I just need a hug

[yorkyloverx3]

:cussing: I had my 2nd cysto/hydro April 6th. The ur told my husband he really did not find anything this time to be causing me to be in as much pain as I am constantly in. I don't go back to him until April 27. After the surgery I was pain free for 3 days!!!! I worked all last week in pain but took the weekend for ME. I took my pain meds and rested and had no pain all weekend. I go back to work on Monday and here I go again. I have the pelvic pain that feels like really BAD cramps. Standing and walking make it worse. I am a receptionist in a middle school. I can not just sit at my desk all day, unfortunately I am up and down all day and the more I am on my feet the more I hurt.
I have taken darvocet and hydrocodone. I called the nurse on Monday and asked could they call me in something I could take and still work. She called in ultram. I am allergic to codeine so I had the same reaction to ultram as I do with codeine. (dizzy, weak, nausea, headache) I had to miss work on Tues because I was so sick from the meds. I stayed in bed all day had NO pain. I go back to work today and I am not even at work 2 hours before I start hurting.
I really don't know what to do:confused: I can not stay out of work just to put my feet up. I did get away today and take and
1 1/2 hour lunch (only because it was Secretary day) and I stopped hurting but had to go back to the office. It is obvious that standing and walking are both making my pain worse. Everyone (that know I have IC) are wonderful. Several teachers told me today that I was white as a sheet and asked if I was ok.
So now I am sitting here in tears wondering what am I gonna do. I know stress makes it worse and I know when you are in a flare you need rest. But what do I need to do? Maybe I should ask the ur to give me a leave of absence. I really don't want to use all my sick days. I have the month of July off so I keep thinking if I could just make it until then I would get plenty of rest.
Well I am headed for the recliner. Thanks for letting me vent. I am taking my darvocet with me tomorrow.

Denise:dogrun: I wish I could run away!!

[jaime15]

[[[[DENISE ]]]]]

I wish I could just go to work for you so you could rest for a while...I hope July gets here really quick for you!:kiss:

[Sue]

Hope this helps some..........:grouphug: :grouphug: :grouphug: :grouphug:

[Iris]

Hi Denise, I am so sorry you hurt so much, I know it must be hard dealing with so much pain and being up and down all the time at work. Sending you soft hugs and prayers and hope that you will start to feel a little better, keep us posted as to how you are, Iris.:hi: :grouphug: :kiss:

[gypsyjoy]

Sweetie, I am really sorry you are hurting and I know what you are going through. I have a real hard time if I am on my feet too long.
Please try to get soome rest .

Joy
:grouphug:

[kelly McC]

So sorry your in so much pain. I know it hurts me more after being on my feet all day. Best wishes and lots of:grouphug: :grouphug:
Kelly

[arcticfox]

Denise,

I am so sorry you are hurting. Here is a arctic hug:grouphug:
Don't worry its a warm fuzzy hug! I' am a receptionist too. I work for a telecommunications company in Northern Canada. I was having a bad flare at work one day and I thought man, if I could only just rip out my bladder for a few hours! But I came home and put on my sweats, had my boyfriend give a good spooning and I tried to relax. I felt better and I am just coming out of it. It's hard I know. Hang in there girl! We are all pulling for you!

Arcticfox:grouphug:

[vm]

Awwww, big old hugs coming to you from your IC friends!!! :grouphug: :kissing:

[Morgan Stone]

(((((((((((((((((Denise))))))))))))))

So sorry for what you are going through. I have a couple of suggestions that might make it easier at work... have you tried those heat pads that you stick to you that last all day? I used them a while back when I had to be on my feet all day and they worked pretty good.. at least took the edge off.

Something else came to mind that I had forgotten until now. When my Uro was giving me the hydrocodone, we were talking about me going to a pain clinic and she had said that the hydrocodone really wasnt good for my bladder or for bladder pain. I was taking 6 lortab 10s a day before my surgery and they didnt help the bladder pain at all and I noticed a difference in the type of bladder pain I was having once I was off of the hydrocodone. Had anyone else noticed a difference in their bladder pain after stopping hydrocodone?

