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View Full Version : I think I might have Interstitial Cystitis...?



Rosara
04-24-2004, 09:52 AM
I'm a 17 year old female, and for as long as I can remember I've had problems with my bladder. I've never been diagnosed with anything, or even spoken to an M.D. about it, but I can't seem to escape the problems I have with it.

First of all, I always have to go to the bathroom. I saw a commercial last night telling me that urinating more than 8 times within 24 hours is abnormal, and I couldn't believe it because there are days were I sometimes have to go to the bathroom more and 8 times in just one hour! It interferes with every aspect of my life, including sleep- some nights I have to get up every five or ten minutes to use the bathroom- school, social activities, and pretty much everything I do. I can barely even manage to spend time with friends, because I usually wind up spending more time in the bathroom than anything else.

When I get the urge to go, it's usually extremely painful. It feels like all of the muscles in my abdomen are clenching themselves into a ball, and it always burns. Going to the bathroom is painful, too, and sometimes it's even difficult to actually go. Sometimes I have to sit there for several minutes before anything will come out, and the whole time my stomach and all of the other parts involved with urinating are in excruciating pain. And every time I have to go it's an "emergency." Having to hold it in hurts so bad that it almost makes me cry.

I drink a lot of liquids, and I used to think that was the problem, so I tried going a few days without drinking anything but a little water every few hours, but I still had to go to the bathroom just as much and it still kept me up all night.

I've tried talking to my mother about it, but she always says I'm just "nervous" or that I "drink too much caffeine." I've tried to make it clear to her that the troubles this causes me extends beyond that, but she doesn't seem very open to the idea that I might have a problem.

I don't know if I just have an overactive bladder, or if this is just the way I am. Sometimes it seems like I almost talk myself into having to go to the bathroom. In the moments that I actually don't have to, all I do is anticipate the next time I'll get the urge to go, so maybe I'm just brining it on myself.

I'm not sure how to get help for it, or how to change it, but I know that I can't live a normal life like this and that my life shouldn't have to revolve around the next time I have to go to the bathroom. I just don't know what to do. :(

liznazz
04-24-2004, 10:02 AM
Is there another adult you can talk to? Is there a guidance counselor at school that you might be able to discuss this with and perhaps they can intervene and speak to Mom about it? You may have a urinary tract infection. If you have never been to a doctor about your problem, you need to get to a gynecologist or urologist as soon as possible. Copy some information and articles about possible IC symptomsand/or urinary tract infections and present them to someone who will listen to you. You need to see a doctor. I hope this info helps. The IC network has wonderful people who can offer you support, but you must get yourself to a doctor as soon as possible. This is your first important step. Please make this a priority. My prayers are with you.

vm
04-24-2004, 10:23 AM
One of the things you could try even if you do not have IC is the IC diet. You will find some good info on that here:

http://www.ic-network.com/handbook/diet.html

It is a cost free way to see if your symptoms improve, and it won't hurt you if you don't have IC.

One of the first things my uro did was to rule out overactive bladder. They do have meds for that. Maybe you could ask your doctor about one of them. If it took care of the problem, then you would know that you most likely only have OAB.

I would get a referral to a good urologist. Ask around to see who is knowledgeable and has a good bedside manner. Then the uro can help you determine what is going on with your bladder and get you on the road to feeling better. You don't have to live like that so pursue treatment, OK? :)

Kiyoka
04-24-2004, 10:47 AM
Hey Rosara, I wanted to welcome you to the ic network. I know what it's like knowing what to do. Do you have insurance? A place like health services or something? I would have to say you really do need to talk to your doctor about it. Please email if you need any help at kiyokafett@yahoo.com. I'm currently attending college, i'm 21 I have had ic for about year. i'm here if you need anything...hugs..

kelly McC
04-24-2004, 10:53 AM
I hope you can get some answers soon the other girls offered great advice. Best wishes and we are here for you.
Kelly:grouphug: :pray:

Iris
04-24-2004, 11:02 AM
I also hope that you will get some answers and help for your bladder problems, I agree with the gals that have previously posted. Please keep us posted as to how you are doing, and if you are able to get a doc to check you, at least you would find out what is going on, and get some pain relief.Take care and hugs Iris.:hi: :grouphug: :flower:

Katrina
04-24-2004, 01:27 PM
hi :hi: :welcome: :welcome:
I am sorry you have those terrible symptoms. I would like to advise you to be agressive with your doctors that you don't only have an infection or something. At your age many docs dismiss symptoms like that....yet many of us had theese symptoms in our teens or even younger but didn't get diagnosed till our 20s. I hope things go a lot better for you. There was a lot of great advise.....definatly try the IC diet.


Please come back if we can help you anymore.

Best Wishes

Sarojini
04-24-2004, 02:12 PM
:hi: and :welcome:

I'm so sorry to hear that you are having these bladder problems... it's not easy! I think the others have given good advice... you need to see a doctor, because even if it is IC, there are treatments out there that can help!! Also, if it is a UTI, you need to get some antibiotics ASAP.

Also, like someone else said, can you talk to another adult about this?? Perhaps they can "run interference" with Mom and help her see that what you are going through is not normal!

Good luck!

VickiB
04-25-2004, 06:25 PM
Hi Rosara,

I agree with the others, you need to see a doctor! If your Mom won't help you with this, please try to find another adult who can help you. Perhaps a school nurse, teacher, or a friend's Mom you can talk to? Is there a health district office in your town? You shouldn't have to suffer with those bladder problems you're experiencing. Let us know how things turn out for you!

Vicki

ICNDonna
04-25-2004, 06:55 PM
I absolutely agree that you need to see a doctor. Your school nurse might be a good person to talk with your mother about getting some medical help for you.

And please let us know how you are doing.

Sending an encouraging hug,
Donna

dyno
04-26-2004, 01:38 AM
I wanted to add my welcome. I was around your age when I was diagnosed. My parents did help some but again were not the most supportive. The others have given you very good advice. It is really important that you get to see a Dr.
Good luck and let us know what you find out.:kiss: