Just Venting

[readingmom]

I used to come on here quite often, but I learned how to control my symptoms for the most part several years ago. I always find myself back here when I am having a bad flare up. It's so wonderful to have to place to come to when you need the support of others who understand what you are going through. I find myself sitting here being depressed because I have so much to do and can't do it because I am hurting so bad. My husband is so sweet to me, but he really can't understand what it feels like. I hate this disease soo much. I would love to go back in time and remember what it was like to not be sick. Even though I can control my IC, I still always have an uncomfortable sensation. I think I have just gotten used to it. It's only when I'm really bad that it affects my mood so drastically. And to make matters worse, I don't really have a doctor to treat my IC right now. The doctor who diagnosed me I quit going to because he wanted me to only do things his way. He wouldn't listen to my thoughts and concerns over some of the meds I was taking, so I just quit going to him. Then, my primary doc, who has IC also, quit doing the instillations in her office, so I can't go to her for that anymore. I'm just not comfortable doing them at home. I'm just rambling on now, but I just needed to vent. Thanks to everyone who keeps things running around here. I don't know what I would do without the IC network.

[SharonA]

I am so sorry that your symptoms have increased. I hope you are able to find a doctor who will be able to help you.

(((Hugs)))...

[Briza]

(((hugs)))
I am sorry you're not feeling well...please try to take comfort that you have been able to control your symptoms in the past and hopefully this will pass soon.
I hear ya tho, I too am presently without a dr to prescribe the meds I have taken with much success over the past years.:( It is really stressful, huh? I was stressing about it big time and well, esp stressful since I have been unsuccessful so far in my attempts to find a dr to take over the treatment plan that has worked so well for me for a long time now!!!ughhh but as we all know stressing does nothing more than increase chance of symptoms, so I have decided not to stress about it for a while...and so have decided to take a break from my dr search for the time being as that has been nothing but stressful/unsuccesful so far. Thankfully right now I am not experiencing any major bladder symptoms, and am able to control most all of my symptoms by avoiding stress as much as possible as well as my food triggers...so I have put stressful new dr visits on the back burner for now!
Well, sweetie, I hope you are able to keep stress to a minimum at this time, while you are without a dr, and hopefully avoiding your food triggers will help you, too. Keep us posted on how you are doing and if/when you are able to find a dr to take over your treatment! Hope to hear that things are going better for you very soon! Take care...

[leelee88]

Sorry you are flaring.. Hopefully it will all pass soon..