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Hannah13
11-08-2009, 12:33 PM
Transcribes from my journal. (My pen and paper illness shrink.)

11/6/09

They tell you not to live your live in fear of the illness, in fear of flares but IME often the people who advise you thusly are either not sick or have not had a flare themselves in a long time.

I'm hopefully coming off a VERY bad week long flare and telling me not to be afraid of a return flare is not realistic.

I just want to be something more closely approaching normal. To make plans without constantly having to account for possibly being useless in bed.

I hear that anger is not productive but I have yet to learn how to transmogrify my anger into puppies and rainbows.

Besides, anger beats depression even if they are cousins.

(I'll be sharing other dated entries here in the future to keep my head from exploding. Thank you.)

ICNDonna
11-08-2009, 01:49 PM
It took me a long, long time, but I finally learned that if I wake up in the morning feeling good, I enjoy the day and refuse to worry about tomorrow. I learned that I can't fix tomorrow, and if I spend today worrying about that, I'm wasting today.

Sending gentle hugs,
Donna

tigger_gal
11-08-2009, 02:59 PM
It is hard to deal with on a daily basis when we learn we have IC. I can tell you that you have come to the right placce for support, venting out and sharing joy in your life. Hang in there things will get better.

Hannah13
11-08-2009, 06:07 PM
It took me a long, long time, but I finally learned that if I wake up in the morning feeling good, I enjoy the day and refuse to worry about tomorrow. I learned that I can't fix tomorrow, and if I spend today worrying about that, I'm wasting today.

Sending gentle hugs,
Donna

The problem with me is I often wake up feeling fine then tank a few hours afterward.

So I just never know.

I'd give a lot to at least have a fraction of control.

Hannah13
11-08-2009, 06:08 PM
It is hard to deal with on a daily basis when we learn we have IC. I can tell you that you have come to the right placce for support, venting out and sharing joy in your life. Hang in there things will get better.


I really hope so. Thank you!

leelee88
11-08-2009, 06:27 PM
Life is hard with IC, I will not lie I am still angry with this disease. But I am learning to live with it one day at a time!! Never give up and keep trying different things..

Hannah13
11-08-2009, 07:15 PM
Life is hard with IC, I will not lie I am still angry with this disease. But I am learning to live with it one day at a time!! Never give up and keep trying different things..

I really appreciate this. It's a releif to know I'm not alone in my anger. I hope I can get to a more positive place eventually.

leelee88
11-09-2009, 03:56 AM
Mine has gotten better, but I still have my days! For me therapy has helped..It has been a long hard road but I am determined to get some peace... Many Hugs!!!