Philly, PA Dr?

[mich2604]

Anyone have a Dr that does trigger point injections into the vestibule? or anyone know of someone on the East coast that does these?

thanks

[KarenAnne]

I had this done at a previous urologist's office & it was horrible & it didn't help me. What did, & does help me is having physical therapy for my pelvic floor. My therapist includes internal work for my trigger points & this really helps. Her name is Erica Fletcher & she is right outside of Philly in Narberth,

[mich2604]

Who was your urologist?

I have heard some good things about Erica- she doesnt take my insurance though... PT has helped me too but the combo of the vulva injections and PT really helped.

Do you see a Uro other than Dr W?

[KarenAnne]

Erica doesn't take my insurance either. It has been a sacrifice financially to see her, but it has been worth it. I see Dr. Hanno down at HUP. He is wonderful. I sent you a pm.

[Lyn40]

I haven't been on here in awhile, or I would have responded earlier. But, Dr. Susan Kellogg in Philly does the trigger point injections. She is in the practice with Dr. Kristine Whitmore. They are top IC/Vulvodynia specialists. The injections really helped me. I have gone through them twice. She is hard to get in to see right away, but Amy or Jen, the NP's can also do them, and they are very good, nice, and understanding.

I also saw Erica Fletcher for pt. If you are out near chester county, I now see Rachel Miller in Downingtown (Empower Physical Therapy). I think she is even better.

Lyn

[KarenAnne]

Susan Kellogg is not a medical doctor. She is a PhD. But her title Dr. is a correct one. I just wanted to clarify in case someone thought she was an M.D.

[Bronx]

I would have recommend Dr. Whitmore office they do the trigger point injections. She is in the practice with other NP's but i see them monthly the office can be crazy but its worth it they kno what they are doing.

[crkshnks79]

Dr Echenberg also does the trigger point injections but he is out in Bethlehem and I dont know if thats within a decent distance for you . I used to get them once a week , and also injections in both abdomen sides foe nerve damage there as well . It did wonders for my POudendal nerve damage ! Before I started those shots I felt like my vagina & rectum was constantly being shocked , it was excruciating . Dr Echenberg is a God send , he helped me so much but I dont see him anymore because the 2 hour drive was killing me . I hope you have luck where ever you may go , and Thank you to whom ever mentioned Whitmore's office , I think Ill make an appt there

[aliciacaldwell]

i live in state college pa and have had issues with docs for years i finally went to dr. philip hanno in philadelphia and he is absolutely wonderful,i am diagnosed with sever ic, ibs,fibro,vulvo,chronic pain syndrom,pelvic floor spasms,chronic fatigue,severe anxiety and depression,retention frequency, i have tried everything and nothing has helped still tryin to get it all situated and get the right docs and meds i need but i am only 24 and that is a problem for docs aorund me but dr.hanno was extremely careing and i felt very comfortable with him go back to see him in 2 weeks

[KarenAnne]

Dr. Hanno is my urologist too. I was blessed to have found him.

[jennymm]

Karenanne,
I just started with dr hanno. I am curious what he has you doing as far as treatments?? He started me on dmso's and i had my second one this week.
Thanks
Jenny

[KarenAnne]

Jenny: He started me with amitriptyline & luckily I responded to it pretty fast. I do not have Hunner's ulcers. Don't know if you do. He also prescribed physical therapy for the pelvic floor. And I stay pretty strict on the diet.

[jennymm]

Hi, i have done my circuit of docs for the last 10 years since we moved here. I am 38 yrs old now. I was on amitriptyline for 8 yrs and it helped alot. Not perfect but better. Then I got a really bad reaction to it and had to stop. Saw 3 or 4 docs ... They put me on everything under the sun, nothing worked. Also had another hydro and he (not hanno) damaged my bladder. Now i am w/ hanno doing dmso. Oh my gosh, they hurt. I wondered if he did that with you too but i think I am past the meds stage so now its dmso , next botox if that doesnt work:(
I did the pelvic floor therapy and it was helpful as well.
Are you in chester county? I just started a support group in downingtown. Its alot of fun and really encouraging. The woman are great. Let me know if its something you would like to do and i will give you my email.
Jenny

[freezin]

I have also heard good things about Rachel Miller but have personal experience with Jackie Suniaga (Jackie Hajinian) at Main Line Spine in King of Prussia. Very kind, caring and excellent with IC and pelvic floor issues.

Jamie

[Julie B]

Hi Philly people! I know it is a bit of a drive, but I am speaking and doing a book signing at the Central NJ IC Support Group on October 9, 2012: https://www.facebook.com/events/263493670429623/ Hope to see you there!

To learn more, contact Michelle Brill at Brillo4@aol.com!

[KarenAnne]

Julie, You are an IC Rock Star!! I have got to try to be at your book signing. Thanks for the info!

(Gosh, haven't been on here for awhile....fancy new website)