I think I may have this problem and I'm scared.

[Preacher-Girl]

I am going to see my GP today to speak with her about this. I think I may have really crossed the line of IC symptoms and I have neuralgia as well. My symptoms have really spiraled out of control the past 2 months/cycles. For a few years I have had what I call "phantom sexual arousals". I was reading a similar post to this but I can't find it now. Sometimes, I just feel suddenly like I might have an orgasm. I could just be sitting on the couch and watching the weather channel for goodness sake! Anyway, I ignored it for 3 years. About 5 mos. ago I started to exhibit classic IC symptoms. I have been dealing with it. Then I noticed my "phantom arousals" were becoming quite frequent. Also, when my IC started flaring I noticed some small jabbing pains in my vagina. They came and went and I managed to stay in denial. Fast forward to this morning..........

I woke up with numbness, arousal, and extreme pain. Through my whole pelvic region. I have been blessed enough to have one baby (before my symptoms really spiraled) and today I feel like I am in labor and a large object is about to proceed down my birth canal. Only I have had my period since Friday and I am not wearing tampons. It hurts like heck to sit down. I followed the link that Kara posted and well.....I can't stop crying. It's pretty clear. I recently had a cat scan so I know I do not have a giant tumor. My GP will point me in the right direction and in 2 weeks I have a gyno/uro appointment at an excellent practice/excellent teaching reputable hospital for only women.

I have been waiting for the other "shoe" to drop. I knew deep down I may not just have IC. I can't describe it. I thought I might have bladder cancer and that might be the final thing. But when I woke up with this type of pain I just kind of knew.

I am so angry. I am so tired of crying.:help:

[SharonA]

If you are still looking for posts regarding the arousal feeling, take a look at the threads in this link: http://www.ic-network.com/forum/search.php?searchid=680775

[Kara29]

awwwww. I hope I didn't make you cry.

I'm so sorry that you are so angry and sad. I understand. Feel free to private message me if you want to talk.

There is something called Sexual Arousal Syndrome which can have similar symptoms such as Pudendal Nerualgia and IC and Pelvic Pain. http://www.23nlpeople.com/brain/persistant-sexual-arousal-syndrome.html

If you can find a Doctor that specializes in Chronic Pelvic Pain, Maybe some of these symptoms can be sorted through and get you on the road to appropiate treatment.

This doesn't have to be as scary if you have fellow friends to go through this with you.

I can tell you one certain thing for sure in all of this confusion......YOU ARE NOT ALONE IN THIS!

Warm and Gentle Hugs to you and let us know how we can be of support to you.

There may be some support groups just for this one disorder too if we can't assist you here.

But this is a great place for any sort of pelvic disorder.

Kara:hi:

[Preacher-Girl]

Thank-you so much Ladies. All the info I get here is really helpful.

I have IC for sure. I respond to the diet and I went off for a day just to see. Yowzaaaaa! Well, now I know. It's the IC diet for me and I will never touch another tomato product as long as I live. :tsk:

My GP is really great. I actually had an MRI today because of the pain. Which disappeared as quickly as it appeared. Definitely period related. But she wanted to know if I have disk problems in my back crushing pelvic nerves etc. Which was smart of her. I really don't want pelvic floor p/t if I don't have to get it. Also, her insticts are good. She says there's only a tiny chance it's back related but she doesn't want to miss anything.

This practice I go to next week is top notch. If I need some type of serious pelvic pain mgt. they will take care of it. This hospital has many options so they will send me somewhere else if I need it. Thank-God I have great insurance. I am not sure I would survive this without it. It's such a blessing!

Thanks for all the support Kara. I really appreciate your knowledge on this subject even though it's terrible when you struggle. I wouldn't have known where to turn without all your information!

:grouphug:


Angela