I feel so lost!

[malone]

Hi guys,
I am in the middle of the worst flare and I have NO idea why. I just spent 4 months getting off all my meds after about 7 straight years of percocet, oxycontin and methadone to get me off of the others. We found 3 different types of toxic mold in our house during our current renovation so when we moved out of the house I felt great! It was truly an amazing feeling! I have been off all meds for about 2 weeks when suddenly Fri. night the pain started. I tried some of my home remedies but after calling my doctor he said to take 2 percocets every 4 hrs. until I got the pain under control. I was so happy because after the second dose the pain was gone and I even got some sleep! This afternoon it began again so severely I could only be on my hands and knees in a tub of hot water. I took the percocet again and while it has really helped I am so scared I will become habituated (not addicted!) and I do not think I could go through that again! This has been such a long battle and I just feel so alone and tired. I do not care how bad the pain gets (if?) tomorrow I will howl at the moon before I take anything. I have battled this devastating disease for over 15 years now and I really thought I was in remission. I have gone over in my head a million times what I did wrong to cause this flare---I am not back in the house yet either. I am so sad and lost right now. I am sorry for just sort of dumping on you guys because I know it is tough for all of us. I am sitting here just crying partly out of frustration and partly out of pain. Thanks for listening and as always you all will be in my thoughts and prayers, Malone

[kelly McC]

:grouphug: :grouphug: ,
I hope things get better. I am so sorry hope you can get some relief soon.:pray: best wishes

[Dixiefireball]

Hon dont worry about dumping anything on us that is what friends are for to support each other.
I do care very much for you and everyone else here. Let it all out we do understand.
:grouphug:
I'm sending you lots of prayers and many many hugs for a better day.
if you need me or would like to talk even vent if you like please email me or pm me anytime i will get to you as soon as i trun the computer on.
:pray: :grouphug:

:love:

[franya]

Hi There Malone,

It is not your fault you are in a flare so stop blaming yourself. If you need pain med and do not want something strong try to work on the IC meds urised and motrin and stay in the tub if you want I love my tub I feel guilty about the amount of time I spend there I know that is one thing I am addicted to MY TUB with no bath oil or anything that might irritate it. Take care and think or you guilt belongs in the 60's

Franya

[ICNDonna]

My suggestion would have to be to call your uro. It might be that something like an antispasmodic would really help you get through this flare. Or you might have infection.

Sending warm healing thoughts,
Donna

[ICchell]

Hope you are feeling better!
:grouphug: michelle

[blue]

I'm so sorry you feel lost! This group is amazing. I haven't been here long, but I don't know what I would do without them. Don't feel bad about coming here to vent!

[charlesinselmer]

my husband is an ic sufferer and there is no way he could go even on two percocetts, you shouldn't feel guilty and suffer because your affraid you will become addicted! you have an ailiiament that requires you to use some type of pain control and probly for the rest of your life! please don't sit there and suffer if you have addctive tendencies then by all means find someone you trust and have them moderate your dosing, use the minimum amount to at least get to a level 5 or so..I am an adict in recovery myself and that is my delimea I would NEVER ask my husband to give up his pain control, he sufferes way to much! but I am on a quest to see if ther is somthing out there that isn't as bad on you as opiats...if anyone has any suggestions let me know
charlesnselmer