View Full Version : Interstim questions
04-15-2004, 09:33 AM
Hi guys!! I have a couple of questions about interstims. Does anyone else have problems with their toes curling from the interstim. My big toe and the one next to it on my left foot do that. When I turn the unit off it quits. I asked the nurse today when I had a reprogramming done if she could get it to stop and she told me she has never seen anyone else's do that. Also is it okay to have an pelvic ultrasound done when you have a interstim? Thanks for the help. I have had my stim since 2001:thumbsup:
04-15-2004, 11:04 AM
My toes don't curl, but I definitely get more Charlie horses now.
My big toe curled but I could tolerate it because it was working. Then, the toe next to it started curling and the device quit working. I was unable to be re-programed properly. I worked with the rep from Medtronics for an hour and a half and he couldn't get me started again. After being dumped by that dr and finding a dr to do the revision I had no luck at all:( I finally gave up and had it removed. I couldn't stand the thought of some foreign object being in my body that didn't work:hmm:
04-17-2004, 10:50 AM
I don't think having a response in your foot is unusual (lots of folks feel some sort of sensation or a bit of numbness). But, my Dr. is very cautious about that issue generally and especially about any curling of the toes, twitching, etc.
I've heard that some people do ok when they experience a some of these side-effects (and deal with it because they are getting good results and because nothing else negative seems to come of it)--but, some people really do not do ok.
For me (and this is just based on my experiences with my particular Dr. , etc), unless there was some miscommunication, I'm really wondering about the fact that your nurse doesn't seem to be familiar with the idea that this happens at all. Even if you're the first person she's run across with this particular side-effect, I hope that she knows enough about the device to know that this occurs (and that she might want to least keep on eye on things because this is sometimes not a good thing). Of course, I'm not in the medical field, I'm just going on what I've read and heard from other folks.
I hope that this helps a little and that some other folks weigth in with what they know about this.
Best wishes, little bear
04-18-2004, 03:07 AM
My toes curled on my left foot before my leads were repalced...
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