shelwriter
11-11-2009, 04:23 PM
Hi All -
I've been reading this board off and on for the past 1 1/2 months and you all have been in my prayers.
My story is convoluted - I'm sorry that I ramble here....
2007 or 2008 - discovered microscopic blood in urine during routine women's exam. Several tests done. Sent to urologist.
Had several tests done over the last 2 years:
CT (found cyst on liver - told it was nothing to worry about)
in-office hydrothingy - dr. said he didn't see anything
FISH test - for cancer, nothing
Pee test - then bladder sono - found I was retaining urine, dr. said I'd probably have to have a sling when I got older
Have seen urologist every 6 months and still no cause for microscopic blood found. I don't worry about, but he still insists on appts. every 6 months.
Started noticing pain during intercourse over the last year.
August 2009 - regular PAP - found cysts on cervix, test came back as inflammed.
Went back for a "wet prep" discovered yeast infection (didn't know I had one, no symptoms) and a bacterial vaginal infection. Given fluconazole and antibiotic.
A few weeks or days later, I have a huge pain in my abdomen, double over and it's gone. Later that night I'm up at least 5 times to pee. Never done that in my life. It continued on.
Back at the dr - they said I have a UTI. I've never had a UTI in my life. No pain with peeing, no burning, no itching, just like with the yeast, no symptoms. They put me on Cipro for 10 days. After 7 days I call the dr. again telling them that my side hurts (right) really badly, they schedule a uterine and ovary sono. Discover a cyst on my right ovary, but say it's "simple" and nothing to worry about.
I still hurt - regular doctor suggests I go to the ER.
I suck it up and keep going on with life. The frequent peeing stops and I think I'm ok - if only the pain would stop...
A few days later, the right side hurts to breathe, move, laugh, cough - go to the ER. They said I had a UTI and put me on Bactrim for 10 days and Darvocet. I take the Bactrim.
Call the urologist, go in to pee in a cup and they call and tell me I have no blood in my urine this time, but they found protein in my blood. I thought protein was a good thing. Found out it's not.
Back to regular doctor - they send me to Gyno. Gyno thinks it's Uro.
Went in to see urologist - peed in cup, he did exam. Found no protein this time, but the blood is back and my WBC is slightly elevated. Wants to do csyto=thingy that you guys talk about. I agree. He says could be IC/PBS with pelvic floor dysfunction. He puts me on 3-weeks worth of Sanctura (OBA meds) and gives me darvocet and prescribes vaginal vallium suppositories because I can't have sex with my husband without it hurting.
I've tried all the pain meds and vallium and refuse to take any more. I have 3 kids, a high pressure job that I love, a household to run and I can't function on these meds.
Now I take Naproxen Sodium 3x a day - sometimes. Sometimes I get mad and stop taking them. . . and then I regret it. *sigh*
The awful pain in my right side is gone now. But now I hurt all the time, in the pelvic region. My entire abdomen hurts sometimes. Sometimes it's one place - but it moves. Sometimes my left side, or my right, or the middle, or high, or low. My back aches constantly. My legs, thighs and hips ache. I've had muscle cramps in my legs and right now my right leg feels like it ran a marathon without me, the muscle is cramped up perpetually.
And the bloating - - - - I look like I'm 6 months pregnant - always. It hasn't gone away. And it's driving me mad. I finally gave in and tried on a pair of pants one size bigger than normal, but they didn't fit, because I'm not proportionally that size. I'd have to go get maternity wear!!
I am scheduled for a cysto-thingy on Friday and now I'm nervous. I'm determined that it's something stupid going on with me and they'll give me a pill and tell me I was crazy these last few months and go home.
I don't have the frequency problems. I go maybe 3 - 8 times a day. I do have some urgency issues lately, when I do have to pee - I've gotta pee. :) But that only happens a few times a day. It's not all the time.
I don't have any burning. My abdomen just feels "odd" when I pee, kind of like it releases or something.
The pain is weird, too. Sometimes it feels like hot knives are poking me, or like a stitch in my side, or a cramp or a heaviness or an ache. It varies sometimes minute to minute. I'm always in some kind of pain or major discomfort though.
My coochie aches, too. Sorry if that's too much info. . .
I'm very frustrated and don't understand what's going on. From everything I've read on the boards, some of my symptoms sound like IC/PBS - but I don't have all of them.
Sorry I've rambled on... I'm just tired and scared. Thanks for letting my share my story. I would appreciate any insight any of you experienced IC'ers have about what's going on with me.
