annabel
04-23-2009, 12:36 AM
Hi... i'm not really sure where to start, but really glad I found this place! So good to know i'm not alone with this horrible pain!
My symptoms began in October 2008, when i started having pain on sexual intercourse (with the same partner.) I went to the doctor and underwent a variety of tests for STI's etc which all came back negative. I was put on an antibiotic just in case something had been missed, and during the week I was on it I had severe pelvic pain which caused a couple of fainting attacks. I also had increased pain on urination and always felt the urgent need to go. I went back to the doctor, who said I had cystitus who put me on antibiotics. She also did the STI tests again, just in case.
When the symptoms still hadn't gone a couple of weeks after being on the antibiotics, I went back to the doctor who said I had Pelvic Inflammatory Disease - even though tests i'd had less than 2 weeks ago came back clear for it. I was put on yet another dose of antibioitcs... but the next day I felt terrible. I had so much pain around my pelvis, which gave me a terrible headache that I fainted. The paramedics were called, and by this time i'd come round and all they advised was to sleep it off and take paracetomol. I went back to my GP the next day, who admitted me to hospital. They did an ultrasound and blood test, and said that there was a chance I had a slight kidney infection. This was all at the end of November.
For the next few months my symptoms had subsided a bit - I still got cystitus weekly, had slight twangs of pelvic pain every so often and sex was still quite painful. I tried not to let it bother me.
In January, I bled quite a bit after sex so went back to the doctor. She examined me and my pelvic area was very tender... she said that she something about my bowel sounding unhealthy, so referred me to a colo-rectal surgeon for March.
A few weeks before this appointment, I had intense pain around my pelvic area again. It felt almost like I had thousands of tiny needles inside my tummy and they were pricking me, it was a horrible feeling. My GP admitted me to hospital again who didn't really do much apart from give me strong painkillers and advised me to wait for the Endoscopy.
During and after the endoscopy, I was in loads of pain - again it felt like someone was pricking me with thousands of needles inside me. The endoscopy found no abnormalities in my bowel.
I keep getting episodes of cystis like symptoms, an 'ache' in my pelvis and the pain that feels like needles or glass inside me. I have also bled a few times and sex is still really painful.
I spoke to the doctor yesterday and she suggested interstital cystitus - it was a huge relief to know it could be an actual condition, and not all in my mind as I suspected people around me had started to think. I am having a cystoscopy soon.
I was wondering if anyone who actually suffers from it (who has actually managed to read my rambling essay!) could tell me if this does sound like IC? I'm 21, i'm not sure whether there is a specific age range or anything where people are most likely to have it. What to expect from the cystoscopy?
Thanks! :) Sorry about the length of this!!
Anna
My symptoms began in October 2008, when i started having pain on sexual intercourse (with the same partner.) I went to the doctor and underwent a variety of tests for STI's etc which all came back negative. I was put on an antibiotic just in case something had been missed, and during the week I was on it I had severe pelvic pain which caused a couple of fainting attacks. I also had increased pain on urination and always felt the urgent need to go. I went back to the doctor, who said I had cystitus who put me on antibiotics. She also did the STI tests again, just in case.
When the symptoms still hadn't gone a couple of weeks after being on the antibiotics, I went back to the doctor who said I had Pelvic Inflammatory Disease - even though tests i'd had less than 2 weeks ago came back clear for it. I was put on yet another dose of antibioitcs... but the next day I felt terrible. I had so much pain around my pelvis, which gave me a terrible headache that I fainted. The paramedics were called, and by this time i'd come round and all they advised was to sleep it off and take paracetomol. I went back to my GP the next day, who admitted me to hospital. They did an ultrasound and blood test, and said that there was a chance I had a slight kidney infection. This was all at the end of November.
For the next few months my symptoms had subsided a bit - I still got cystitus weekly, had slight twangs of pelvic pain every so often and sex was still quite painful. I tried not to let it bother me.
In January, I bled quite a bit after sex so went back to the doctor. She examined me and my pelvic area was very tender... she said that she something about my bowel sounding unhealthy, so referred me to a colo-rectal surgeon for March.
A few weeks before this appointment, I had intense pain around my pelvic area again. It felt almost like I had thousands of tiny needles inside my tummy and they were pricking me, it was a horrible feeling. My GP admitted me to hospital again who didn't really do much apart from give me strong painkillers and advised me to wait for the Endoscopy.
During and after the endoscopy, I was in loads of pain - again it felt like someone was pricking me with thousands of needles inside me. The endoscopy found no abnormalities in my bowel.
I keep getting episodes of cystis like symptoms, an 'ache' in my pelvis and the pain that feels like needles or glass inside me. I have also bled a few times and sex is still really painful.
I spoke to the doctor yesterday and she suggested interstital cystitus - it was a huge relief to know it could be an actual condition, and not all in my mind as I suspected people around me had started to think. I am having a cystoscopy soon.
I was wondering if anyone who actually suffers from it (who has actually managed to read my rambling essay!) could tell me if this does sound like IC? I'm 21, i'm not sure whether there is a specific age range or anything where people are most likely to have it. What to expect from the cystoscopy?
Thanks! :) Sorry about the length of this!!
Anna