldn't recommend this unless all else fails there can be some bad side effects. But it wouldn't hurt to research it. It helps rebuild the tissue. Also, be sure you are rerinsing your underwear after washing and you haven't changed any soaps or shampoo. Sometimes in the shower the perfume from these soaps will bother me. Hope this helps!

[clementi60]

It was interesting to read all the replies you got. I am also going thru a burning period at the moment and I think it was caused by eating dried cranberries! However, something that will give you immediate temporary relief is an over the counter med called Urostat. It turns your pee orange, but it really does help with the burning. I felt sad reading about the "belly bloat". It really bothers me to look pregnant at 60! Try the Urostat. It should help.:grouphug:

[navemj]

I love using olive oil down there on the tissue. Very soothing!!
Maryann

[maddy39]

This place is a GREAT source of Info ,,and support.every 1 is soo nice! :)

i have read here to about belly bloat..i have that some what..but i think its from my type 2 diabetes...and its funny how when we are younger its in 1 place then as we get older it goes elsewhere..!

I WISH I could do sit ups..but i fused my back 3 yrs ago and i am afraid

Some one here told me that the burning i get MAY BE caused by the nerves from my bladder..that every thing is some what connected..

I THOUGHT This to make sense and be very interesting..Gyn doesnt think I have VV and Uro doesnt think I have IC....
but if i flare ..from eating some thing i can feel it in ares as 1 would who has VV...i have a UTI right now..was HAPPY to hear i did..as NUTS as that sounds LOL

i have been on strong meds for 1 1/2 days and the PAIN when going is not as bad as yesterday..i forgot about urostat..sounds like PYRIDIUM as it turns your pee orange too

well i suffered thru the worst..

hope every 1 is well...

p.s. warm olive oil sounds good...

who ever wrote that here..

id like a whole massage..LOL Maddy

[Trishann]

Yep, me too. I'm burning right now. For temporarily relief I do use the ice pack.
You should keep it dry but I get relief from it and I'm doing it. I sure would like to know if this is just normal for IC. Maybe it is an yeast infection but why IC'er seems to get it more. Or is it an yeast infection?

Trishann

[nsmith4366]

You will not forget the day you read this. Please, everyone with this "burning" there please do.Your oxalate levels in your body may be too high. This can happen if you are losing too much calcium in your urine. Your vulva is burning (possibly) because calcium in your body helps to regulate (hold down) oxalate levels. When oxalate levels rise, the excess oxalate acid is recirculated throughout your body and nerve area in the vulva is especially sensitive to this and burns, itches or flares. It can look very much like vulvodynia - however it comes and goes with oxalate fluctuations in the body.

You can also get high oxalate levels if you are genetically presdiposed to do so because people in your family just naturally lose alot of calcium in their urine (rare), have been on longterm rounds of antibiotics (this depletes a bacteria called oxalobacter formegenes in your body which helps to regulate oxalate levels), have a kidney problem or are just eating too much protein, caffeine and or phosphorus in your diet (soda pop).

No matter what the cause, try this...take calcium citrate pills (no vitamin D, no magnesium) with your meals (this increases the calcium in the gastro-intestinal tract and helps to bind excess oxalate, eat a low oxalate diet http://www.branwen.com/rowan/oxalate.htm(get the low oxalate diet cookbook #2

http://www.vulvarpainfoundation.org/vpfcookbook.htm) and don't eat more than 50-70gms of protein a day -- and see a good nephrologist (kidney specialist and ask for a 24 hour urine oxalate test!!!).

Really, most women with this pain need to follow these steps. The food is not causing your trouble, but certain foods can make it much worse. Avoid these:

FOODS TO AVOID IF YOU ARE SENSITIVE TO OXALIC ACID
Coffee
Cocoa
Beans
Beets
Berries
Celery
Chocolate
Cranberries
Peanuts
Peppers, Bell
Pepper, Black
Rhubarb
Spices (separate list)
Spinach
Strawberries
Summer Squash
Sweet Potatoes
Teas (separate list)
Tofu
Wine

I hope all this helps someone else too. Don't fall into the "I have this weird thing going on and I have to solve it all myself and have it forever" kind of thinking. Go see a nephrologist and get your oxalate levels checked immediately.

I know - you've never heard of this stuff before...(maybe)...and that is good - the answer is most likely here. One you might not have found otherwise.

Peace to you. You will be better.

[Dianne]

I pursued this avenue since I presented first with vulvodynia. I had the testing and my oxalates were 5 times normal in mid-afternoon and also at night. I got great relief with low oxalate diet, calcium citrate and in my case got tremendous relief with Sporanox that treats non-candida yeast although I never cultured yeast, my dermo said non-candida yeast from long term antibiotics (we used to use for acne) causes burning deep in tissue as opposed to itching. Anyway my vulvodynia went into remission and I can maintain it as long as I take N-Acetyl Glucosamine. 18 mos. later the IC started. I was no longer able to tolerate calcium citrate. So I switched to second choice which was calcium carbonate (Tums). Then I lost the ability to tolerate those. I recently tried again to restart it using Titralac which is low sodium where Tums isn't. I had a little success with taking 2 at bedtime, so I tried to increase it to what I took before (2 a.m., 2 afternoon, 1 eve.). I did it for one day and had the mother of all flares. I can tolerate calcium lactate and I take that but it doesn't work like the others did. I would love to pursue this and I'm not sure it isn't part of my particular brand of IC, but I don't know how to treat if I can't tolerate the citrate or the carbonate and lactate doesn't cut it.

[nsmith4366]

Wow - 5 times higher than normal oxalate would put you are high risk for oxalate kidney stones. I hope you got that under control. Did you get your oxalate levels retested and find out they were normal again? I hope so...I'm in the process of doing just this.

Well, the EASY way is to simply increase the amount of dairy in your diet. Can you do that? I can't...no dairy in my IBS diet.

[Dianne]

This is a controversial theory. My 24 hour level falls into normal but serial samples doesn't in a 24 period. So does the fact I am 5X normal at certain times mean anything if my 24-hour is normal? Does it only bother some people if serials are high? What are the controls on this? I have no idea. I've never had a stone. And dairy while it doesn't bother me doesn't make it better. I really have no idea but the link has always been of interest to me.

[maddy39]

How does 1 test there oxalates?

I have the calcium citrate BUT havent tried it yet,,,i read here ,,that some posted that she takes 2 at least per meal

i get kidney and i think calcium stones..
HELP..should i take it..??

Uro said IT COULD MAYBE help me..& he said well u need the calcium any ways..

IF i drank lots of water i guess it would help..

the BACRIM DS I am on...( the side effects said...they can cause stones..) WHY would a uro prescribe it then? I heard from phamacist its DS...DOUBLE STRENGTH

id like to know more on testing for osalates..
Maddy

[redfaced]

My question is, does the uro or the gyno detect vulvadynia? I see the uro next week. I've already seen the gyno, and he didn't really address the situation at all. I wondered if he's leaving it to the uro. Is vulvadynia associated with the IC, or is it more of a problem of gyno-related illnesses. I just don't want to bring it up to the uro, whom I've never seen before, if it was something he'll be embarrassed about addressing.

What exactly happens in a uro's office anyway? Do they examine you like a gyno does?

[GloriaP]

You have a very good question...... I have made an appointment with my Uro. About a year ago I seen a Gyno but he did not diagnose Vulvodynia. I will watch for other replies posted.

The Uro basically takes a urine sample and feels around my bladder and talks with me to see if there has been any progress. He has never done an internal on me in his office.

Good Luck

[Trishann]

I can understand the frustration of not knowing who to ask. But to be honest, I think it depends on the doctor itself. I would ask your uro. doctor about it and see if you do get help. If not ask your gyno even if the doctor do not bring it up. Hopefully one of them can help you.

Hugs, Trishann

[maddy39]

I had asked my GYN about Vulvodynia...so IN MY OPNION this would be the person for you to ask..

I think every Gyn has there own opinion/Dx about it..but ask..cant hurt ,right?

as far as MY expeiernece with my Uro..I really like him...I had 1 previously & then he let me down ( I was scheduled for a In office Cysto..which i assumed HE was to do & he had it done with his PA )...then he never returned my calls..so I switched..

the 1 i deal with now LISTENS to me..and is very nice.very smart as well.
My visit to him consisted of a urine test and him tapping or lightly pushing on my tummy/bladder area. Depends on what procedure you are scheduled for..this for ME was done at just an office visit,becuase of systems i had

he also at 1 visit cathed me for a urine test.i was never examined like a gyn does at my Uros..HOPE this helps..maddy :0)

[Jiminni]

I don't get the burning so much as a itching. My gyno always tells me that I a little red and irritated down there but that I don't have any infections. What causes the redness/irritation? Is the food that flares us causing it? Is itching normal? I usually only get it towards the front which again doesn't indicate an infection. The itchiness and redness started at the same time as my IC.

[redfaced]

Same here. I also notice that the itching stops after my period begins, and then starts up again after my period ends.

[maddy39]

I have been irrated but had no infections either..

I think i know the difference now..( Hope so considering i had so many the past yr)

I get off/on again itchiness but when it isnt ALL the time i know i am ok

who ever said that they get NO symptons when there periods stop..is interesting

my Uro told me i would get IC symptons before my period IF I had it.
he doesnt think i do He says I have a really sensitive bladder..
and i tend to agree with him

I THINK i scewed it up with TOO MUCH coffee:rolleyes:

and stress ( Now i am alloed 2 cups of decaff ) and no reg coffee..soem times thats hard..considerign i use to drink 6 cups a day

last time i had a really bad UTI..was almost grateful that it wasnt any thing else

hope every 1 is well maddy

[boukie]

I have been having this awful burning pain on the outside of my vulva. It started after a recent IC flare up. My bladder pain, frequency, etc is now under control. But, now I don't know how to handle this burning pain. I saw my Uro last week and he gave me this Benedryl hyrdrocortizone creme and told me to use it. It seemed to help at first, but now my vulva is very red and burning even worse. Has anyone else had this problem, and how did you treat it? I'm so sick of doctors I could scream, so I am hoping for some home remedy. Do you think 100% aloe vera gel would help? Right now I am just taking warm baths, using Dove soap for sensitive skin and letting it air out. Grrrrr, I am so frustrated!!!!:confused: :( Any ideas would be appreciated.

Thank you all for listening. I wish us all painfree IC days.
Rita_lorraine :pray:

I have had the same problem, burning lately. It lasts about 4-5 days then it goes away. Then it starts again. My uro said to keep a watch, I asked him about the Elmiron cream and he didn't know anything about it.

[boukie]

I get the same burning off and on. What's causing this? I saw my uro today and I asked about the Elmiron cream and he didn't know anything about it. We are just keeping a watch on this. Any help would be helpful from anybody out there!

[navemj]

I use olive oil. My gyno told me it would help sooth. It really helped me. Also, my doctor prescribed estrace cream compounded with elmiron. I use birth control continuous. Mine was hormone related I think. Of course I would check with your doctor before applying anything. Also, the estrace cream can cause worse problems. I was willing to try it. I hope you feel better soon.

[needhelp!]

I,m realy hope some one can help me here , about 12 months ago i started to get a irritation on the out side of my vagina ,thinking this was a yeast infections , so i would get over the counter nilstat or canesten cream , I would apply the cream on the out side , and within 3 days the irritation would be gone , everything would be back to normal apart from being very dry ,which was nothing add normal for me..
Then these epoisodes were getting more often, the last epoisode i had lasted 5 weeks ,i could not walk or do anything , pain was unbearable, nothing i use will heal it , just make it worse, it felt like a i have a graze vagina and rubbing sand paper on it ,
I had been going back and foward to the doctors, nobody was giving me any answears.
I been tested for all sexauly transmitted disesase, and they all come back clear....
At the same time i started having allergic reaction from sunsreen, mosquito replent etc on my body, anything that touches my body..
So it made me think i might be having a allergic reaction to the gentle dove body wash that i was using to wash my vagina, so i have stop using all soaps on my body and only use water, now i am finaly getting better ... thank god for that ,
Grrr not so lucky i forgot i was using deodrate, bang another flare up ,lesson to be learnt...
The only thing that i can use on my vagina to sooth the pain is raw natraul yogurt,
It now been a hole week i only have a very small irritation there.
But i am so dry down there it beyond the joke , had a hysterectomy done about 7 years ago but kept my ovaries ,been tested for menopause that is fine , i take 3 flaxseeds oil , two evering primrose oil, 2 vitamin E oil ,and drink on cup of soybean milk a day ,been doing that for 4 weeks , and drink 3 liltres of water a day which i have done for the past ten years, to try and get my own lubricate to work ,and its not working, i am a mess , has anybody got any ideas ?????????????????
thankyou hope everybody painfree days

[Briza]

hi needshelp
welcome to the board
sorry for what brings you here. i have dealt with pain similar to yours and know that it is maddening.
you might want to do some research on vulvodynia. it sounds like you could be what you are dealing with.
yes, it is probably best to avoid putting any creams or lotions or cleansers down there. use just fresh water to wash. applying cold packs can give a ton of relief and an antiinflammatory such as ibuprofen or advil always helps me. lidocaine gel may also be well tolerated and can provide good temporary numbing of the area.
overall, just treat the area very gently for now and probably best to avoid applying much of anything. always do a test spot.
hope you feel better.

[Mothergoose]

I had tochange laudry soap, I can only use reg plain old tide, and I quite wearing underware, this has made a hugh difference.

I don't ware any pants that are tight in that area, around the house I wear mens cotton boxers or loose cotton PJ bottoms.

This has helpped me greatly.

MG

[needhelp!]

Hi Briza, First i want to thankyou so much for replying my post..
Yes i have done alot of resecrh on the net for vulvodynia , and it sounds like me all over , and i was able to get a appiontment yesterday with a good doctor, that has taken 6 months!!.. he to said it could be vulvodynia , has reffered me to the gyno, will look at my valva under a micropsope, see him end of next month, long time to wait....
And i have notice that i am now getting a small about of self lubrications, makes walking a little easyer to , so the supplements that i,m taking must be working...
I was at my last wits there i tryed vagasil the numb the pain, it work for awhile , then when that worn of then that pain was worse, and i will try a ice pack, read that olive oil , ky jelly is good but i had reaction from that to ... what did you use for lub?
Do you have to watch your diet? what food should you not eat ?...
now that you are in remission for two years, are you able to live a normal life ? and has your sex life been affected alot ? sorry about so many questions, talking to some in the same position is sometime better infro...
thanks heaps

[cmclien]

Hi there,
There is something called the low oxalate diet that should help. When I eat too many berries and vegetable protein I get tenderness on my vulva too. I have had it for a couple of years and dropping the high oxalate foods really helps. Also mucinex is supposed to help...sounds weird I know but google these things. Also calcium citrate taken at every meal is supposed to bind with the oxalates and get rid of them (or something like that).
Good luck!

[Goodnightmoon]

I am seeing a VV specialist for the same kind of problem and she gave me a Rx for the Estrace Cream and the AMI_BAC_Cream - the later is FANTASTIC, much better than the hormonal cream.

It is a mixture of Amitriptylin and BAclofen , each 2%. I use it twice a day on the affected areas - and I am 100% better with only the cream!!!!

Ask your doctor for the RX and also to show you WHERE exactly your affected areas are... I always thought it is the whole area, but it turns out it is only the left side - which got tested with a cotton swap test.

Good luck.

[navemj]

I use olive oil for sensitive tissue.

[needhelp!]

I to always thought it is the whole area to, think because the pain can be so bad , but mines only a small part of the right labia minora, on the bottom edge, as mine dose hang lower then the outer labia majora, which gives me no protection , two years ago i did get my left labia minora removed due to having two inches of skin hanging down , i only had small irritation, i had no further problems on that side since sugery, i,ll have to wait and see what gyno can offer me, in the maen time, i have stop using creams as they irritate me , and taking panadine forte, and voltarens , that helping me a little....

nh