junebug800
09-21-2009, 05:34 AM
Hi All,
I used Ditropan XL as part of my therapy when I was first diagnosed in 2003 (along with elmiron and elavil). Later I had used it on and off when I seemed to have the occasional bladder spasm and it worked well. In late 2008 my IC got bad again. I had not been taking Ditropan or Elmiron at that point so my new doc put me on Elmiron 4 x a day and nothing else. I was desperate so I added on one dose of Ditropan XL and a couple of Prosed per day. I started to have trouble urinating so after some reading I dropped the Ditropan and chalked it up to having mixed it with the Prosed. The prosed seemed to work better but gave me horrible diarreah so eventually i dropped that too. I started to feel better about 3-4 months later and had just been on the Elmiron. I recently had another decline that began late August 2009. I went back to the doctor and he gave me an instill which didn't do anything but he did not add any meds. I told him I had some urethra pain (possibly inflammation) and he did not make a single comment (and he's supposedly an "expert" on the subject) The urethra pain went away eventually but I was still feeling pretty desperate about all the frequency (the urgency is fairly mild-just back of your mind constant feeling like you have to go) so once again I took Ditropan for two days and started to feel some difficulty urinating again. I dropped it but now I'm wondering is it just in my head? How could it be when it worked for me before? I had once asked my current doc about taking it since it had worked for me before and he poo pooed me and said that sometimes it makes things worse anyway. I'm frustrated with him for not being proactive with me and trying other treatments but that's another thread altogether. Am I nuts about the Ditropan? Can it start having negative effects that soon when it takes several weeks to help?
I used Ditropan XL as part of my therapy when I was first diagnosed in 2003 (along with elmiron and elavil). Later I had used it on and off when I seemed to have the occasional bladder spasm and it worked well. In late 2008 my IC got bad again. I had not been taking Ditropan or Elmiron at that point so my new doc put me on Elmiron 4 x a day and nothing else. I was desperate so I added on one dose of Ditropan XL and a couple of Prosed per day. I started to have trouble urinating so after some reading I dropped the Ditropan and chalked it up to having mixed it with the Prosed. The prosed seemed to work better but gave me horrible diarreah so eventually i dropped that too. I started to feel better about 3-4 months later and had just been on the Elmiron. I recently had another decline that began late August 2009. I went back to the doctor and he gave me an instill which didn't do anything but he did not add any meds. I told him I had some urethra pain (possibly inflammation) and he did not make a single comment (and he's supposedly an "expert" on the subject) The urethra pain went away eventually but I was still feeling pretty desperate about all the frequency (the urgency is fairly mild-just back of your mind constant feeling like you have to go) so once again I took Ditropan for two days and started to feel some difficulty urinating again. I dropped it but now I'm wondering is it just in my head? How could it be when it worked for me before? I had once asked my current doc about taking it since it had worked for me before and he poo pooed me and said that sometimes it makes things worse anyway. I'm frustrated with him for not being proactive with me and trying other treatments but that's another thread altogether. Am I nuts about the Ditropan? Can it start having negative effects that soon when it takes several weeks to help?