YankeeCandle224
04-12-2004, 10:07 AM
I wrote about this on another post but thought it was pertinent here. If you do a google search and type in "Letter to Normals" you will come up with a bunch of different type of letters that people with fibro, cfs, ibs, chronic pain, chronis illnesses, etc, that have been written to send to family, lay around the house for family to read, etc. They say SO much that WE want to say or have tried to say but when we are dismissed its quite disheartening and this can be a way to help family to understand a bit more about whats going on with our bodies.
I printed one out the other day, but tore it up because I just didnt feel it would do much good.
My husband right now is worried about me taking pain meds. Well its not the pain meds that make me tired or loopy, its the fatigue, the pain, the EXHAUSTION that has come from me overdoing EVERYTHING around here including doing all the legwork to find us a home to buy. Its like if I'm doing ok one day, but sick as a dog the next they dont understand, at all.
I'm frustrated, because though my husband tries to understand, its hard for him to get it when he comes home from work late at night and I'm asleep in bed, SITTING UP, or if I fall asleep eating dinner, or am just too darn tired to walk up the steps to get to bed and sleep on my comfy sofa.
I am right there with you all when you're at a loss as to how to explain to your family what is going on. My husband is worried, has tried to understand, but he doesnt totally understand. Last night my son came up and woke me up cause my door was open and my night time meds were all over the bed, not taken, and he said that maybe i ought to try laying down to sleep.....it was humiliating!
Anyway, i strayed, look up that letter, see if you can adjust it to suit your needs, and give it a try.......its better than nothing!
Love, Sandy
I printed one out the other day, but tore it up because I just didnt feel it would do much good.
My husband right now is worried about me taking pain meds. Well its not the pain meds that make me tired or loopy, its the fatigue, the pain, the EXHAUSTION that has come from me overdoing EVERYTHING around here including doing all the legwork to find us a home to buy. Its like if I'm doing ok one day, but sick as a dog the next they dont understand, at all.
I'm frustrated, because though my husband tries to understand, its hard for him to get it when he comes home from work late at night and I'm asleep in bed, SITTING UP, or if I fall asleep eating dinner, or am just too darn tired to walk up the steps to get to bed and sleep on my comfy sofa.
I am right there with you all when you're at a loss as to how to explain to your family what is going on. My husband is worried, has tried to understand, but he doesnt totally understand. Last night my son came up and woke me up cause my door was open and my night time meds were all over the bed, not taken, and he said that maybe i ought to try laying down to sleep.....it was humiliating!
Anyway, i strayed, look up that letter, see if you can adjust it to suit your needs, and give it a try.......its better than nothing!
Love, Sandy