PDA

View Full Version : opinions pleeeze!!



emnmel8386
04-21-2004, 04:35 AM
Hello all, I just happened upon this site after reading an article on chronic pelvic pain and ICC at my gyno's office. It seems everyone is pretty up front and honest here, so I plan on doing the same when I share my situation with you all.

My problems began last summer after I took a bath in calgon (which I hadn't done in probably over 10 years) the next day i had burning beyond belief and eventually was bleeding out of the urethera once the stream ended (i used a mirror) I went to the dr and he put me on cipro which helped clear it up (the pain was unbelievable!!) However I have not been "right" ever since. I always feel a dull annoying pain in my left groin area - sometimes radiates to my left buttock, I have constant pain "down there" - my urethra opening especially and it actually is painful in the clitoral area (can i say that here?) I have been down the gyno route (just recently had a d&c for irregular periods last month) and sonograms and paps are all normal...

but as i mentioned before, I saw this magazine at the gyno office with a cover story on Chronic Pelvic Pain and ICC - after reading the article I immediately made an appt for a Urologist - I saw him two weeks ago - I gave a urine sample and he did say there was traces of blood in it - that same day I had a sono of my kidneys and another urine test to determine something about cells and cancer detection (??can anyone elaborate on that?) I have not heard back from him so i am assuming they were ok - I am scheduled to have a cystoscopy this monday which hopefully will give me some explanation for this ANNOYING pain I live with every day.. And the next day after sex?? PALEEZE!! I can't stand it anymore!! I've also never been one to drink alot of water and my urine stream is narrow - i feel relief beyond description when I take that over the counter medicine ( forget the name but i'm sure you all know what it is - the stuff that turns urine brownish/yellow) so I'm thinking to myself that maybe perhaps that bleeding that occurred back in the very beginning of my problems never fully healed and gets irritated every time i urinate? Although would that explain the dull ache in my lower abdomen/groin area? I'm actually very nervous because my father has 4 brothers, he and 2 of them have had prostate cancer, and another had bladder cancer (all have survived thank God) so the wheels in my head are spinning with thoughts along those lines (is there a correlation?) I am an otherwise healthy 39 year old that never had any problems prior to this.

I thank anyone who cares to comment on my post. oh, and one more thing, should I expect pain after this procedure and what should i request of my dr with regards to a prescription for it?

Pam

Dixiefireball
04-21-2004, 05:30 AM
hello and welcome to the icn. i'm sorry you are going threw so much but we are here for you and we do understand.:kissing: i'm not sure if you have ic or not only the test your fixing to go for can tell you for sure but you do have some of the sign's of ic.
I so understand the pain after sex also.
some ways you can help your self from being is pain is to try the ic diet you can find it on the homepage of the icn. make your own diary but it will give you a good idea what to look out for. a heating pad works great also but some people like ice. before sex i pee after sex i pee and shower. I always have traces of blood in my urine. so that is another sign of ic also. and right before my mthly and the week of my mthly i'm in so much pain its unbearable. :headbang:
remember we are here for you and we do care please keep us updated on how you are.
sending you hugs and prayers
Rhonda:welcome:

liznazz
04-21-2004, 06:24 AM
I'm sorry you are having these symptoms. Some do sound like IC symptoms. I just want to comment on one of your symptoms--the narrow "stream" when urinating. Years ago I had this same problem (before I even had IC) and the urologist performed a surgical procedure called "urethrotomy" where an incision is made to "open" the urethra and produce a larger stream of urine. This did help me a lot. When he does the cysto, he will be able to determine not only if you have IC but if you have a narrowing of the urethra like I did. I wish you all the best of luck. Liz

vm
04-21-2004, 06:31 AM
I am glad you have seen a urologist. It could be IC, but it really could be something else. I am pretty sure I have heard Donna say that recovery rates for bladder cancer are really high. But I am NOT saying I think you have that - b/c I don't, OK? Hopefully after your cystoscopy, you will have more information to think about in terms of diagnosis and treatment.

On the urine test and cancer cells. My doctor did that, too. I don't really know the logistics of it, but I did have that done and it came back fine. :)

Please keep us posted, OK?

SharonA
04-21-2004, 07:30 AM
Hello, Pam and :welcome: Glad you found us.

I hope that you do not have IC but, if you do, you have found a good place where people are very caring and supportive.

You are on the right road to finding out what is causing your symptoms. Don't let your imagination run wild. Stay calm and let your doctor determine what is going on inside you.

You might have some pain with the procedure. It is perfectly alright to ask for some kind of pain meds to take after.

I hope the best for you. Let us know the outcome. :)

ICchell
04-25-2004, 12:24 PM
Hello pam:hi: and:welcome:
Good luck on your cysto...

kelly McC
04-25-2004, 01:38 PM
:hi: Pam and big:welcome: ,
Best of Luck with the Cysto . I am glad you found us and hope you'll let us now how your doing. Best wishes,
Kelly

jeanniebug
04-25-2004, 04:17 PM
Hi! :hi: I understand the pain after sex, and your symptoms do sound along the lines of ic. I have had horrible vaginal pain at times. Since I've been diagnosed and trying different treatments, I am getting some relief from that. I know you will feel much better after you get some test results back. I just wanted to tell you, some people do report mild increase in pain after the cystoscopy. I have a tiny urethra, and during the procedure it was stretched by the scope. I felt alot of relief in my pain for about a week after the cystoscopy. Some people actually feel better for a few days, something to do with the stretching of the bladder. Like you, I had all these crazy symptoms for a long time. I just sort of happened on some info on ic, and a lightbulb went off in my head. I thought, I wonder it that's what I have?? I had never even heard of ic before, didn't even know people could get ulcers in their bladders. And I've had alot of weird stuff, in regards to female problems. I hope you will find healing information soon. I hope all goes well for you. :pray: Take care-

ICNDonna
04-25-2004, 04:30 PM
I am also glad you are pursuing a diagnosis by seeing a urologist. If the cysto you have scheduled is being done in the doctor's office, it will not totally rule out IC, but can rule out other things. I had one when I was being diagnosed.

Hopefully you will have a diagnosis soon.

Warm welcoming hugs,
Donna

Audrey Rose
04-25-2004, 04:50 PM
Big hugs Pam!!
I am sorry you have gone through so much!! I am so glad that you are being worked up by a urologist. There definitely needs to be more data before a diagnosis can be confirmed. I hope you get some answers soon so you can start getting proper treatment!!
You will have some pain with your procedure and your urethra may get pretty sore from the tube they insert. You can ask for a prescription pain med. Also a heating pad or disposable heating patches on the abdomen helps for abdomenal pain. When my urethra is really inflammed, ice is my best friend!! And neosporin with lidocaine (or some other numbing med). A warm bath with nothing but water, can be soothing also. Wear loose clothes and cotton underwear. None at night if you can. If you are diagnosed with IC, you will need to read the stuff on ICN for diet. It may make a huge difference. But let us know what the verdict is and we will try to help you.

Keep us posted!! Good luck!!
:pray:

sing_to_you
04-27-2004, 02:32 AM
This is the site to be at these people are wonderful. I joined with them yesterday. I have IC. and They are a great suport group.:hi:
sing_to_you