is_there_peace
04-13-2009, 03:41 AM
Hi all, thank you for the wonderful information that everyone puts out here. I have perused the messages over the last few months, but have never posted my info. Thank you Donna for reactivating my account. :smile tee
I was formally diagnosed with IC in February after a cysto with hydrodistention, after surgery the urologist told me my bladder does not look like an IC bladder, but wanted me to continue my elmiron, the IC diet, zanaflex (she said that even under anesthesia the tightness in my pelvic floor muscles was extremely severe) and hydrocodone for flare pain. When the biopsy results came back after surgery it did show signs of the chronic cystitis and high vascularization and my urologist says, yes she is treating me for IC but because she did not "SEE" the usual changes in the bladder (hemorhages/ulcers) with the hydrodistention she is not listing it as a diagnosis in my medical file because she said that she had a patient that she was seeing for IC and when her insurance carrier changed, the new insurance carrier refused her because of the IC diagnosis...so she says that she is doing this in hopes to protect me from the same occurrence.
I will say that this "IC" is miserable...I am sick of not feeling normal anymore. It seems I always hurt or ache...I had a hysterectomy when I was 28 due to endometriosis, so I have had years without a menses and loved it...now it feels like pardon the way I say this..."I'm on a painful period all the time". I have been bad with compliance with the diet, am just now deciding that yes, I am going to do the elmiron the way I am prescribed (2pills twice a day) because I am sick and tired of being sick and tired. I am going to try the elmiron capsules opened up as you guys here (and my urologist) have suggested and see if that helps.
My question upon starting this thread is: I have a cold and have been taking dayquil cold medicine...I am experiencing the worst flare yet (had to go to the ER saturday night because the pain was so bad in my bladder and left flank area I thought that I was passing a kidney stone, yes, I am cursed with a history of kidney stones too ). Do any of you have problems with cold medications causing a flare, is there one out there that people have success with? I mean...it could be just the virus itself causing the flare, but I do need to take something when I am experiencing cold symptoms. Any thoughts or help would greatly be appreciated! Thanks in advance!
I was formally diagnosed with IC in February after a cysto with hydrodistention, after surgery the urologist told me my bladder does not look like an IC bladder, but wanted me to continue my elmiron, the IC diet, zanaflex (she said that even under anesthesia the tightness in my pelvic floor muscles was extremely severe) and hydrocodone for flare pain. When the biopsy results came back after surgery it did show signs of the chronic cystitis and high vascularization and my urologist says, yes she is treating me for IC but because she did not "SEE" the usual changes in the bladder (hemorhages/ulcers) with the hydrodistention she is not listing it as a diagnosis in my medical file because she said that she had a patient that she was seeing for IC and when her insurance carrier changed, the new insurance carrier refused her because of the IC diagnosis...so she says that she is doing this in hopes to protect me from the same occurrence.
I will say that this "IC" is miserable...I am sick of not feeling normal anymore. It seems I always hurt or ache...I had a hysterectomy when I was 28 due to endometriosis, so I have had years without a menses and loved it...now it feels like pardon the way I say this..."I'm on a painful period all the time". I have been bad with compliance with the diet, am just now deciding that yes, I am going to do the elmiron the way I am prescribed (2pills twice a day) because I am sick and tired of being sick and tired. I am going to try the elmiron capsules opened up as you guys here (and my urologist) have suggested and see if that helps.
My question upon starting this thread is: I have a cold and have been taking dayquil cold medicine...I am experiencing the worst flare yet (had to go to the ER saturday night because the pain was so bad in my bladder and left flank area I thought that I was passing a kidney stone, yes, I am cursed with a history of kidney stones too ). Do any of you have problems with cold medications causing a flare, is there one out there that people have success with? I mean...it could be just the virus itself causing the flare, but I do need to take something when I am experiencing cold symptoms. Any thoughts or help would greatly be appreciated! Thanks in advance!