where to start??

[gloriabono68]

It has been suggested to me that i should try and apply for disability because right now i am unable to work and i don't know if or when i will be. But i am not sure how to go about even starting this , because i know its almost impossible to get on it.
I already lost one job because of my limitations now and i barely making it. I know this is a long process and i just don't really know how to go about getting it started or whom to really talk to first.
any suggestions will be appreciated.......
gloriabono@Yahoo.com

[gypsyjoy]

you can apply on line or call your local S.S. office. I have my interview on the 25th of this month
good luck
JOY

[Dixiefireball]

you can call 1-800-772-1213 this is the ss office and they will be able to answer all your question on how to get started.
I hope this helps
Rhonda.

[gloriabono68]

thanks for the info..........i went and applied in april so it will be june or july before i hear anything back........apparently its a long long process........I have also heard everyone is almost always turned down the first time you apply..........i am praying this doesn't happen. I think if i wasn't so stressed out about money and paying bills and such that it would help to calm me and my bladder........i wouldn't be so worried........stress doesnt help this condition.
But thanks again for all your help and everyone pray that it goes through for me..........
thanks
gloriabono

[felineperson3]

:pray: Prayers going out for you, Gloria--

Hugs & blessings--:cat:

[Katrina]

http://www.ichelp.com/Disability/EligibilityForSSAndSSIBenefits.html

Good luck. Let us know if we help you anymore

[gloriabono68]

thanks again........still haven't heard anything back.......I am hoping for something good to happen. I will keep you posted.

[stephanie31]

Hello,
I am new to this message board. I was diagnosed in 1998 with IC while I was in Nursing school. Since then my condition has worsened. I was forced to leave hospital nursing in the NICU because of my bladder condition & stress involved. I now sell pharmaceuticals -- The road trips from office to office can be quite difficult, as well as presenting material to customers & at meetings, all I can think about is the bathroom (once I had to get off the transport bus at the airport to go back inside to the bathroom due to my bladder pain while on a business trip, talk about humiliating)

I have had:
Hydro X2, Bladder biopsy X2, DMSO & Heparin installations too many times to count. I am on Elmiron, Elavil, pyridium & pyridium plus. Most days I feel like I need Narcotics to control the pain. I have a high pain tolerance & try to live with the pain.

I am writing today because I am considering disability & Social Security. I have no idea how this works or where to start. I enjoy working & don't want to stop, but the pain & symptoms have become uncontrollable.

If anyone has any information they are willing to provide, I would appreciate the input & your help.:pray:

Thanks,
Stephanie :kiss:

[MAMASITA4]

I live in North Carolina also and just applied for SSDI. I received my "original" paperwork that I had submitted back from them today since I did my interview by phone. The confirmation stated that it would be 3 to 6 months for an answer. I too need all the prayers I can get. I have worked full time 22 out of the last 25 years of my life, am married and have 4 children. We are totally dependent on both incomes!!! In addition to IC, I also have IBS, Hashimoto Hypothyroidism, Inflammatory Arthritis, Fibromyalgia, High Blood Pressure, and Depression (no, I did not list ALL my medical conditions...just the main ones!) and....who wouldn't be depressed??!! Uro just put me on perm disability. I have always been a top performer on any job but have had a lot of undue stress from my employer(s) due to absences from flares, pain, sickness, drs. appts, testing and yadi, yadi, yadi.

I figure it will take them 6 months to just review my medical history because even though it was my uro who put me on perm disability, I have other conditions which are treated by other doctors and between the records from my family dr. and the uro, I am positive it will take a LONG time for me. Please include me in your prayers also!:pray:

[stephanie31]

Does anyone know if you can receive social security & work part time or even a couple of days a week? How do they decide what your payment will be? Thanks.

[gloriabono68]

Hi, just check in your phone book.........there should be a listing of the social security office and where to call. THey will then set up an appointment for you to actually go to their office and they will tell you what to bring........and so on and so forth.
That is what i did i applied back in april and just now got a letter from them saying they needed more info.....and request i go to a doctor of their choice and its a freakin chiropractor.......still trying to figure that one out. I have an appointment with my uro monday and i am going to show it to her......
So i have no idea how thats going to work out or why i have to go there.
so everyone pray , pray , pray that i will be able to get on some disability. I know Stephanie that its based on your work , like most of the jobs you've had before.........it where it comes from. I haven't worked alot so i know mine won't be alot if i do indeed get on it.......but anything is better than the nothing i have right now. Plus it would help relieve some stress , which as you know doesn't help with the IC at all.......
I too have IBS and depression.........and allergies and if i dug deep enough lord knows what else they would find.........I am just tired of popping pills all day long..........i wish they would invent a cure for this problem.........something to make it easier , less depressing and aggravating and less painful and embarrassing.
but until then , i guess we all have to pray for each other and hope they at least will find something to relief some of the pain and symptoms so we can lead semi normal lives at least.........
I will keep you all in my thoughts and prayers...........feel free to email me at gloriabono@yahoo.com.......anytime you need to talk or vent..........or anything at all.
I too had a job where i traveled and gave hearing tests......which i had to give up.......because of the IC..............now i am enrolled in college but i miss alot of classes still because of the IC......but i am trying ............I know its hard......but don't give up.......I want too myself but i refuse to let in ruin my life and even though there are days when i literally wish i could just lay down and die.......i try and focus on good things.......like my daughter and family and friends......and the thing that helps the most is this website because finally i know i am not alone.........there are others like me. its a small comfort but i am thankful for that at least........and always i pray for relief and or a cure of some kind.......
anyways ........take care and let me know how it goes........maybe we can all help each other in some way..........email me anytime.....
gloriabono:pray:

[blueblondie1121]

HI GLORIABONO, I TO JUST STARTED MINE IN JAN'2004. JUST WENT TO 1 OF THEIR DOC'S. JUST A ANOTHER LETTER TO GO FOR A BREATHING TEST. I WONDER HOW MANY THEY CAN SEND US TOO? BUT I GUESS IT'S BETTER THEN GETING TURNED DOWN FAST.I HEAR THE OLDER YOU ARE THE EASYER IT IS.I DON'T KNOW ABOUT THAT ONE. I HAVE BEEN SICK FOR A VERY LONG TIME .THE EARLY 90'S WAS TOLD I HAD LUPUS. DID'NT EVEN KNOW WHAT IT WAS. AND IC IN 1996.ONE DOC TOLD ME THERE WAS NOT DOUGH THAT THE LUPUS CAUSED THE IC. I JUST DO NOT KNOW WHY THEY STILL ARE GIVING US IC PEOPLE A HARD TIME. ALL OF US HAVE OTHER MEDICAL PROBLEMS AS WELL. IT IS SO STRESSFUL ON US. LIFE JUST IS NOT FAIR!:hmm:

[gloriabono68]

ITs so frustrating the whole process........i am so nervous and stressed out i am beside myself , literally. I have been having panic attacks as well.
I also have IBS and lord knows what else myself......i never feel good.......just one day.........i just wish i could have one day where something wasnt going haywire. and right now my allergies are so messed up its driving me crazy i am nausous all the time too.........which i think is partly my nerves.........
Going to the doctor this afternoon maybe she will give me something for my nerves........
all we can do is hang in there..........and pray its gonna get better.......keep me posted......
gloriabono

[stephanie31]

Thanks for getting back to me. I hope it works out for all of you. I will keep you in my thoughts & prayers. God Bless.
:angel: