Kara29
07-22-2009, 06:14 PM
Symptom that seem to be improving due to PNE Decomp and those that have not improved yet:
more sitting time
Pain Meds Working Better
Car Rides are not as bad as before
Orgasm pain does not last 3 days, now it's 2 instead (still hoping for even better results in this department)
No reduction in urgency just yet but I still have hope
Bowel Movements are still as treacherous as before
After mid cycle ovulation still hurts
Still only get about 5 good days a months
I'm on week 11 and have notices some very small improvements with respect to being able to sit longer. I'm still taking my pain meds so the pain doesn't get ahead of me. I have some heavier stuff for the bad days. Surgically, I am all healed but it takes the nerve to regenerate and heal, 2 more years. All I can do is hope for more improvements. It hasn't helped my urgency symptom which is the same life altering symptom that I've been complaining for over 10 years. They try with pain meds, nerve meds, surgery, and ice but some days nothing works. One the good days, I run with them and try to do as much as possible and be thankful for that one day. One the bad days, I just curl up into my bed with my pain meds, muscle relaxers, nerve meds, and my ice packs and pray that the pain will reduce enough to a 7 as opposed to a 10. At that point I can read and watch TV. I take it one hour at a time on my bad days and pray for the next hour to be better. I try................I'm trying to be OK with not being a Mom and just be happy for the wonderful Husband that I do have and the job that he loves that takes care of my health insurance and medications. He never complains about much. I take care of my plants, pets, myself, and him when he needs me. Most of the time, I spend in bed with the DVR and my favorite recorded shows and if I can get the pain down to a 7 or 6, then I read and dose all day. I am thankful for being able to do that. Money is tight for us but we are making it. I do the bills. I wish I didn't have to think about them but my Hubby can't do them properly and then it ends up costing us more money in the end.
As far as our future, we've decided to see if we can get a transfer over to what I call the secret garden area of our property. I don't care if it takes 10 years, I want to live my life by the pond, the water spring, the gardens, extra trees and the water fall. If I'm not going to have Children, then it's worth it to us to move over to that area. Apartment living is the best for us because it's so low to maintain. Neither one of us is handy and if something breaks they give us a brand new one. We are also going to move into one only if they renovate it first. This could take years but at least it's something for me to look forward to. There's a swing back there that I go to often but I won't even need to leave my own apartment to see it all. I just have to go out onto my balcony and enjoy the sights and sounds.
I'll try to post a photo of the pond area or my secret garden area. The waterfall and creek is to the right of the pond with bike trials all over and gazebos where you can take a lounge chair and go into one and read. There are other ponds as well but this one is more private and secluded. We'll also get TONS of wildlife back there, which we both LOVE.
We've already been first up on the next available upstairs 2 bedroom by the secret gardens, ponds, and waterfalls............
I will try to post some photos of my dream apartment to live around:
http://i142.photobucket.com/albums/r115/Karalynnree/th_IMG_0316.jpg (http://s142.photobucket.com/albums/r115/Karalynnree/?action=view¤t=IMG_0316.jpg)
http://i142.photobucket.com/albums/r115/Karalynnree/th_Night.jpg (http://s142.photobucket.com/albums/r115/Karalynnree/?action=view¤t=Night.jpg)
http://i142.photobucket.com/albums/r115/Karalynnree/th_IMG_1292-1.jpg (http://s142.photobucket.com/albums/r115/Karalynnree/?action=view¤t=IMG_1292-1.jpg)
http://i142.photobucket.com/albums/r115/Karalynnree/th_IMG_1164.jpg (http://s142.photobucket.com/albums/r115/Karalynnree/?action=view¤t=IMG_1164.jpg)
http://i142.photobucket.com/albums/r115/Karalynnree/th_June112007.jpg (http://s142.photobucket.com/albums/r115/Karalynnree/?action=view¤t=June112007.jpg)
http://i142.photobucket.com/albums/r115/Karalynnree/th_WaterLily.jpg (http://s142.photobucket.com/albums/r115/Karalynnree/?action=view¤t=WaterLily.jpg)
http://i142.photobucket.com/albums/r115/Karalynnree/th_Westbrook1.jpg (http://s142.photobucket.com/albums/r115/Karalynnree/?action=view¤t=Westbrook1.jpg)
http://i142.photobucket.com/albums/r115/Karalynnree/th_Gooser.jpg (http://s142.photobucket.com/albums/r115/Karalynnree/?action=view¤t=Gooser.jpg)
http://i142.photobucket.com/albums/r115/Karalynnree/th_Fish2.jpg (http://s142.photobucket.com/albums/r115/Karalynnree/?action=view¤t=Fish2.jpg)
Here's to better and brighter days ahead! I'll focus on the present but have hope for a better future after 10 years of fighting the battle and finding some good doctors over the past 4 years.
