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CeeCee
04-08-2004, 05:13 PM
If there are any willing to meet in the Kentucky I will try and get something going for us.

I think a support group that could meet in person once every month or two would be great.

Lots of opportunities to meet some great new friends.

Let me know.

CeeCee:hi: :hi:

dbays
04-10-2004, 12:49 AM
I am in Kentucky too. I live in Elizabethtown. Where are you?
no support groups here.

CeeCee
04-10-2004, 06:57 AM
Hi,

I live in Owensboro. I had heard at one time that there was a support group here. But haven't been able to find it. If we could get enough people to be interested we could find a place to meet once every couple of months. Or if you need to just talk I'm available.

Do you like your uro? I drive to Murray, which is a 3 hr. drive for me. That's really kind of rough whenever I'm hurting.

If you want my email, just pm me.

Nice to meet you!

:) CeeCee

KYDoulaCrystal
08-13-2005, 11:05 AM
I am here in KY and I would love to help start a support group and get our spouses involved share stories about doctors and get proper medication and HELP
I need medicaid and it is hard to get it here, we make just a tab bit to much. Is any one on disablity?

Hopeful Ic
08-25-2005, 02:59 PM
Hi everyone I live close to elizabethtown myself I would love to get together with a group also. It would help to be able to talk to people who understand. Even family who love you do not understand. When I go into a flare I freak out I never know how long it will last and it always scares me because I feel like it may never end. I have a lot of questions. for instance how do you cope with your own body betraying itself?!

KYDoulaCrystal
08-25-2005, 03:12 PM
Lets Start a Support Group

I have an email addy KYDoulaCrystal@aol.com that I have passed out to alot of people, but I am not sure I will keep that much longer so let me give you a permanet email address
Crystal@Embracing-Childbirth.com just put IC or something of the nature in the subject line! I am ALL FOR Starting a support group if you get this post in a week, Sept 2005 or in a year! Email me, I am serious about starting a group and demanding proper care. I was in ER this past weekend.
I was treated badly. BADLY just for being in pain. I had my first IC Flare with blood in the urine. I did not know there was such a thing as an IC flare with blood in the urine. I get SO STRESSED out when I even think about it. I have been called a Junkie.
What a HORRIBLE WORD! It just makes me want to bawl my eyes out, or get really mad. Not sure which one to do!
So lets all stop crying, lets all stop getting mad and DO SOMETHING ABOUT THIS!

dbays
08-26-2005, 11:29 AM
Hey Maybe you can get some help with your meds...there is a lady out on ring road that helps people get meds. Maybe you can call me sometime and I will give you the info!!!
Dbays in Elizabthtown

Hopeful Ic
09-01-2005, 02:34 PM
Hi debays I would love to know about the lady on ring road I have no insurance and one day would love to try elmiron