I Do NOT want this! Anymore!

[Cassaundra]

I don't want this anymore!!!

My bladder feels fine, and the lap surgery has helped. So I'm starting to feel like a normal person. But I'm tired, tired tired, of all the MEDICATIONS, SURGERIES, DOCTORS APPOINTMENTS, NO SEX, ALWAYS WATER OR MILK! All the PHYSICAL THERAPY for my PFD.

I mean, does PFD EVER go away? EVER?! Can I go ride a horse? Or do my jujitsu? Or martial arts?

I normally do well with everything, but I'm SICK AND TIRED of it! Just after turning 19, I have been diagnosed with a bladder disease, endomertriosis, uterine polyps, AND to top it off, PFD!!

I'm tired of my coworkers thinking that just because I look fine and I'm not running to the bathroom every 15 minutes, that I'm FINE. Sorry, I can't try your mexican bean cheese dip b/c it has SPICY STUFF! DUH!! BUT YOU FAIL TO REMEMBER THAT, BECAUSE YOU DON'T CARE! So, please, do get offended.

I don't want it. anymore.

[pennstate71]

So sorry you're so frustrated...I DEFINITELY have those days and I hope it felt good to vent a little...you're preaching to the choir and we all feel your pain...litterally. So I hope you take some comfort in the fact that even though all of this is just such a pain in the butt (literally as well) you have folks that are going through it and understand and we all have those days...sometimes more often than not. My PFD is really bad too and to be honest if its not one thing its another and I feel like I can't give my best at work, home anything and its so frustrating...I hope you can just yell a bit and get it out!

[Charisse]

I feel your pain too. I am most frustrated with not being able to exercise, wear jeans or do housework like a normal person :(

[HeatherP]

Sorry you are having such a hard time, and I'm really sorry that you got this so young.
Hang in there tho, it can get better.
Are you doing pt for your PFD?
I'm supposed to start tomorrow and I really hope it helps. But I have been better overall lately, except when I'm on my period, like now.

[musiclover]

I feel your frustration. Sometimes I just end up crying to let it all out. It's the most frustrating condition. I do want to give you some hope about the PFD. Out of anything that we're dealing with, it's the easiest to treat. It just takes a long time. I did 8 months of PT, but I don't have PFD anymore. The biofeedback machine shows great numbers, my muscles feel normal by palpitation by the PT, I can exercise without pelvic pain (just some bladder irritation). It does take quite a bit of PT, and I know it's super frustrating and hard to find time to go to all the appointments and do your at-home work. Not to mention the money this all costs! The cost of it all makes me want to tear my hair out. But I do feel your frustration.

[dolphingirl31]

I was also 19 when i was diagnosed with IC. I had always suspected i had endo and was dx with it when I was 24. Add IBS, Migraines started at 21, Fibro in 2009 and most recently Pelvic Congestion Syndrome(varicose veins in pelvic area and on ovaries). I FEEL your frustration, it is a place where I am at every day. I run to the restroom every 20-30min some days crying, hoping maybe someone would hear me and WANT to understand. I too LOOK "healthy" except those huge bags under my eyes and my allergy shiners that no amount of make up hides. So I will continue to pray for you and the other many suffers of this horrible disease. Feel free to e-mail me or message me. :pray:

[Cassaundra]

:grouphug:Thank you guys for replying. I just needed to vent. I have done P/T and I need to restart. I bought the book Heal Pelvic Pain. It seems great and I am going to start my P/T. I cannot afford the Phys. Therapist at 160.00 an hour. I'm glad to know it does go away, eventually.

:grouphug:

[HeatherP]

I was glad to read that pt helped you. I think I have PFD, if not some other things as well... I went to my first PT appt. today but mostly we just talked. I was too nervous to let her put the biofeedback sensor in me, tho she seemed pretty knowledgeable. And it is going to be expensive because I have pretty lame insurance right now. But I am going to keep it up and do as much as I can at home on my own.

[lonen86]

I hear you sister:cussing: I'm having one of those days .It's 3 am and can't sleep due to a cold and severe pain caused by cold medicine , It's funny I didn't think about my bladder when I took it:bonk: and now I can't take it anymore . It's nice to know that we can always come to this group and know that people here understand our pain. Thanks!!!!

[Cassaundra]

Thank you! :smile tee