have others had emotional mood swings

[jane2]

My name is jane and I was recentely dx about 6 weeks ago, officially. My reg doctor thought is was IC before I saw the Uro. I'm currently on Elmiron (4 weeks) and Urelle I just started about a week ago which has helped me a great deal with the spasms. I am doing DMSO treatments ( had 4 already), thay are painful. But in some ways working at least with night urination. But I still have pain every day, and sometimes feel like my bladder is falling out of me. Which it isn't of course since it is tried to by abdominal wall since my hsytorectomy a good 14 yr ago. And of course I have heard it takes time to heal, time to get well, if this doesn't work we will try something else, etc. How long do you go until you know it isn't working? Doctor said up to a year on Elmiron and 6 treatments with DMSO.

I made a big mistake this morning and asked my dear hubby how this was affecting him. He was honest as I was. I'm a emotional wreck. I don't think I have had such emotional swings since I was a teenager just starting my period. LOL Being 62 that has been a long time ago. I have always prided myself on not being so emotional. But now...I never know how I will feel! I'm finding out more things that trigger me especially riding in cars. This actually flares me more than having sex. Guess God is smiling on me a bit. LOL

People here have been great and again remind me that this takes time. I know this has been the long way around asking "if others starting out with IC had the "mood swings" as my hubby calls them. He is trying to be supportive sometimes it just comes out the wrong way. I told him that I think both of our emotions are right up at the top and we each can take something the wrong way. He certianly isn't the kind of guy who is going to let me cry on his shoulders. He doesn't want me to vent, & is tired of hearing about it. Guess that is why their are support groups.

Thanks for reading my post, and listening. I do not want to go on anti depressents as the last one I was on years ago when first dx with Fibro made me more depressed. So I am leary of them.

Blessing and I know the sun is shining,
jane2

[Preacher-Girl]

Hi Jane,

It's just a bad IC day I think. I am having an awful IC day too. I will call tomorrow and we will take turns complaining and whining and commiserating and venting and .......

I think an IC treat and a good movie with our favorite IC comfort things are in order. Just put your feet up tonight and trust God. He will work it all out and you can always cry on His shoulder.

Love,

Angela

PS Maybe you are especially moody because you are expecting?:biglaugh: C'mon. You know it was funny - so now you are crying AND laughing!

[Mrs. Peel]

Hi, Jane. Sorry to hear about your diagnosis, but glad you're getting thorough treatment.

I think the mood swings are most probably from going through the stages of grief. I was diagnosed early this month and I'm still having phases. It's really a normal thing, emotionally. You might be finding it hard to think straight, too. That's also part of it.

For crying out loud, you've just been handed an incurable disease that will change so many aspects of your life. You have a free pass for as much drama as you need to express. It's like losing a loved one. You'll know when the time comes that you're ready to suck it up.

Hugs to you and your husband.

[waterflow]

I have awful mood swings. You would think I was having my monthly time more then once a month. Keep thinking about the episode of Everybody loves Raymond where Raymond tries to tell Debra she has PMS WHILE she is having PMS> I can watch that episode over and over again and it still cracks me up because I know how she feels and him both. There are times while I am fine and I have a sudden feeling of sadness and just feel like crying for no reason. I tried the anit pills to. Some helped in a way but didn't really in the end. Half because I got fat which makes me depressed and I just don't want a life of being druged out you know? I want my own mind. Even if it is a mess. Guess I don't have to worry about leaving it to science now do I?

[kadi]

I think the sleep disturbances that go with IC make me more emotional for sure. And the stress that goes with it too. And if I'm flaring, particularly if it's a more than one day flare, yeah, I cry & am pretty difficult to be around, so I generally withdraw from people then. I used to talk about my IC a lot (some people were not happy about that at all!), now not so much & more selectively... I think with time, it gets easier.

[BT2008]

I have been on an emotional roller-coaster since I was first hit with IC pain almost a year ago.

My and my hubby's life totally revolves around whatever my pain level is for the moment, and my response to that provides the momentum for my emotional roller-coaster.

I definitely agree with Kadi, however, that sleep deprivation from the nocturnia is also a major factor in the stability (or lack thereof) of my emotional state.

Having severe IC is truly a 24/7 struggle, and my emotional roller-coaster is directly attributable to many different things:

Pain
Anger
Frustration
Worry
Disappointment
Pain
Sleep Deprivation
Medications
Not being able to make love with my husband
Not being able to sleep with him on a regular basis
Pain
Diminished Self-Confidence
Feeling "less" than the woman I once was
Being a financial liability and not being able to work
Pain
Boredom of being home-bound
Lack of Exercise
Dietary Restrictions
Oh, and did I mention pain?

I could think of more, I'm sure, but I will stop now...

I try very hard not to feel sorry for myself, so in place of that other emotions run amok most all of the time. I hope you know, Jane, that you are certainly NOT alone -- at all!!

:grouphug:
~Beth

[Trishann]

Hi Jane, :hi:

I love the way Beth wrote down what is causing her emotional turmoil. Sometimes you can pinpoint what is going on and get help with it. :help:

I know I was getting emotional turmoil from sleep deprivation. My doctor RX some sleeping pill which in return helped me.

Also recently I was getting upset because my husband was talking about fishing. I know that I can't sit in a boat for hours without feeling miserable and I can't go and enjoy being with him. I just told him yesterday I wish I could go with you but I would be miserable. My husband came up with a great plan and said, "we can fish on the bank, and bring a lunch, and you can get up and walk around when you need too. What a wonderful way to deal with a situation!

Sometimes you will just have bad days and have to learn not let yourself get to upset over it and rest, knowing you will have good days. You are not alone and I hope by coming here that you will feel better.

Trish :cat:

[jenjen05]

Ditto what Beth (BT2008) said.

[waterflow]

I agree too with how Beth listed the roller coaster ride we are on.

Trishann, What a wonderful husband! Andy Griffth show popped into my head along with Mayberry and how they would fish off the bank with a picnic lunch. Hope you have fun. Just don't let the "big one" pull you in.

[ICNDonna]

What you are feeling is normal for someone who has just been told they have interstitial cystitis. It's a life-shaking experience. It can take a while to accept. Have you started the IC diet yet? If not, I think today would be a good day to begin. That single step can help a lot.

The IC bombshell was dropped on me 34 years ago and I still remember how rough those first months were. But I did get past them --- and once I discovered which foods and drinks are a problem for me and which treatments work, I began to feel better. Hang in there. You will have better days.

Sending a hug from another "Senior Citizen"
Donna

[maryla]

Yes, It is an emotional roller coaster for me still. I was told that the pain from IC is visereal(sp) pain directly related to our emotions. So......go figure! And yes, I think as time goes by for a while it is that way. And it seems just when I think I'm through the grief process something else will crop up!

But I think having a great support system helps. However, a lot of us here have lost a lot of old friends due to IC. But, we do have each other here :woohoo: with people who understand exactly how horrible a day can be or what a good day can do to our spirits.

Hugs and blessings,