Repost for new Member butterflygirl21

[SharonA]

Yesterday, 09:28 PM #6
butterflygirl21
ICN Member

Join Date: Feb 2009
Location: hesilhurst nj
Posts: 1

Smile hi new at this
hi my name is nicole i recently was told i have ic. my grandmother has ic also
so she use to tell me her problems and i would think i never had these problems now ever since they did the scope through my bladder i't been bothering me. i also have a interstim in because i don't have the feeling that i have to pee so the wire is connect to the nerve to my bladder and shocks it so i have the feeling that i have to go also i have urine retention and have to cath everyday atlease 3times a day dose anybody have this problem i was also told that i have fibromyalgia and i may have ms please help me

[Katrina]

hi :welcome: Although I am not in your situation I know someone else with severe retention and I have asked her to look at this post.
You are definatly a unique case and I take it by your post than you have bladder pain....but without feeling like you have to pee and having severe retention I am guessing no frequency and no urgency.