Uro said "No such thing as IC"

[greense]

Hello all,

I wanted tp thank Sarojini and MelanieJean for their replies to my initial post. Thank you.

I went to the urologist yesterday and talked about my cystoscopy. I am sure I have IC. I asked him if he thought it could be IC.

He said "Definitley not" He said this with out hesitation and then said"I don't even think IC really exists"

WHAT!!! I could not believe how quickly he brushed away the idea. I politlely asked for a copy of my test results and left.

Is this a common belief among older urologists? Has this happened to anyone else?

Thanks,
An:D

[Sarojini]

Hi An,

How frustrating!!! :mad:

Unfortunately, among older uros, this can happen... for a long time, IC was thought of as some kind of "hysterical," psychological thing that women got, and not a real disease. It is only since the 1970s & 1980s, really, that it has been recognized as a real disease.

Knowledge has really increased in that time... but if your uro went to med school in the 1950s or 60s (or before) it's possible he is still holding on to those outdated, cruel beliefs.

My advice is, get your medical records and find a new uro!! There are lists of doctors on the ICN, and also the Interstitial Cystitis Association will email you lists of doctors that treat IC for up to 3 states of your choosing... go to http://www.ichelp.com
to find the link for this service.

IC is REAL... and treatable!!!!

Good luck, and P.M. me anytime you want to chat...

[Dani72]

Hi, Please find another urologist, this is a real disease, it's not in your head. Good luck and God Bless!!
Danielle

[sleepyangel30]

what kind of doctor is he, I agree with Sarojini, you do need to find another urologist.

[Just]

Yes I've experienced similar responses from 3 seperate urologist. They all said no to ic-acted as if it didn't exist, but still wanted to try every med on me, without a diagnoses. It was very frustrating! I filed a complaint against the one. His bedside manner was awful and all he was concerned about was inserting his finger in the rectum to see if i had a reflex! What that had to do with ic- I have no idea. Very inappropriateand he asked if I wanted to treat my problem. It's been over 3 years and they are finally putting ic as the culprit. Good luck and keep pressing.

justine

[Katrina]

so sorry. I don't know if you have IC..but don't work with a doc that doesn't even believe it exsists.
GRRRRRRRRR

:mad:


:pray: I hope you find the answers you need

[vm]

That uro actually did you a big favor. He let you know that he is clueless about this illness and that lets you know to run quickly to another uro. ;)

I don't know where you live, but there may be another urologist in your area who is younger or perhaps just more aware of the newer research showing that it is most certainly not in your head.

Take this as a good thing and run as quickly as you can to someone else.

Also, if he is ruling out IC (which he doesn't believe in) with JUST a cystoscopy - he really is outdated. Most people's bladders (who have IC) look completely normal with just the scope in the office. It has to be hydrodistended for the hallmark signs to appear, typically.

[kelly McC]

Just wanted to wish you luck and hope you can get some answers soon. :pray: Take care and best wishes
Kelly

[Iris]

Yes, I am with the othe gals, I would definitely find myself another urologist. Mine is wonderful, and caring, and even commented that it would be miserable to have to deal with IC every day, he is really compassionate about the illness, and does all he can to help. Hope that you can find one really soon to start helping you deal with IC and help make your life a little easier. Keep us posted as to how you are doing, hugs Iris.:hi: :grouphug: :flower:

[dyno]

I agree, time to find a new uro. :kiss:

[Dixiefireball]

I agree run from that doctor as fast as you can.:dogrun: call around and find you another doctor and make sure they deal with ic pat.
sending you hugs and prayers Rhonda:pray: :pray: :grouphug:

[ICNDonna]

I'm glad you took your test results with you when you left that office. I have to agree that you need to see a different urologist.

:loco:

Donna

[blue]

There is only one thing that I can think to say. Find a new Urologist!

[Babs RN]

I agree with the gals--get an new uro. You don't need the extra aggravation. What part of Florida are you from--my dad's urologist who did his surgery for kidney cancer also treats a ton of IC patients(let's just say remembering me from the pain-in-the-butt nurse daughter 3 years ago) explained IC to my dad. Pretty darn awesome. They live on the east coast on Merritt Island. Let me know if you need anything at all.


Hugs and a:kiss: ,
Barb

[fireflicker285]

He "must" be old, or atleast old school. Too bad he didn't experience some IC pain and frequency and then see if he says it is "all in your head".

My uro is young. I don't think he is an expert in the IC dept. BUT he is very nice and listens to me and believes my pain.

For now the relationship is working. Don't settle for a doctor like that, there are so many others.....

Remember, THEY work for YOU. It is easy to forget this.

Good Luck!:puppy:

[mayray518]

I cant believe a uro would say that now. I heard that garbage in 1992 but thought most of them had reeducated themselves. He needs to go back to a refresher course in medical school. Ask him why elmiron is on the market if there is no such thing as IC? There are many understanding uros out there now and you need to find one. They may not know all the answers but they can be compassionate and be willing to try new things to ease the pain. I saw a uro once who told me there was no such thing as IC and I refused to make my copayment after I saw him and ended up not having to pay him.

[Audrey Rose]

GRRRRRRR!! THAT MAKES ME SOOOOOO MAD!!!
If only we could give him IC for a day and see how not miserable he is!!! Not a disease??? :headbang:

Yes, I agree with everyone...Get a REAL urologist. Oh My Gosh, I am so sorry you were treated that way. I depend on my URO soooo much. He is so kind and understanding and compassionate. I don't know what I would have done without he and my PCPs constant support.

My prayers that you find an amazingly compassionate URO soon!!!

:pray:

[mayray518]

You are so right audrey. Give it to them for a year. Can you imagine, they would be unable to deal with it. But, of course, then there would be more money put into studying it and newer drugs.

[hawkbabe]

THAT IS CRAP:loco: WE ALL KNOW IC DOES EXSISIST YOU KNOW WHAT IS HELPFUL. THE INTERSTITAL CYSTITIS ASSOCIATION SENDS OUT PAPERS FULL OF DRS IN YOUR STATE THAT ARE INTERESTED IN TREATING IC PATIENTS YOU SHOULD GIVE THEM A CALL:kiss: