Sacral nerve block today 4/14/04

[Julie Smith]

Dear Friends,

Went well, hoping I continue to feel good. Will see dr. next week and then 2 more nerve blocks every other week. Thanks for all your prayers and good wishes,

Julie:love: :thumbsup:

[Sarojini]

Good news... I'm so glad it went well!! I hope the nerve blocks continue to make you feel better.... :) :grouphug:

Keep us posted!!

Jen

[ICchell]

Im glad that it went well for you.Glad you are finally getting some relief!!



Jen,
I keep trying to
pm you ,i sent you a long pm then it says the users mailbox is too full,the user has to clen out the messages...this was happening to me last night.On the user contrl panel,it says that i have 14 messages ,then i check it and cant find them:confused:

[Sarojini]

Michelle,

Ok... um, I will try to delete some old messages... my box IS pretty full because I haven't erased a single thing in months out of laziness :)

Thanks for letting me know :)

Jen

[blue]

Julie, tell me about this nerve block. How does it work?

[Kimberly31]

Hi Julie,

I just wanted to send you a reply to your post. I have had a set of three (Caudal) blocks aka. Sacrial Nerve Blocks. I truly believe that they have helped me deal with the chronic pain of IC. I unfortunately suffer terribly with UTI's but since the blocks it seems that I can control the pain better.
I wish you all the best going through these blocks.
If you dont mind me just adding one thing as far as advice.
One of the most important things after a block is too really try to stay down for at least the rest of that day and maybe the next if you can. The reason for this is to really allow the medicine they inject to work and do its job.
Feel free to email me or pm me anytime.
Please keep us up to date with every block you have done and how you feel. I know that posts like this can be very very helpful to many IC'ers that are looking for pain mgmt help!
Take Care and God Bless:angel:
Kim

[Julie Smith]

Hi Guys!

I wish I could tell you something positive, but unfortunately that is not the case. That's why I've stayed away from the board, too painful to sit and don't want to discourage anyone newbies or be a drag.

My pain level seemed to decrese daily, then starting increasing more and don't dare drive with the meds. Something new is waking up every 1 hr. to pee which I only use to do 1-2 total.evening. So now I wake up 5-6x night. Needless to say, I'm very upset. I did speak to pain dr. fri. and will see him tues. and another block wed. He said not to increase meds. as already high, which it is.

I was so encouraged and excited to have block as I thought for sure I'd feel better. Back to square 1, the worst it's been.

Thanks for your inquiries. Love and prayers to you all,

Julie:pray: :angel:

[blue]

I'm sorry, I wish it would have worked out for you.

[Julie Smith]

Despite more pain daily I refuse to give up. I see pain dr. tomorrow and think another sacral nerve block on wed., 4/47/04.

Ill get the scoop from the dr. ,
thanks for your prayers and prayers to all of you.
Julie:love: :pray: :angel:

[Julie Smith]

wish I could talk more but tooo uncomfortable.

love and prayers to you all,
Julie:kiss:


:pray: :angel:

[MakinIT]

AAAGhhhh...Julie, I'm sooo sorry. I'm going to have the nueromodulation surgery soon. They called today to tell my insurance ok'ed it, but doc just wants to schedule it himself because it's a two step thing.

If it is any comfort, the sacral nerve block for me didn't work out too terrific, as I thinnk I told you. Of course, I was fighting it everystep of the way, and, although it helped my pain for a day, I was back to pain after that. (He told me that would be the way it was, but he and I decided the every other week regimen would be too traumatic for me....Wah..I'm such a baby)

I sure hope you feel better soon. Here's one for the pain doc::toosh: Mine will get to see mine again soon, as well. I just plan to be well medicated ahead of time.

Tracey

[Dianne]

What drugs were injected on these blocks? I found that steroids inflame me terribly because they will pass through the urine for quite some time. When I have a spinal/epidural/intrathecal with marcaine only, I have a 3 day remission. Only I can't get that every 3 days. I was reading where some of you benefited and some didn't and I'm wondering if it's contingent on what you had injected. Anxious to know as I'm thinking about this again.

[Julie Smith]

Diane,

Ihad what you said, 1 treatment, 2nd treatment next week and 3rd end of month. Yes, cortisone has blown me up and my appetiete is huge. My pain decreased a few day after first, then increased ALOT. Pain worst than ever since. saw dr. today and we discusused more options, too tired to talk now. I'll pray I feel better for good after 3rd treatment.

So sorry too exhausted to talk to you all. Tried driving today and almost wrecked so called friend who picked me up and took me to dr. Dr. said NO driving, ever since I'm on heavy duty drugs.

This life sucks, really depressed.

Love you all, thanks for your notes,
Julie:pray: :angel:

[sleepyangel30]

iam so happy for you, i hope you stay pain free.

[MakinIT]

Julie hon:

Don't let it get you down that you can't drive. I've gone through my depression too with what I feel like is a loss of independence. It really does suck when you have to call and ask people to drive you places..it won't be too long before your body adjusts to the drugs and you can start "testing" yourself by going short, short trips...(like the local 7-11 or blockbuster) . You can see how that goes then try a little further. There will be days, however, when the drugs overwhelm you and you know it would be a REEEEEAL bad idea to get behind the wheel. I was that way yesterday and was supposed to take my daughter to downtown Portland for her weekly eye exercises. Ihad to call my husband and tell him that I was either going to cancel the appointment or he'd have to do it. He got irritated but doesn't want me to drive, especially with the kids, when I'mthat way. (He coould tell cause my voice was slurry)

I'm scared because I've been so clear headed the last couple of weeks, comparitively, and my migraines have restarted. I've had to give myself two imitrix injections this week alone. I will prob have to be put BACK on Topamax, to which my IQ drops about 15 points for every 25 mgs they give me. I AM SO SICK OF MEDICINES AND DOCTORS! I told my psych that today. I told him I wanted to flush all my meds and go cold turkey. He said , and I quote, "REAL BAD IDEA". He knew I was half kidding but there sure are times and today was one of them, especially after going through the visualizations of my nuerostim procedure. (Hell, we only made it to 1-5 in my mind before I got too freaked out and couldn't do anymore!! So lovely to have such an active imagination.)

Take it one day at a time, Julie. I really do understand what you are going through with this. It is an indignity beyond the physical realm to have to lose your independence...but remember, it is only temporary. At least you probably aren't stuck at home with your retired father in law watching "Rawhide" "Bonaza" and "The big Valley" day after day. Oh yeah..."gunsmoke" too. I try to change it too something slightly higher on the IQ scale but as soon as get up to pee, he changes it back. (And he has a damn TV in his room!!!!) He is also losing his eyesight (age related and diabetes) so he makes messes that are worse than my kids. So, I pick up after him and he gets bent out of shape. But, if the mess (generally food) gets left, we get ants. (And he can't figure out why I don't let him drive me to my appointments anymore, I get a friend)

So..as you feel sorry for yourself, remember: I'm watching Bonanza. That should bring a smile to your face!!!!:dizzy: :bonk: :woohoo:

Take care: Tracey