View Full Version : Difficult day...
04-28-2004, 05:25 PM
Life has been so difficult lately. I know that I should not complain (I am sure others have it worse than I). I was diagnosed with IC two years ago. Last winter, spring and into to the summer were very difficult. One thing after another - I was diagnosed with Inflamatory Bowel Disease, then a candidia infection of my esophogus, biliary papilary stenosis (blocked bile duct), parcreatitis (in the hospital for 5 days in April) then I had my gall baladder out in July. By then the relative remission my bladder was in was over. I guess my body had had enough. I have been in a terrible flare ever since. I tried Elmiron - gives me terrible dibilitating headaches. Then DMSO treatments. I know there is no prize but I hung in there and did all six dispite the fact that everytime the pain just got worse. By the time they did the last one, I screamed everytime I went to the bathroom. I have been on oxycontin and oxycodone for breakthrough pain since February. It took some searching and some disappointment along the way but I have found a supportive Uro & pain specialist (I think). In March of this year I was diagnosed with Myofascial Pain Syndrome. I have been going to physical therapy and have been taking muscle relaxants for about a month - no improvement or let up in the pain. A bone scan turned up arthritis in my feet and ankles - I wondered why they were always so sore. I have continued working - I teach special education students and love my job. I am very lucky and have a wonderful supportive husband. So I have many things to be thankful for. I guess all the pain and effort that it takes to get through the day it just getting to me today. I am trying to stop crying as I write this - I was hoping just having someone to vent to would help. I know that you all have been there... Thank you for the shoulder. (Sorry this was so long!)
04-28-2004, 05:56 PM
I'm so sorry to hear of all your health difficulties. It seems that you have quite a bit happening and alot to deal with. Crying does help because I've done it so often, but than you reach a point that you just want to make it all go away, but it won't. You are right in saying you always think about the people that are worse off, but it does not take the pain away. Mentally and physically, it just helps you cope with it. The Easter weekend I flared up so bad for roughly 2 weeks I just layed in bed, but being a mother of three teenage girls well it was kind of hard. I find that it's been hard on everyone but I think that in time family members will learn to deal with it on a better scale. It's hard being a teenager and seeing your mom in pain. My husband has been very supportive as is yours but deep inside they are also hurting. They see us in pain and there's not much they can do. I hope that you take some sort of pain medication or some antidepresents. Maybe they might help a bit. I live in Canada and if you would like to send me a message I'd love to hear from you. At the moment I wish that you get some sort of relief and may God watch over you.
04-29-2004, 12:08 AM
Sending you :grouphug: :kiss:
IC is bad enough all by itself without being compounded with all your other health problems. I have been in the hospital twice with pancreatitis, so I know how bad that can be. Come to the boards for support. You will be in my thoughts. Hope today is a better day for you.
04-29-2004, 02:45 AM
Thank you both for your kind words of support. I do feel better today. :thumbsup: I just need to try and stay positive. It is hard to be too upset when you are with our new puppy, Derby (Australian Terrier, 7 months old.) He is full of wonderful happy energy at all times!!
04-29-2004, 06:56 AM
:puppy: Your puppy is what you need right now. They give uncondiontional love. They will lick your tears away and and take naps with you when you need to rest.
I am glad you are having a better day.
04-29-2004, 08:00 AM
Jeni...Sending you gentle hugs and soft kisses in hopes that you will begin to feel better soon. Whenever you need a shoulder, this is a great place to come. We all have 2 each. :D There's plenty to go around.
Bell...:hi: and :welcome: So happy you found us. Like I said above...we are here to lend support.:grouphug:
04-29-2004, 10:19 AM
I have been through a lot recently myself and am proud of the fact that you are positive...still doesn't take away the pain or the nausea on a bad day though, huh? I have a pretty absorbent shoulder, and I may be short but have been told I have shoulders like a full back. The good news for you, is there is plenty of room for tears, and I have a listening heart as well--god bless and let me know if you need anything.
It's so hard to stay positive when everything around you is turning to crap but we just can't let it beat us. You are so fortunate that you have a job that you love and that you are still able to make a difference in the lives of so many other people.
Sometimes it's real hard to see the blessings thru all of the pain but if we look hard enough, we will find them every time.
tons and tons of hugs~
04-30-2004, 05:01 PM
Thank you again for all of your kind words. I feel much more up beat today. Sometimes the stress of coping starts to get to me and build up after a while. Today is my birthday so I went out with my husband for dinner - and a few bits of a forbidden desert that I like - apple crisp. I have it once a year on my birthday with plenty of prelief. He is taking me somewhere tomorrow as a birthday surprise - no idea where yet. I know that it is in the city. I will have to keep quessing until tomorrow (he will not tell me until the last minute). Thanks again.
:dogrun: (This little fella reminds me of my puppy - Derby)
04-30-2004, 05:59 PM
I hope you have the best bithdays ever. Hopefully the IC beast will be tantalized while you are eating your favorite stuff and that
the after effects.aren't horrific. Take care of yourself. II'm falling asleep and figure no one wants to read my drool conversation while I am drugged, slow and making more typos than I think I h have since 10th grade
04-30-2004, 10:59 PM
:woohoo: It's you birthday.
Sending you a great big :grouphug: I hope you have a wonderful day.:bouncy: Anticipation...... I am sure your surprise will be great. Go and enjoy.
05-01-2004, 02:37 AM
I hope you have a wonderful day and can enjoy your husband's surprise for you. :party: the day away!!!!
Hugs & blessings to you--:cat:
05-01-2004, 02:55 AM
:birthday: i hope tomorrow is great for you both have a great time and hopefully pain free.
05-01-2004, 03:39 AM
05-01-2004, 12:57 PM
Where do you live in Wa state? We have had an informal meeting of Portland area folks and would like to do again soon....Maybe you can meet with us...?
Happy Birthday to you!! Mine's coming up soon...Great to be a Taurus, eh?
Hey :birthday: :woohoo: from one Taurus to another, have a great birthday surprise, hugs to the birthday gal, from Iris.:hi: :dance: :flower:
05-01-2004, 06:43 PM
Thanks for all of the Birthday wishes. We had a great day - he had gotten tickets for a play. A local production of Agatha Christie's "Black Coffee". Very well done - enjoyed it thoroughly. We also went to "Cold Water Creek" and I got to buy myself a new outfitt - great fun. We also bought some beautiful flowers at the market down town and ate by the water. Thanks to oxycontin & oxycodone I was relatively pain free. Yeah!
I live in the Seattle - Tacoma area and would love a support group if there is one!!
:dogrun: :dogrun: :dogrun:
05-01-2004, 06:58 PM
glad you were able to enjoy your birthday:) Sounds like you had a great day:thumbsup: :birthday:
05-22-2004, 05:54 PM
I used to be a teacher but that too was taken away, my last day was January 24, 2003...I will take that date to the grave...
I'm so sorry you're having such a rough go at the time, oh how I would love to have a husband like yours (or even a husband!) and I'm so happy you have him.
I was wondering if you could explain "Myofascial Pain Syndrome" for me? I think I know what it is, I just don't know where that pain is located??
I'm new to this site so if you addressed it to me, it would be easier for me to find...sorry...I'm still learning to navigate
Bladder instillations never did a thing for me either and I too have to take narcotics daily.
Don't ever, ever give up! Something good will happen soon, we all need to keep our faith strong and it will all work out somehow, prayers to you,
write when you can, xo
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