update, Oh my god

[icmama79]

ok this is my first post please read the one that follows.Thank you for your posts, but I still need support. I see my doc on friday who wants to know my decision, detox or cut down. My decision is neither and to pleade with him. when I did that last appt he thinks of course Im going to Im an addict which I find offensive. I went through this pain before and I cant go through it again. I had my life back, to be a mother to my son who needs me for many reasons, one being he has autism. And my husband, who has been through it all, we were just getting our relationship back. I wish I could take an advocate in with me on thursday, but I dont have one. My doc wont even give me time to get another view of my bladder to see how its progressing. even though the last two the uro was shocked how fast its progressing. I dont understand, I have never abused my meds, never asked for more or a higher dose. its been the same for years. I know this is alot to ask, but I thought since I cant bring someone with me, maybe I could bring you guys and your words via laptop. to put more of a face to IC, that yes IC is painful and yes some people with IC need serious painmeds. God knows he wont do the research on his own. I am terrified and at my wits end. I cant live with this pain again. I know its alot to ask but I am fighting for my life. If not I also understand. anywords you would say as if you were there with me in person. or just anything Please..

now I find out pain clinics and pain docs, not covered by insurance
also my him labeling me an "addict" FYI without knowing anything about ic and i know I'm not, this label can ruin my life.
I am seperating from my husband with a custody suit soon to come, he has already said he will use this against me. not to mention my son has autism and needs his mother especailly since his dad is in denial that he has autism

I finally get to a place where I am working, which I will lose my job because I can not work in that much pain, plus my work is public service if they find out my career is ruined, my reputation, isnt that slander or something.
I worked to hard to get my life back, I am not going to lose it because my doctor is getting pressure from other doctors in his office. I have had previous uros send letters in the past stating how severe my case is and that pain meds are needed to live pretty much

please vote on my poll and send any support you can on my last thread
I am desperate

[icmama79]

I dont have a printer, does anyone have a bunch of info saved and could somehow email it to me, I am going nuts trying to get all this research together. Also does anyone live in portland

[jameson77]

Hey there, i am so sorry for all that you are going through. That seems to be the case with a lot of us. So...you see this doc again tomorrow? There is a link in my signature for the IC Handbook...there is tons of info in that link, if you haven't seen it yet, with tons of research regarding IC related pain and pain management...there are articles written by renowned IC Specialists. Try looking at that and maybe printing some of it out for your doctor. I have to go out of town, about an hour and a half to see this doctor, and he is out-of-network for me, but the travel and the extra money is all worth it. He manages my symptoms and is just great.

Is there any way you can change doctors? Have you looked on the Physician Search link here to find someone in your area? That is how i found mine, and he is an absolute angel.

I wish i could do more to help...try looking up that information and printing it to take to your doctor.

I sincerely hope it works out --- if not, you might need another game plan for another doctor...someone that KNOWS about IC and is willing to treat you. I know this is totally frustrating but you have to be your own advocate, as not many doctors are familiar with this.

Best of luck and i will say a little prayer for you. Please keep us updated!

:pray::pray::pray:
Meredith

[Jessica12974]

So sorry you are going through this! I posted on your other thread! I listed on there what I take for pain management. I think if your Dr saw what everybody else with IC takes for pain he would realize we need pain meds and that we are not addicts! That is what helped me in the beginning when the Drs were hesitant to prescribe narcotics. I showed them a thread that listed all the meds others took for IC. Good luck! :angel:

Jessica