Im not sure how willing that your Uro is to prescribe you things for your pain, but have you asked about the Fentanyl Patch? You can use this patch for 72 hours and it doesnt make you high or drowsy and does wonders for the pain. Plus, you wouldnt be taking all those pills that damage the liver with the tylenol, etc. If your Uro isnt willing to let you try it, then ask to be sent to a pain clinic.

Big ((((((((((((((((((((((((hugs))))))))))))))) for you... I hope you feel better soon!

[dandy8]

I do hope tomorrow finds you better!
Lot's of warm hugs heading your way!!

ps, I get to hurting too after being on my feet all day.

[yorkyloverx3]

:kiss: Thanks girls for all the warm hugs. I felt everyone of them today!!:grouphug: I had a much better day. I forgot I could be taking valium as a muscle relaxer. DAH:confused:
So I took those today with using the therma pad and although I still hurt it was not near the pain I was in yesterday.
I just don't know what I would do without the support of this board.
Denise

[Dixiefireball]

sending you hugs and prayers
:pray: :pray: :grouphug: :grouphug: :grouphug:

[Babs RN]

Denise,
Have you asked the doc for a long acting pain reliever--as others have said, the Fentanyl patch or MS Contin,or Oxycontin. That way you have consistent pain relief all day. Take care of you.


Hugs,
Barb

[yorkyloverx3]

Just to answer the questions about the patch....
I asked about that before the last cysto/hydro and the ur said at this point he did not want to do the patch on me unless it was a low dosage. He said the patch was something you used when NOTHING else worked. When I go on April 27th, I think he is going to recommend physical therapy as an option or dsmo instillations. I had the elmiron instillation before the surgery and the cath was the worse part. I would leave everytime doubled up in pain and ended up with a uti. So I don't think I am willing to go there again. I have had bio feedback with therapy about a year ago. I am not sure how much it helped and it is hard for me to take the time off of work to get to the appointments (three times a week). So I am very confused :confused: as to what my next step will be. Just pray :pray: the ur and I will come to the best decision for ME.
Denise

[Sandy N.]

Just to tell you tht I am sending a great big hug and :pray: prayers your way. I understand, walking and standing bother me too...hang in there and know that you have many people who care about you. Sandy

[Katrina]

First off, ((((((((big hug))))))))))))). Also...have you tried sitting on a pillow? Many people say they help and there is one they call the IC pillow that is sold http://www.ic-network.com/shop/ in the icn shop. I find sitting on a pillow helpful....and I take one wherever I go...looks odd to others I bet but I don't care.

Best Wishes

[Morgan Stone]

((((Denise))))

If you Uro is willing to let you try the patch on the lowest dosage, please try it. Sandy is singing its praises right now because it has helped her and I know it can help you without interfering with your daily life. When I went to my first pain doctor appt, that was what he tried first. He said that alot of IC patients had success with it instead of using pills which can cause negative long-term effects to your body - mainly because it delivers the same amount of meds over a 72 hour period. The lowest dosage will not make you feel "high" or "drunk" and should control your pain.

Wishing you the best of luck on your appt.. please keep us posted hun!

[MakinIT]

wow...you got a uro to agree to some pain relief...geeez. And yes, the pillow is awesome, I use it constantly. Feel stupid walking around with it, but...hey...I could care less at this point.

I don't know how you are managing to work. I'm done. Been off work for a year although I'm hoping to go back to work in the next year, after I update my teaching cert. so I can work doing some consulting.


I sure hope the pain continues to go down...sending you a hug and smile:) for a better day.

Tracey

[Kimberly31]

Hang in there! Not sure what else to say,,,,,,,

:kiss: Kim

[hawkbabe]

IM SORRY FOR YOU TERRIBLE PAIN!!:grouphug: :angel: :grouphug: :angel: