Fed up with ic

[angel82]

Hi all, i am having a low day! im an idiot i spent all my time working ignoring the pain and then when i get a spasm i become low because the illness becomes more real to me and im alone, my family and friends are fab they would do anything for me and hate to see me suffer and worry all the time about me. But this is a lonely illness and i hate it, my whole life has changed my specialist has tried treatments but said my bladder is too damaged and has given up i guess and has given me pain relief which helps but also saddens me as theres is no hope for me, what a pointless future. Im sick of people asking me "should you be eating that/drinking that" its my sodding bladder!!!!! I know there are some horrible other illnesses out there a lot worse than ic but god im 27, i wear huge granny pads at night and have to wear slightly smaller pads incase i wet myself during the day. Mr right is so gonna run for it when i find him, sex scares the crap out of me and my bladder cant even handle a smear test never mind intercourse. Ok i have had my moan for the day. thanks for reading.xxx

[jaime15]

If this doctor has exhausted all ideas for your treatment, then find a new one!
I went thru 2 uro's and specialist before finding the right doctor for me.

Never give up............we are all hoping for a cure, together. I remember being 22 and dx'ed with this disease. It was a very lonely time.
But I'm hoping for better times ahead for you. If that Mr. Right comes along and doesn't like the granny panties........say........so long.........maybe you'll get a nagger instead!

I hope I lifted your spirits a little and took your mind off what's going on.......if only for a minute. Take care of you!:)

[icnewlywed]

We all have our down days when it comes to IC. I know I have had more than one pity party for myself the past 4 months (more like a hundred!). I agree with the earlier post, if your doc has exhausted all of his resources it is time to contact a new uro. When my doc reached that point with me he pulled in an IC specialist that lived 2 hours away to review my case with him and provide suggestions. Even many uros are still baffled by IC. If it takes a village to raise a child it takes a team to treat IC. You will be in my thoughts and prayers. Give your self time to be down over all you have to deal with because of IC and then enlist all that support to help you come up with another game plan. Just remember to take it one day at time (not that you really have the choice to take two at a time :elvis:)

[Rainwilds]

Hello angel82!

I'm so sorry that you are having such a horrible time. I honestly feel for you ...

I agree that you should find another doctor - the important thing is to keep trying and don't give up because that will only lead you into a deeper spiral of feeling horrible! I know it is hard and people who don't have IC just don't get it and it's even harder being so young ...

I'm 21, and have been sick with IC since I was 17. I lost many friends who didn't understand that I couldn't party with them and drink etc. I realised they were friends not worth having.

And believe me, there is a Mr. Right out there who wants to be with you, no matter what. I met my man at 18 and I was sick all the time, and at that stage, didn't know why. And he has stood by me and sacrificed a lot so that I feel comfortable and normal. He reassures me all the time that he loves me and my IC because it makes me who I am.

Listen, it will get better. Just keep your chin up! There is a doctor out there too, one who will keep trying to find an answer for you! I've been through many doctors and have only found one just recently who is taking me seriously!

I hope that you are feeling better,
Take care,
Ally