ulsmws
09-10-2009, 03:49 AM
Hi,
I have just discovered this forum and am anxious to dig in and read the past threads to learn all I can. I believe I have PNE, although I have not been officially diagnosed with it. It started 9 months ago while I was sitting w/ my dad in the hospital. He had a stroke & survived 9 days...I sat with him during this time. I started developing pain while sitting. It left like someone was cutting my left labia off, but they never finish the job. Here I am, 9 months later and the pain is worse than ever. I have it within 10 minutes of sitting down. And yes, I have a desk job. I cry every day & I am sure my co-workers think I am nuts. I have the same pain in the same place every single time I sit. By the time I get off work, I am in so much pain, it takes all evening, laying with an ice pack, to get it calmed down enough so I can sleep. (If I am lucky).
I have been to my primary dr. who thought it was Vulvodynia but agreed it coud be very well be PNE. My OBGYN told me nothing was wrong with me and that she couldn't treat me b/c my pain is on the outside of my body. Went to an advanced OB GYN in Orlando, who told me I didn't have V or PNE, but some kind of back or hip injury. So I had a full set of MRI's, X-ray's, Sonagrams and bloodwork galore. Guess what? I have no hip or back injury. They could find nothing wrong. But the pain continues. My neurologist just wants to hand out meds. He is exaspirated with me b/c nothing works and told me to go find a pain management doctor..that he couldn't help me anymore. Accupuncture didn't work. Am currently seeing a chiropractor and am probably throwing my money away but I am desperate to some relief, as I have had NONE. I am going to my 3rd OBGYN today to see if she could help me or refer me to someone who can.
I have also seen the list of doctors who work with PNE...a handful across the country and none anywhere near FLorida. I also understand that you need to have 3 nerve blocks before you go. Does anyone know of any drs in the Tampa area who give pudendal nerve blocks? I have no idea where to start or what kind of doctor does this? NOne of my doctors seem to know anyone. Thanks, Michelle
I have just discovered this forum and am anxious to dig in and read the past threads to learn all I can. I believe I have PNE, although I have not been officially diagnosed with it. It started 9 months ago while I was sitting w/ my dad in the hospital. He had a stroke & survived 9 days...I sat with him during this time. I started developing pain while sitting. It left like someone was cutting my left labia off, but they never finish the job. Here I am, 9 months later and the pain is worse than ever. I have it within 10 minutes of sitting down. And yes, I have a desk job. I cry every day & I am sure my co-workers think I am nuts. I have the same pain in the same place every single time I sit. By the time I get off work, I am in so much pain, it takes all evening, laying with an ice pack, to get it calmed down enough so I can sleep. (If I am lucky).
I have been to my primary dr. who thought it was Vulvodynia but agreed it coud be very well be PNE. My OBGYN told me nothing was wrong with me and that she couldn't treat me b/c my pain is on the outside of my body. Went to an advanced OB GYN in Orlando, who told me I didn't have V or PNE, but some kind of back or hip injury. So I had a full set of MRI's, X-ray's, Sonagrams and bloodwork galore. Guess what? I have no hip or back injury. They could find nothing wrong. But the pain continues. My neurologist just wants to hand out meds. He is exaspirated with me b/c nothing works and told me to go find a pain management doctor..that he couldn't help me anymore. Accupuncture didn't work. Am currently seeing a chiropractor and am probably throwing my money away but I am desperate to some relief, as I have had NONE. I am going to my 3rd OBGYN today to see if she could help me or refer me to someone who can.
I have also seen the list of doctors who work with PNE...a handful across the country and none anywhere near FLorida. I also understand that you need to have 3 nerve blocks before you go. Does anyone know of any drs in the Tampa area who give pudendal nerve blocks? I have no idea where to start or what kind of doctor does this? NOne of my doctors seem to know anyone. Thanks, Michelle