Frustrated : (

[Janieh123]

I was diagonosed almost 3 yrs ago with IC. I have been thru the Hydrodistensions, I have been on Elmiron along with muscle relaxers at night just so I can get some sleep. The pelvic pain I experience drains every bit of energy I have. I cannot sit for a long period of time. I have noticed that hot water does seem to help with the discomfort. I am not using self catherization with Elmiron and numbing pain reliever about 2 or 3 times a week. I then developed a staff infection from this. I am so frustrated cause it seems like not matter what I try the pain won't go away. I may feel good for a bit and then it is right back again. The upsetting part is I try to explain my medical condition to friends, family and co-workers and I get looks like I am crazy. I am not crazy this is real. I have asked to drop down to part time at my work and they won't go along with it. They say well you look good today. The only thing is they have no clue what horrible nights I put in and that sometimes I get very little sleep. I am to the point where I can put all my energy into work and come home and not have any left for my family or I can split it half and half so I have some for both. But my employer just don't seem to understand what I am dealing with here. Even with medical notes from my doctor. I find myself more and more frustrated every day. Thank God my husband and kids are behind me. I don't think I could make it if they weren't. Any advice, opinions or help in anyway would be more then welcomed. God bless you all out there dealing with the same thing. I keep you all in my prayers daily. Oh, my 15 yr old son was diagnosed with IC on April 14, 2004. That has been a struggle too, just thankful we caught it early in life unlike mine. God bless