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View Full Version : scheduling my first hydro/cysto


PeeingPirate
03-20-2009, 03:50 PM
After several years of on and off horrible flares, and waking up all night to pee, feeling like a insufficient lover, etc... I'm finally accepting my IC. I think I have been and still am in denial. I allow myself to suffer more than I should because I can't admit I have an illness. I'm only 24!
To the point, I have had an extened awful flare and the meds my doc had me try aren't helping, urelle, 9 ibuprofins a day, 1-2 xanax for spasms, so I have talked to the doctor and we agree I should get a hydro/cysto and start elmiron. I know a lot of people have a negative experience but I'm actually looking forward to it negative or not. I just want to know if this is whats wrong with me. I can't deal with the problem physically and emotionally if I don't know what it is.
My question is to those who've gotten the procedure is how much does it cost? I have decent insurance through my work but money is still tight. I'm scared that I wont be able to afford it since anesthesia is involved.
Also, what happens if it comes back that my bladder looks happy? Where do I go from there? I feel insane wanting bad news, but if it's not IC I have no idea what might be wrong.:confused:

SharonA
03-21-2009, 09:51 AM
It really is better knowing exactly what is causing symptoms. I imagined such terrible things before I was diagnosed. IC was a relief when taking what might have been into account.

I do not remember what the h/c cost. I had insurance and only had to pay a percentage that the insurance would not pay. It's been too long to remember what that was.

I do want to let you know that ibuprofen can cause some people with IC problems. I hope you are no longer taking it, especially at such a high dose.

ICNDonna
03-21-2009, 04:11 PM
I don't know about cost. I've never had to pay more than a $50 copay. Your insurance should cover the anesthesiologist. I hope this will help you.

By the way, ibuprofen is an irritant for many with IC. You might want to consider another option for a while to see if that's causing you pain.

Donna

PeeingPirate
03-23-2009, 05:30 PM
you know, I stopped taking ibuprofin several days ago and I feel so much better. the more pain I was in the more ibuprofin I'd take and I realize it was making it so much worse. Thanks you!

PeeingPirate
03-30-2009, 06:07 PM
So I have scheduled my hydro/cysto for april 14th. I'm scared ****less that it will make my symptoms worse, or that for some reason they'll tell me I have the most healthy bladder they've ever seen then deem me a crazy person. I'm really at my wits end with the pain, I get so scared that it may not just be my bladder. What if my girly parts are broken? I just want to be a normal 24 year old. I feel too young to have to take all these meds and procedures. Too make matters worse my procedure is 1100! with my insurance. Thats about a months income for me. I'm gonna do it anyway but I pray it gives me some sort of an answer not more questions. :cussing:

workingmom2
03-31-2009, 12:12 AM
Well i've had an ultrasound last friday, and the endo came back, with a cyst on my overy, I'm having my 3rd hydro test this thrus, and that will determine what is next, i've about had it with the back pains,and running to the bathroom every 10 mins, now its affecting my job and other lifestyles, the pills aren't working anymore, so i finally found a dr. that will take care of this,