krs72
08-06-2009, 06:44 AM
Hi everyone -
So this is my first post. I was diagnosed with IC in May of 2009 following cysto. with hydro. I have gone for DMSO therapy and am taking a low dosage of Elavil and am also using the IC diet and learning what works for me. My bladder pain is under control for the most part. The worst symptom for me has been the pain/hypersensitivity in the clitoris. In fact, this is what sent me to the doctors back in January. I was tested for everything under the sun until I finally found a urologist who was willing to perform the cystoscopy.
I found this forum yesterday and have been reading and reading!!! (I have had two sessions of pelvic floor therapy so far and am scheduled for more.) Anyway, after reading about the pudendal nerve I called my urogyn. this morning. He wants me to continue with the pelvic floor therapy, but said if it does not help that I should have a Kenalog injection. Has anyone tried these? If so, what was your experience? I did some research online and am not thrilled with the possible side effects. They said they have not seen much luck with Lyrica or Cymbalta.
I have tried acupuncture but am just too needle to withstand the treatments. I am also following all the advice about vulvodynia (lower oxalates, white underwear, etc.) These have helped the other regions in the vulva that were bothering me, but not with my main complaint.
I am so glad to have found this forum! I wish no one else were suffering with this but I know I'm not alone and there is hope. -Karen
So this is my first post. I was diagnosed with IC in May of 2009 following cysto. with hydro. I have gone for DMSO therapy and am taking a low dosage of Elavil and am also using the IC diet and learning what works for me. My bladder pain is under control for the most part. The worst symptom for me has been the pain/hypersensitivity in the clitoris. In fact, this is what sent me to the doctors back in January. I was tested for everything under the sun until I finally found a urologist who was willing to perform the cystoscopy.
I found this forum yesterday and have been reading and reading!!! (I have had two sessions of pelvic floor therapy so far and am scheduled for more.) Anyway, after reading about the pudendal nerve I called my urogyn. this morning. He wants me to continue with the pelvic floor therapy, but said if it does not help that I should have a Kenalog injection. Has anyone tried these? If so, what was your experience? I did some research online and am not thrilled with the possible side effects. They said they have not seen much luck with Lyrica or Cymbalta.
I have tried acupuncture but am just too needle to withstand the treatments. I am also following all the advice about vulvodynia (lower oxalates, white underwear, etc.) These have helped the other regions in the vulva that were bothering me, but not with my main complaint.
I am so glad to have found this forum! I wish no one else were suffering with this but I know I'm not alone and there is hope. -Karen