GloriaP
04-20-2004, 01:38 PM
I have been on Elmiron for 16 months and I am in another bad flare. I went for my regular appointment to the uro today and he is running out of ideas. I am taking elmiron, ditropan, pain med's, sleeping med's & now he is putting me on a mild anti depressant. I am supposed to try these for 2 months and see if it will cut down the number of bathroom trips. I have a demanding full time job with lots of meetings and car travel and have to keep excusing myself to take bathroom breaks. I wish I could tear my bladder right out of my insides.
On top of the pain of the flare I have two ageing parents and my Mom took sick last week and was taken to hospital. They put her on anti-biotics for a lung infection (she has had a chronic history of lung problems). She is home from the hospital but she sounds terrible. My folks live about 2 1/2 hours away and I feel like I should go out there this weekend but I am in such pain myself that I don't think I can do it. My flare's don't last just a couple of days.......more like a couple of weeks.
My husband (we have been married for almost 30 years) went to the Dr.'s with me today. He has tried to be supportive in his own special way but I think is getting extremely frustrated with this whole business. He was very quiet all the way home. The uro suggested that if these anti-depressants don't work then he will try me on bladder instillations in July. My husband said I take enough pills now and should have chose the bladder installations immediately instead of trying the additional med's first. He says I should just put the pain out of my head! I would love to know how to do that!!! I know he is frustrated because our lives have changed so much since I have developed this illness. It is difficult to travel which we both enjoy doing, because I need to be close to a bathroom all the time. For the last 5 months our intimate life is almost nil because of my everlasting pelvic pain I do not want anything near that area. It feels like I do not have very many good days at all. I am so discouraged and angry right now.
Oh yeah and the tip of the icing on the cake! At the Dr.'s office today the examing table had the disposable paper with symptoms of IC written all over it. The paper stated that this Dr. was participating in a study for IC. What is that all about I have had this for almost 4 years and nobody knew what the heck was the matter with me, now they are posting the information on disposable paper?????????
I know this message sounds really negative but I really needed to get this off of my chest. I feel like I can't complain to anyone in my family anymore because everyone is frustrated with hearing me and nothing much is helping. I am so sick and tired of taking all this medication that doesn't help much.
Please remember my mother in your prayers. She is a very special person and participates alot in her church and community. I would be very sad if I lost her.
On top of the pain of the flare I have two ageing parents and my Mom took sick last week and was taken to hospital. They put her on anti-biotics for a lung infection (she has had a chronic history of lung problems). She is home from the hospital but she sounds terrible. My folks live about 2 1/2 hours away and I feel like I should go out there this weekend but I am in such pain myself that I don't think I can do it. My flare's don't last just a couple of days.......more like a couple of weeks.
My husband (we have been married for almost 30 years) went to the Dr.'s with me today. He has tried to be supportive in his own special way but I think is getting extremely frustrated with this whole business. He was very quiet all the way home. The uro suggested that if these anti-depressants don't work then he will try me on bladder instillations in July. My husband said I take enough pills now and should have chose the bladder installations immediately instead of trying the additional med's first. He says I should just put the pain out of my head! I would love to know how to do that!!! I know he is frustrated because our lives have changed so much since I have developed this illness. It is difficult to travel which we both enjoy doing, because I need to be close to a bathroom all the time. For the last 5 months our intimate life is almost nil because of my everlasting pelvic pain I do not want anything near that area. It feels like I do not have very many good days at all. I am so discouraged and angry right now.
Oh yeah and the tip of the icing on the cake! At the Dr.'s office today the examing table had the disposable paper with symptoms of IC written all over it. The paper stated that this Dr. was participating in a study for IC. What is that all about I have had this for almost 4 years and nobody knew what the heck was the matter with me, now they are posting the information on disposable paper?????????
I know this message sounds really negative but I really needed to get this off of my chest. I feel like I can't complain to anyone in my family anymore because everyone is frustrated with hearing me and nothing much is helping. I am so sick and tired of taking all this medication that doesn't help much.
Please remember my mother in your prayers. She is a very special person and participates alot in her church and community. I would be very sad if I lost her.