OllieR
07-08-2009, 12:31 PM
Like almost everyone with a painful chronic disease I can often butt heads with others who don't have IC about what it's like, and arguments ensue. Sometimes I get angry with others who try to help me because honestly I know I am the only person who knows what is best for me, and many times I cannot get what I think is best due to stubborn doctors, parents, etc. Patience is not one of my virtues so it can be difficult!
But I was thinking the other night about some moments that have come about during my onset of IC where I have gotten to see qualities in my friends and families that I never would have seen, and seen some good qualities in myself too! Like my friends who badger me about not being around, not because they're mad but because they tell me how much they miss me. Or the fact that my parents check on me after I go to sleep when I've had a bad day or taken a new medicine :rolleyes: I love that this disease has helped me stand up for myself better - when I was first diagnosed I couldn't even talk to the doctor I was so mad and confused! Now I just say what I consider my rights and make sure the things I need to happen do happen and compromise by choosing my battles with the doctor I don't get along with personally. He does the same. I do hope my IC gets better soon (of course!!), but in reality I feel like I still have a lot of motivation left in me and I think if I've still gotten as much done as I have with IC I really can't imagine what can happen when I feel better!
For half a day today I felt thankful I had IC because in the end it's bringing a better person out of me (weird huh? God is mysterious). Eh, now I'm in pain tonight so I'm not sure I'm still thankful hehe :bonk: I wrote a background on my IC the other day about how I haven't gotten any better, so I thought I would write a note here saying life can be good too!
But I was thinking the other night about some moments that have come about during my onset of IC where I have gotten to see qualities in my friends and families that I never would have seen, and seen some good qualities in myself too! Like my friends who badger me about not being around, not because they're mad but because they tell me how much they miss me. Or the fact that my parents check on me after I go to sleep when I've had a bad day or taken a new medicine :rolleyes: I love that this disease has helped me stand up for myself better - when I was first diagnosed I couldn't even talk to the doctor I was so mad and confused! Now I just say what I consider my rights and make sure the things I need to happen do happen and compromise by choosing my battles with the doctor I don't get along with personally. He does the same. I do hope my IC gets better soon (of course!!), but in reality I feel like I still have a lot of motivation left in me and I think if I've still gotten as much done as I have with IC I really can't imagine what can happen when I feel better!
For half a day today I felt thankful I had IC because in the end it's bringing a better person out of me (weird huh? God is mysterious). Eh, now I'm in pain tonight so I'm not sure I'm still thankful hehe :bonk: I wrote a background on my IC the other day about how I haven't gotten any better, so I thought I would write a note here saying life can be good too!