In da area

[GEMINI]

JUST IN THE AREA AND WANT SAY HELLO TO EVERYONE WHO CHECKS THIS THREAD, YA DIG. IM A 27YEAR OLD MALE AND EVER SINCE I WAS DIAGNOSED WITH HAVING IC IN THE YEAR 2005 AND OTHER CHRONIC URINARY ISSUES I BASICALLY LOST MY CONFIDENCE AND SELF ESTEEM. I JUST BECAME MORE ANTISOCIAL AND DIDNT WANT TO HANG OUT WITH FRIENDS AND GO OUT 2 PLACES BECAUSE I WAS EMBARRASSED ABOUT MY SITUATION AND HAVING 2 EXPLAIN MYSELF ALL THE TIME. I BECAME A HERMIT. THATS WHY IAM HERE,IM TIRED OF BEING ALONE AND I FEEL ITS TIME TO MAKE A POSITVE CHANGE 4MYSELF SO I WANT TO MAKE FRIENDS OVA HERE. YA FEEL ME. I JUST FEEL COMFORTABLE BECUZ PEOPLE OVER HERE TRULY UNDERSTAND WHAT ITS LIKE. YEA. :smile tee

[kadi]

Hey Gemini,
Just sending a welcome to the ICN! I hope that you will find this place a valuable source of information, understanding & friendship... Many of us have gone through what you are describing & have come through it, so feel free to talk about your experience & ask as many questions as you want...
Cheers,
Kadi

[GEMINI]

4sho. I appreciate dat. I was wondering 2, do you know anyone who has got sometype of botox injection in through their urethra to da spincter muscle to help with hypertoncity? Cuz a uro mentioned dat, we can give this a try, but its not fda approved yet and she told me a common side effect was leakage. So i took a pass, but i was curious and want 2 kno if anyone has tried it and was it a positive experience???

[kadi]

Hi again,
Here's a link to a question/answer session with a doctor who does botox injections with IC & pelvic pain patients. I don't know how much would be different for a man with IC as compared to a woman.... But check the article out!

http://www.ic-network.com/askthemd/chrissmith1103.html

If no one comes on here with their experiences about botox, you could also use the search feature in the dark turquoise bar at the top of the page & that will link you to some posts on it.

Hope that helps!

[GEMINI]

Okay. Thankz ima check it out.

[KarenAnne]

Hi Gemini!
I have met one female patient who had botox & said it didn't help her, but everyone is different. You are not alone here, we are all the same...some better, some worse in their symptoms. Try not to stay isolated. The first few months I could only make it to the drugstore to pick up my meds, but I was so happy to be out. Now I have ventured out longer & farther. It is scary, but even if you take a walk down the street & back, or write & vent to us. I'm older, but there are lots of people in their twenties like you here who understand. Best wishes & speedy healing, Karen

[SharonA]

I don't have any personal experience with botox but thought I would say :welcome: to the ICN, anyway. :)

[ICNDonna]

I just wanted to say :welcome: to the IC Network.

Donna

[leelee88]

Hello there!! I have heard some good and bad with the Botox.. So I just think you should do some more research.. Also If you have a good relationship with your Dr then he should be leading you in the right directions..

[GEMINI]

THANKZ Y"ALL. GOOD LOOKIN OUT WIT DA INPUT. IT MEANS ALOT. ALRITE, HOPE EVERY1 HAS A KOO N SAFE EVENING.:smile tee