Charisse
07-16-2009, 06:21 PM
When was this forum created? I've been absent for months since being pregnant and having my daughter in October. I am just now deciding that it's time to find a new dr. to treat my IC so I'm doing some research here to get myself educated. My Uro-Gyn passed away last year the same day I gave birth to my daughter. So I'm seeing Dr. Payne in Sept. In reading the PNE website it appears I have MANY of the symptoms. But I know I have IC as well because I am in severe pain without Elmiron and my Hydrodistention showed bleeding in my bladder as well as severe inflammation in my urethra. That is the thing my dr. said my urethra was way worse than my bladder which makes sense since that's where my pain started. It feels like a lump in my urethra and a twisting, stabbing, pinching feeling. I've never had burning except after catheters. Also my major intolerance to lower body and ab exercise has always been different from most other ICers. I have fibromyalgia (another suspected nerve problem).. it kind of just all makes sense to me unless it's just PFD. I am going to keep researching this and certainly will bring it up with Dr. Payne. I just want to thank you Kara for providing this info to us!