Evita
08-18-2009, 08:56 PM
(A note from ICNDonna: Neither the ICN, nor any other organization in the world, has recommended books by this author. They are one patient’s opinion – not backed by research. We recommend, “The Interstitial Cystitis Survival Guide,” by Dr. Robert Moldwin as a more reliable option.
My apologies, but, for legal reasons, we must add this to any message posted on our boards which discusses books by this author.)
I have a lot of problems with IC that greatly affect my life. I have a long drawn out story just like a lot of others I'm sure, but I just read 'Along the Healing Path' and it said IC is sometimes paired with other illness one being Lupus. Is IC thought to be an auto-immune disease? I had a total breakdown with my dad and I was explaining how annoying doctors are and how I can't find a good one and some think it isn't real or it's an auto-immune disease and some don't. He seemed a bit freaked out like we need to get you tested for Lupis because of our family history. I know 95 percent of people with it are women and it's herditary and happens usually in Hispanic, Asian, and Native Americans. I'm hispanic and Native American. Both my dad's sisters died from it. My sister was diagnosed with it and it's in remission I think? I'm not sure. I'm not very close with her. Also my dad has the male version of it which is much less serious so obviously it runs in my family. I have a doctor's appointment Friday, but I don't know I guess I'm a little scared. To tell you the truth I'd almost be relieved in a way because I have so many ailments with my IC not related to the bladder that are common of peope with IC in the book I mentioned earlier and I just want to get on the road to recovery, but no luck with Uro specialists at UCLA. The doctors not knowing anything and making me run around to different specialists there got old so I gave up on them. Also I'd say I did about 16 or so bladder installments on myself. Those didn't help at all. All I do now is what I did before I was diagnosed which is take Uristat as needed for pain which is every 8hrs on the dot pretty much. I'm on the bladder diet, but it seems my pain has gotten worse since the diet maybe because my body is detoxifying like it gets worse before it gets better ya know so does it sound like there might be a chance I have lupis or am I crazy and freaked out? I never thought about the possibllity until today. Also I hate how doctors try to make people feel like hypochondriacs like just because they're too dumb to figure it out our symptoms must be psychosomatic or something.
My apologies, but, for legal reasons, we must add this to any message posted on our boards which discusses books by this author.)
I have a lot of problems with IC that greatly affect my life. I have a long drawn out story just like a lot of others I'm sure, but I just read 'Along the Healing Path' and it said IC is sometimes paired with other illness one being Lupus. Is IC thought to be an auto-immune disease? I had a total breakdown with my dad and I was explaining how annoying doctors are and how I can't find a good one and some think it isn't real or it's an auto-immune disease and some don't. He seemed a bit freaked out like we need to get you tested for Lupis because of our family history. I know 95 percent of people with it are women and it's herditary and happens usually in Hispanic, Asian, and Native Americans. I'm hispanic and Native American. Both my dad's sisters died from it. My sister was diagnosed with it and it's in remission I think? I'm not sure. I'm not very close with her. Also my dad has the male version of it which is much less serious so obviously it runs in my family. I have a doctor's appointment Friday, but I don't know I guess I'm a little scared. To tell you the truth I'd almost be relieved in a way because I have so many ailments with my IC not related to the bladder that are common of peope with IC in the book I mentioned earlier and I just want to get on the road to recovery, but no luck with Uro specialists at UCLA. The doctors not knowing anything and making me run around to different specialists there got old so I gave up on them. Also I'd say I did about 16 or so bladder installments on myself. Those didn't help at all. All I do now is what I did before I was diagnosed which is take Uristat as needed for pain which is every 8hrs on the dot pretty much. I'm on the bladder diet, but it seems my pain has gotten worse since the diet maybe because my body is detoxifying like it gets worse before it gets better ya know so does it sound like there might be a chance I have lupis or am I crazy and freaked out? I never thought about the possibllity until today. Also I hate how doctors try to make people feel like hypochondriacs like just because they're too dumb to figure it out our symptoms must be psychosomatic or something.