help

[dusk]

hi im paula from england, has anyone heard of gabipentin( nerve blocker) or used it, my baldder is so sensitive, its worse after ive been wee, i was told that gabipentin will help me , has anyone experienced this:help:

[ICNDonna]

Gabapentin is, I believe, the generic name for Neurontin. I know there are people who post her who are on this medication. Hopefully you'll hear from some of them soon.

Donna

[maryla]

I've only used it in an instill. I did get short term relief. But my bladder is really bad, so you can't go with my history really.

Hope it helps.

hugs and blessings

[dusk]

i dont know somtimes it all seems so hopeless

[maryla]

Paula,

PLEASE never give up HOPE, Having an Optimistic Perception on an Entity greater than myself!

hugs and blessings

[Skynard]

BE VERY CAREFUL AND AWARE WITH THIS MEDICATION! I don't want to scare you, but watch for signs on this one. I almost committed suicide on this medication - between my mother and my boss, they saved my life. It is one of the "severe" reactions that one can have and I am very sensitive to meds anyway, but just be careful and make sure others are watching for changes in you. I do know lots of people that have had wonderful success with this, just make sure you are checking for drug interactions as well.

Skyn

[Mothergoose]

My son used this in high does's after he broke his elbow and had alot of never pain, I think it helpped him, he took amatriptiline with it. He had no wierd side effects. But that holds true for any new meds you should start them one at a time and see how you react to them. MG

[dusk]

im seeing the consultant friday so i wil ask him about the side effects , im at a loss at to what helps now, ive orderd cytoportek from online so hope that works , this sensitvity in my bladder is driving me nuts x

[Mothergoose]

"this sensitvity in my bladder is driving me nuts"

I hear you it is so hard to find the right combo that works for you, I think you just need to be open minded and try everything suggested and in different combos to see what is right for you, I know it is very time consumming and hard and some people have to persever with this for longer than others, but we are all so different and have different symptoms. The biggie is the diet for sure, my IC uro says in his practice 20 + years the people he sees do the best is people who really take the time to figure out what foods they can and can't eat and stick to it, they still ups and downs but ussally more ups than downs.

I at first thought the diet wasn't a problem for me, I would cut out what I thought were all the biggies and still be flaring, then I would figure out I was stilling eating something I did not realize was a trigger food for me. After long time I did find there is alot of trigger foods for me, so I went from figuring none were to most were, but I flared all the time so I could not tell that a certian food bothered me. Now if I eat something I shouldn't I can tell with in 20 mins with bladder pain but sometimes it is a day or so with increaded urgency and frequency. I hind sight I should have started by eating just a few foods which are pretty much safe for a while and then introduced new foods one at a time, I think it would have been quicker. Also over time I have learned to take new meds one at a time or you can't tell what works or not.

Getting back to meds they works so different for everyone you just don't know tell you try them. Of course you need to discuss all meds with your Dr. and use his knowledge and expirence to help guide you through this, Keep a diary, of symptoms and meds tried. But you can help your Dr. by researching options and takeing printed material with you to your app on things you would like to try. Be sure to ask when starting any new med how long you should expect for the med to work for you.

Sorry to get so long winded you were probably looking for a short answer but sometimes writting a pep talk to someone else helps you, and I have been struggling lately so I have to remind myself sometimes that it takes time.

Also so remember you can do everything right and still flare from time to time, hopefully with longer periods between.

Good luck on finding something to help you MG

[dusk]

thanks for your reply, i can relate to what u have said i seem to have had to cut out all the nice food i love its so unfair , its all bland foods now , in fact eating is so boring now i cant even be botherd to eat at times , i know thats daft, but this is getting to me now, i know i havent had this as long as you guys, spose im just on a downer at the moment , im glad i have this forum to be on thanks again paula x