PDA

View Full Version : New here..


StayySayy
06-21-2009, 02:55 PM
Hello everyone,

My name is Stacey and I am 18 years old. I don't even know where to start so I guess I will start with where it all began..

After my period about 5 or 6 months ago I thought I had a UTI.. I knew what they felt like from having them when I was younger so I called my doctor and asked him to call me in some medication seeing that I was away at the time. My doctor called in the medication for me and it all seemed to go away in a matter of 4 or 5 days. My next period came along and WAM again I thought I had another UTI.. seeing that I was away yet again I bought one of those home testing kits so my doctor didn't think I was crazy and it came up positive.. so he gave me more medication but this time it just wouldn't go away. I called my doctor back and asked him what was wrong with me and he told me he would put me on medication for a Yeast infection so I took that and the pain went away again. This happened one more time before I was sent to a urologist. I was told I have IC about 2 or 3 months go by the urologist but he didn't do anything but do an ultra-sound to see if my bladder was empty, told me to follow the diet and call him if I wasn't feeling better. He made me feel so uncomfortable so I went back to my doctor and asked him if it was possible I had IC.. he told me he would send me to another urologist. I went to my dad's urologist and he was a lot nicer and carrying. He put me on a long dosage of antibiotics to make sure I didn't have a deep infection before jumping right into thinking I have IC. The medication wasn't working so I called him back crying the day I got my period again because the pain was worse than ever... he called in prydium for me and it worked wonders! I went in the next day and he told me I needed to get my urethra and bladder stretched... (I wasn't surprised about my urethra because bother my grandma and aunt had to as well when they were younger) When he went in he found that my urethra was very narrow and when he stretched my bladder it bled which I was told was a sign of IC. I am now on the IC diet.. well if you want to call it that and I have been feeling pretty good... I am not sure what I'm doing to make myself feel good but I am.

I am so confused and scared.. I have been reading posts on here I figured I should just join in..

I'm sorry my post is so long! I hope to get to know most of you and I hope I am some help in the future as to you all have been to me.

God bless!
Stacey

mlzippy7
06-21-2009, 05:06 PM
Hello and :welcome:! I know it can all be so overwhelming but you have found a great place with a ton of information to help you along the journey!
Feel free to ask any questions! We are all here to support one another!
Best of luck to you!!

icinak
06-21-2009, 05:44 PM
Hey! Welcome, welcome.

I think many of us probably had a TON of misdiagnoisis so don't feel like you are alone. I hope someday they streamline the process of diagnosis.

It is perfectly normal to be scared and freaked out. This is a pretty wacked out disease. But I have total faith that they will find a cure someday.

Glad you're here! I'm new too and I find logging on here and chatting with folks really helps me feel less alone.

leelee88
06-21-2009, 06:50 PM
Hello and :welcome: To the ICN!!

I am sorry for you diagnoses but remember knowledge is power.. And now that you know what you have, you can start managing it..The IC diet is a good start.. Also if you think you are worse around the time of your periods, you might want to talk to your GYN about putting you on a continuous birth control pill. I know that has helped my flares a lot around that time of month..

Also when you get a chance, check the Patient Handbook out there is a lot of helpful info in there. You can find the link at the bottom of my signature.
But always remember you are not in this alone.. If you need anything please do not hesitate to ask..

StayySayy
06-22-2009, 06:46 AM
I don't know how I can thank you all enough! This site has helped me so much and I am glad I finally got the nerve to join and start posting.. I have so many question but they seem to get answered by google searching them and google leads me right back here to different posts or the main page! It's so great knowing I have people who know how I feel (even though I wish none of us had this!) and am able to talk to all of you!

Thank you so much!
Stacey

SharonA
06-22-2009, 06:58 AM
:welcome: to the IC Network...:)

StayySayy
06-22-2009, 07:25 AM
Thank you Sharon! :)

rgreen
06-22-2009, 07:38 AM
:welcome::welcome:
I'm sorry for your diagnosis, but at least you are in the right spot for support! I have found the people on this board are absolutely wonderful and so helpful, they can be excellent supporters to get you through "those tough times" and I know right now especially must be tough for you. Hang in there and I am glad you joined the group!!!

BT2008
06-22-2009, 06:49 PM
Hey Stacey:hi:

I'm so sorry to hear that you have this dastardly disease, but you are NOT ALONE!

:welcome:to the ICN: there is no better place to be when you have IC. It truly is a life-saver!

Hugs,
~Beth

ICNDonna
06-23-2009, 02:59 AM
:welcome: to the IC Network family. I'm sorry you have interstitial cystitis, but glad you found us.

Sending warm healing thoughts your way,
Donna

monie218
06-24-2009, 07:17 AM
:welcome:I'm new as well, but as everyone keeps telling me "WE R ALL IN THIS TOGETHER".