Blessings to you all who are going through this. Much love hugs and prayers!
I've been reading this board off and on for the past 1 1/2 months and you all have been in my prayers.
My story is convoluted - I'm sorry that I ramble here....
2007 or 2008 - discovered microscopic blood in urine during routine women's exam. Several tests done. Sent to urologist.
Had several tests done over the last 2 years:
CT (found cyst on liver - told it was nothing to worry about)
in-office hydrothingy - dr. said he didn't see anything
FISH test - for cancer, nothing
Pee test - then bladder sono - found I was retaining urine, dr. said I'd probably have to have a sling when I got older
Have seen urologist every 6 months and still no cause for microscopic blood found. I don't worry about, but he still insists on appts. every 6 months.
Started noticing pain during intercourse over the last year.
August 2009 - regular PAP - found cysts on cervix, test came back as inflammed.
Went back for a "wet prep" discovered yeast infection (didn't know I had one, no symptoms) and a bacterial vaginal infection. Given fluconazole and antibiotic.
A few weeks or days later, I have a huge pain in my abdomen, double over and it's gone. Later that night I'm up at least 5 times to pee. Never done that in my life. It continued on.
Back at the dr - they said I have a UTI. I've never had a UTI in my life. No pain with peeing, no burning, no itching, just like with the yeast, no symptoms. They put me on Cipro for 10 days. After 7 days I call the dr. again telling them that my side hurts (right) really badly, they schedule a uterine and ovary sono. Discover a cyst on my right ovary, but say it's "simple" and nothing to worry about.
I still hurt - regular doctor suggests I go to the ER.
I suck it up and keep going on with life. The frequent peeing stops and I think I'm ok - if only the pain would stop...
A few days later, the right side hurts to breathe, move, laugh, cough - go to the ER. They said I had a UTI and put me on Bactrim for 10 days and Darvocet. I take the Bactrim.
Call the urologist, go in to pee in a cup and they call and tell me I have no blood in my urine this time, but they found protein in my blood. I thought protein was a good thing. Found out it's not.
Back to regular doctor - they send me to Gyno. Gyno thinks it's Uro.
Went in to see urologist - peed in cup, he did exam. Found no protein this time, but the blood is back and my WBC is slightly elevated. Wants to do csyto=thingy that you guys talk about. I agree. He says could be IC/PBS with pelvic floor dysfunction. He puts me on 3-weeks worth of Sanctura (OBA meds) and gives me darvocet and prescribes vaginal vallium suppositories because I can't have sex with my husband without it hurting.
I've tried all the pain meds and vallium and refuse to take any more. I have 3 kids, a high pressure job that I love, a household to run and I can't function on these meds.
Now I take Naproxen Sodium 3x a day - sometimes. Sometimes I get mad and stop taking them. . . and then I regret it. *sigh*
The awful pain in my right side is gone now. But now I hurt all the time, in the pelvic region. My entire abdomen hurts sometimes. Sometimes it's one place - but it moves. Sometimes my left side, or my right, or the middle, or high, or low. My back aches constantly. My legs, thighs and hips ache. I've had muscle cramps in my legs and right now my right leg feels like it ran a marathon without me, the muscle is cramped up perpetually.
And the bloating - - - - I look like I'm 6 months pregnant - always. It hasn't gone away. And it's driving me mad. I finally gave in and tried on a pair of pants one size bigger than normal, but they didn't fit, because I'm not proportionally that size. I'd have to go get maternity wear!!
I am scheduled for a cysto-thingy on Friday and now I'm nervous. I'm determined that it's something stupid going on with me and they'll give me a pill and tell me I was crazy these last few months and go home.
I don't have the frequency problems. I go maybe 3 - 8 times a day. I do have some urgency issues lately, when I do have to pee - I've gotta pee. :) But that only happens a few times a day. It's not all the time.
I don't have any burning. My abdomen just feels "odd" when I pee, kind of like it releases or something.
The pain is weird, too. Sometimes it feels like hot knives are poking me, or like a stitch in my side, or a cramp or a heaviness or an ache. It varies sometimes minute to minute. I'm always in some kind of pain or major discomfort though.
My coochie aches, too. Sorry if that's too much info. . .
I'm very frustrated and don't understand what's going on. From everything I've read on the boards, some of my symptoms sound like IC/PBS - but I don't have all of them.
Sorry I've rambled on... I'm just tired and scared. Thanks for letting my share my story. I would appreciate any insight any of you experienced IC'ers have about what's going on with me.
Blessings to you all who are going through this. Much love hugs and prayers!