Raynaud's disease

[tigger_gal]

I was told today by the cardiologist to check and see if I have Raynaud's disease. The top of my feet and toes turn purple and are always cold. I get severe cramps in my toes and feet to the point I literally want to cut my feet off. It happens while sleeping, in the shower or tub, in the summer or winter. When I am driving.
This happens several times a month (feet cramping) I do have slow blood flow in the lower extremities and their is plaque build up in the arteries in my feet.
I looked it up and my symptoms don't even match. Does anyone have this and tell me if you have the same symptoms.
No other body part is affected. P

[Charisse]

I have Raynaud's although my case is very mild. My dr. was concerned it was a sign of autoimmune disease (specifically Lupus which my mother also had). I was tested and none of my bloodwork came back indicating anything and I was subsequently diagnosed with Fibromyalgia based on some other symptoms. I get it in my hands and feet. Basically if I get too cold than they turn a darkish blue/purple and they ache like heck and just will not warm up no matter what. I don't get cramping.

[tigger_gal]

I thank you for responding.

[Nancypt]

Hi,
I have also been having some purple toes on my right foot. At times they itch and when I scratch it is very painful. I had a study to check the blood flow and it is decreased a little in both legs (don't have any symptoms in left foot). My doctor doesn't seem to know what is going on. The heat from a shower/bath increases my symptoms and usually with Raynauds it is cold that aggravates it. He wanted me to try nitroglycerin ointment to see if that opens things up and increases the blood flow but it gave me a headache and made me feel wierd. I go back to him on Thur and will see what he says.
Nancy

[tigger_gal]

Thats like me, it happens in warm weather and a bath too. I t happens all year. Both tops of my feet and my toes are affected. keep me posted on whats going on. I have nitro but it is the pills, I am about to try anything at this point. I wonder if the blocked arteries can cause it. Think I might look it up and see.

[teacher2be]

So, I bought some new suede boots a few months ago and I had to go down the stairs in them and my toenails turned purple. If I wear high heels my toe nails turn purple. Does anyone else have this problem?

[HKay66]

Hi,
I don't have this, but have come across it so much lately in my research
of Sjogrens autoimmune disease that I have. It does sound a bit suspicious
and would be worth getting tested for. Many people have this overlapping with different autoimmune conditions. I have found that there are many people with sjogrens that also have IC.... In my opinion it is not a coincidence! I just found a support group in my area for sjogrens and talking
with the lady in charge she told me I wouldn't be alone with IC as others in the group had it too. Maybe I will get a two for one support group - LOL!

Anyway, not saying you have this, but like anything if you catch it early, the more effective is the trmt. and if you get tested and it is negative it is
peace of mind for you that you don't have it and can look for other answers.

Good luck and keep us posted!!

[tigger_gal]

PAD describs everything I am experiencing. I called the Dr office again to have the dr call me to find out if he read my results, as the office manager told me they were only the prelim, the dr has not read them or watched the doppler tape. She said I should go get checked for raynauds. I treid to make an appointment and was told if the dr wants to see me then he will make the appointment. Needless to say I was not impressed and I have scheduled an appointment with another cardiologist. I am getting the run around and 2 times I have waitied for this doctor to call me all day. urgh

[HKay66]

How frustrating!!! I am glad you made an appt with a different Dr.
Good luck!!!!

[ICNDonna]

Be sure you get your record transferred to the new cardiologist --- so you won't have to redo all the testing.

I know it's frustrating for you.

Warm hugs,
Donna