View Full Version : I need help please!
atkinsonfmaily
04-09-2004, 02:56 AM
I am 10 weeks pregnant and last night had a horrible IC flare. I was so scared, which surely makes it worse, but the pressure was awful. The worst thing is that my IC has been in a good remission since after the birth of my last child, 22 months ago. I cannot say that there has been no pain, but it has been very moderate...come and go within a day type pain. More of an annoyance than anything. I had to use my microwave heat pack last night and I don't even remember the last time I broke out that thing. I tried to keep it more on my urethral area so that it wouldn't affect the baby, I am not sure exactly of the uterus's placement right now. It did help enough to calm me down and go to sleep, but I am scared that next time the pain won't go away or that the heat will stop helping. I don't know what meds, if any, I can take. On top of the pain I am vomiting up to 4 x's a day, have lost 10 lbs and am exhausted. That alone makes it hard to manage on a day to day basis and now add IC pain to the list. My doctor knows that I have IC. My last pregnancy went off without a hitch. I just keep hoping that it is because of the uterus expanding and that when it moves out of the pelvic area my bladder will be relieved, but until then, what to do? I feel scared that I am not going to make it through this pregnancy. I don't know what to do.
Do you have an appointment with your doctor soon? I would ask what meds you can safely take to help relieve your pain. I know most OB/GYNS are OK with Tylenol, but that can vary, too.
I am glad what you tried last night worked. You'll probably have to try to take it one day at a time --- just make it through each day and try not to worry about the coming days. Way easier said than done, huh? :kissing:
But do find out what you are allowed to take. Knowing you can do something may help a little bit. I always feel worse if I feel like there is nothing I can do.
Take care,
Dixiefireball
04-09-2004, 05:30 AM
welcome to the icn i'm sorry you are going threw all this i agree you need to talk to your doctor i did the same thing with my daughter but at the time i didnt have or should i say didnt know about ic. i lost 22 pds by six mths. and gained some of it back up not all she was a eighth mth baby and weighed 6pd 11 oz.
if you dont have an appt please call your ob/gyn for an appt.
all preg's is diff.:(
sending you hugs and prayers
Rhonda
ICchell
04-09-2004, 06:07 PM
:grouphug: :grouphug: Im sorry that you are in so much pain!!I felt awful during my pregnancies but to have iC on top of that :yikes: !!
Please call your DR.
Michelle
lizob
04-13-2004, 03:35 PM
I've also had a bad flare since becoming pregnant. I'm 18 weeks now and have had to begin Ditorpan and atarax again. My urologist now has me doing instillations of Elmiron. Go see your urologist to explore your options.
atkinsonfmaily
04-14-2004, 02:59 AM
Can I ask...are the meds you are taking helping? also am I correct in assuming that the elmiron instillations are directly into your bladder? I didn't know that they did that. Do you have to be under anesthesia (sp?) for them? Do they help right away or as with the oral med does it take several weeks/months for relief? What are you main symptoms? Thanks alot!
Melly
04-14-2004, 02:17 PM
Hi,
I understand and can completely empathize. I am pregnant with my second child, and had a horrible flare last night (was up the entire night). I used to get anxious with them which worsened the symtoms and created a vicious cycle. With my last pregnancy, I had flares well into my second trimester. I remember having thougths that I was not going to be able to carry the baby full term. Then in the final 12 weeks, I went into remission. I was a renewed person, and thought if I just could remain pregnant, I would so that I would never have to experience another flare. Ellen was born 12 weeks later and the flares resumed within 3 weeks. I became very depressed, bordering on suicidal. After 10 months of breastfeeding (breastfeeding helped lessen the severity), I finally started meds (Elmiron) and that helped immensely. Now I am off the meds and back in flare mode, but I know this is finite. I don't if this pregnancy will be like the last -- I really hope it will be. Each flare is finite (sometimes I have felt that they are endless), but they do end. Hang in there. I know it is hard to. Enlist the help and support of friends and family. See the doctor about what you can take. Sometimes it is so empowering to just take something (Prelief, tynenol), to realize that you're taking control in some way. Credit yourself for getting through each day, knowing that you're the home to a precious, wonderful miracle. And know that the thoughts and prayers of many IC patients are with you.
You will make it. Please keep us posted of how you're doing.
Sending healing thoughts and hugs your way,
Melly
Baltodol
04-17-2004, 03:56 PM
I understand what you are going through. I am 8 weeks pregnant and have been having IC flare ups as well(see me recent posts). I also got scared and had thoughts of miscarriage and got into a depression. My urologist said he could do bladder installations but I chose not to. I did some research that could not conclude that installations were safe or not safe. So, please go see your doctor and do some research on your own as well. Surprisingly, when I am having a flare up, I take slow walks or do stretching(sounds weird, it took me years to fine what works for me during a flare up). I too have also been anxious about being off my meds for so long (I was on 5). But, I have to say, this week hasn't been too bad-I know there will be ups and downs. You hang in there!! You will get through this! You will be in my prayers!:pray:
Melissa
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