Thanks for your love and continued support!
Love and Hugs,
Kara:smile tee
more sitting time
Pain Meds Working Better
Car Rides are not as bad as before
Orgasm pain does not last 3 days, now it's 2 instead (still hoping for even better results in this department)
No reduction in urgency just yet but I still have hope
Bowel Movements are still as treacherous as before
After mid cycle ovulation still hurts
Still only get about 5 good days a months
I'm on week 11 and have notices some very small improvements with respect to being able to sit longer. I'm still taking my pain meds so the pain doesn't get ahead of me. I have some heavier stuff for the bad days. Surgically, I am all healed but it takes the nerve to regenerate and heal, 2 more years. All I can do is hope for more improvements. It hasn't helped my urgency symptom which is the same life altering symptom that I've been complaining for over 10 years. They try with pain meds, nerve meds, surgery, and ice but some days nothing works. One the good days, I run with them and try to do as much as possible and be thankful for that one day. One the bad days, I just curl up into my bed with my pain meds, muscle relaxers, nerve meds, and my ice packs and pray that the pain will reduce enough to a 7 as opposed to a 10. At that point I can read and watch TV. I take it one hour at a time on my bad days and pray for the next hour to be better. I try................I'm trying to be OK with not being a Mom and just be happy for the wonderful Husband that I do have and the job that he loves that takes care of my health insurance and medications. He never complains about much. I take care of my plants, pets, myself, and him when he needs me. Most of the time, I spend in bed with the DVR and my favorite recorded shows and if I can get the pain down to a 7 or 6, then I read and dose all day. I am thankful for being able to do that. Money is tight for us but we are making it. I do the bills. I wish I didn't have to think about them but my Hubby can't do them properly and then it ends up costing us more money in the end.
As far as our future, we've decided to see if we can get a transfer over to what I call the secret garden area of our property. I don't care if it takes 10 years, I want to live my life by the pond, the water spring, the gardens, extra trees and the water fall. If I'm not going to have Children, then it's worth it to us to move over to that area. Apartment living is the best for us because it's so low to maintain. Neither one of us is handy and if something breaks they give us a brand new one. We are also going to move into one only if they renovate it first. This could take years but at least it's something for me to look forward to. There's a swing back there that I go to often but I won't even need to leave my own apartment to see it all. I just have to go out onto my balcony and enjoy the sights and sounds.
I'll try to post a photo of the pond area or my secret garden area. The waterfall and creek is to the right of the pond with bike trials all over and gazebos where you can take a lounge chair and go into one and read. There are other ponds as well but this one is more private and secluded. We'll also get TONS of wildlife back there, which we both LOVE.
We've already been first up on the next available upstairs 2 bedroom by the secret gardens, ponds, and waterfalls............
I will try to post some photos of my dream apartment to live around:
http://i142.photobucket.com/albums/r115/Karalynnree/th_IMG_0316.jpg (http://s142.photobucket.com/albums/r115/Karalynnree/?action=view¤t=IMG_0316.jpg)
http://i142.photobucket.com/albums/r115/Karalynnree/th_Night.jpg (http://s142.photobucket.com/albums/r115/Karalynnree/?action=view¤t=Night.jpg)
http://i142.photobucket.com/albums/r115/Karalynnree/th_IMG_1292-1.jpg (http://s142.photobucket.com/albums/r115/Karalynnree/?action=view¤t=IMG_1292-1.jpg)
http://i142.photobucket.com/albums/r115/Karalynnree/th_IMG_1164.jpg (http://s142.photobucket.com/albums/r115/Karalynnree/?action=view¤t=IMG_1164.jpg)
http://i142.photobucket.com/albums/r115/Karalynnree/th_June112007.jpg (http://s142.photobucket.com/albums/r115/Karalynnree/?action=view¤t=June112007.jpg)
http://i142.photobucket.com/albums/r115/Karalynnree/th_WaterLily.jpg (http://s142.photobucket.com/albums/r115/Karalynnree/?action=view¤t=WaterLily.jpg)
http://i142.photobucket.com/albums/r115/Karalynnree/th_Westbrook1.jpg (http://s142.photobucket.com/albums/r115/Karalynnree/?action=view¤t=Westbrook1.jpg)
http://i142.photobucket.com/albums/r115/Karalynnree/th_Gooser.jpg (http://s142.photobucket.com/albums/r115/Karalynnree/?action=view¤t=Gooser.jpg)
http://i142.photobucket.com/albums/r115/Karalynnree/th_Fish2.jpg (http://s142.photobucket.com/albums/r115/Karalynnree/?action=view¤t=Fish2.jpg)
Here's to better and brighter days ahead! I'll focus on the present but have hope for a better future after 10 years of fighting the battle and finding some good doctors over the past 4 years.
Thanks for your love and continued support!
Love and Hugs,
Kara:smile tee