View Full Version : frequency
Cherie708
03-18-2009, 12:25 PM
I am on my 2nd uro---I really like him. He is also thinking this is all neurogenic bladder. Taking it all a step at a time..........Anyone have any new suggestions for the frequency. Sanctura, pyridium and urelle do NOTHING...............My last resort will be the interstim....
thanks
cherie
mlzippy7
03-18-2009, 03:39 PM
Have you tried physical therapy, botox, bladder installs, nerve blocks, PTNS(urgent PC) these are just a few things to try before the Interstim.
Good luck!!!
Cherie708
03-18-2009, 04:51 PM
I emailed mizippy7 but wanted to tell this to anyone else out there that might have to input...
I have what they say is neurogenic bladder due to a neurological disease. Basically my bladder dont work right and the muscles and nerves that control it dont get the proper messages from the brain I have severe frequency urgency and burning. I didn't know bladder installs or nerve blocks could help frequency and botox is not covered by ins as its not FDA approved. Its like $450 a vial and my uro said I would need 2 vials. ..............The Urgent PC is probably the next thing thing my uro will try. Has anyone tried the botox, Urgent PC or interstim and have any advice or suggestions or any personal thoughts on it.
I am disabled in a wheelchair and every time I have to go to the bathroom I have to wake someone and get transferred into a lift then to the toilet so this has really been quite a hardship on my family.
thank u
cherie
musiclover
03-23-2009, 05:54 PM
Have you tried any of the simpler things such as Desert Harvest Aloe? Or Cystoprotek? Maybe try them for a couple of months and see what happens. I think the aloe has made a dent in my frequency. Maybe it will yours?
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