Misdiagnosis?

[peanutgallery]

What are the possibilities of a misdiagnosis when IC is diagnosed via cystoscopy with hydr. ?

[Lisa R.]

You are not very likely to get a misdiagnosis with a cysto/hydro. The way the bladder reacts to it and the amount of bleeding and inflammation is how the diagnosis is usually confirmed. Some IC patients also have distinctive ulcers in their bladder. Also you will feel better for a while after. This is how I was diagnosised back in 1991.
Lisa

[kadi]

You can get misdiagnosed with a hydrodistension if a doctor does not consider your amount of inflammation sufficient to warrant an IC diagnosis. You can reduce this risk by making sure before you have the cysto-hydro, that the doctor will take pictures of your bladder. You can then take them to another doctor for a second opinion. Without the pictures, you are relying on your particular doctor's interpretation of what they see.

Some patients feel better after the procedure, some do not, some flare for awhile.

I did not have any improvement after the procedure and my doctor came out of the operating room & told my mother I likely didn't have IC, but hopefully "transient irritation" that would go away in a few months. (It didn't.) The recovery room nurse told me when I came out of anesthesia that I did have IC & most of the doctors who have seen the pictures have diagnosed IC as well.

Good luck! I hope it is helpful for you.

[ICNDonna]

An IC diagnosis is usually made by ruling out other possible problems, and confirmed by the hydrodistention with biopsies. It's how I was diagnosed in 1975.

Donna