Can someone PLEASE tell me if htey have had this done and IF it helped their IC pain

[maryla]

PLEASE, I'm about to lose my mind with all this pain! My pain meds aren't touching it! Is it done just for IC

[SharonA]

I have not had this done. I did find some posts on Nerve Ablation. You can find them in this link:

http://www.ic-network.com/forum/search.php?searchid=688229

[smsaz620]

Hello-

I am newly diagnosed with IC and Pelvic Floor problems.
I had a surgery last year for pelvic pain prior to being diagnosed with IC..

They did a laproscopic procedure to remove my appendix as a preventative measure and they checked for endometreosis. While in there the doctor did the nerve ablation to many nerves from my spine/utures/bladder in hopes that it would help my pelvic pain and severe pain during periods.

Since then..in March this year (diagnosed IC 11/08)
I had a laproscopic surgery to have bladder nerves ablated AND they ran a die through the veins in my pelvis/bladder to see if any were congested, they found some and removed them entirely, the thought is this will help with pelvic pain and the bladder nerves ablation would help with bladder IC pain.

Now it has been one year since surgery 1: yes it helped for periods for 4 months then they were just as painful since the nerves can "Re grow" for lack of a better term....so to avoid periods--i have not had children yet--they have me on the pill pack to pack

Now 2nd surgery YES it helped my IC but I also had bladder hydrodistention done and this helped for a couple weeks.

As well I have done weekly PT, taken Elmiron-which I no longer take, personal choice did not feel it did much and yes I gave it time, I have worn a tens unit, also, had weekly bladder installations at the doctor with a catheter--which after 10 of these found out they are not covered by insurance and cost $1250 EACH.

So if you have a good docgtor and do your research you will know for most the nerve ablation is a help, however temporary unfortunately.

I finally succombed to percocet and soma within the last 60 days to cope so i dont lose my job.

I am sorry I am needing to get a lot out of my system and really intended to address the nerve ablation only...:angel:

please let me know if you have questions about any procedures I have tried as this is all new to me in the last 6 months and I feel alone, misunderstood at work, by my coworkers and well this invisible disease is sucking my life away

[MommaWuzzi]

I wasn't sure where to look, and was happy to find nerve ablation...

I am on my third doctor since March, second urologist - and he suggested nerve ablation with removal of Hunner's ulcers as a possible option for treatment. I'm not insured, and I was pretty reluctant to spend money on the Hunner's ulcers removal because I've read they come back in about six months to one year. Finding out that nerve ablation isn't much of a help either at least is information while I'm weighing this. I don't know - if I get to qualify for the sliding scale at the hospital, would it be worth it at that point?

I immediately related to the oxycodone/soma comment - that's what I was taking when I went to this urologist. He immediately moved me to Urelle/Ultram, which is doing nothing for me. Worse, since you have to drink plenty of fluid with Urelle and I was down to approximately one pint to a pint and a half a day to control my frequency, I haven't had that much to drink in quite a while. When I went back to "adequate hydration," it was a frequency of more than 40x/day, and I'm kind of overwhelmed by it. It feels like I might as well plan to never leave my house again at this point...