Is this IC?

[laconmcarthur]

in 2007, I was hospitalized twice for abdominal and pelvic pain. They first thought it was my appendix, but it wasn't. Then they thought it was female issues, but found nothing. I went to a gynecologist and asked her about endometreosis, January 2008 I had a laproscopy done to look for ovarian cysts and other signs of endometreosis, none were found. She put me on seasonique birth control, so I only have 4 periods a year, because the only time that I am really in pain is right before, during and right after my period. This helped and made a world of difference. I found out last week I do have ovarian cysts, but she says they aren't whats causing my pain or anything to do with my problems. Well, I get these UTI's that last for months and antibiotics do not help... my last UTI lasted from Dec 6 until Feb 12. I was on antibiotics the whole time. I went to a local urologist and he determined that I have a double left collecting system, which is like having 11 toes nothing serious and that my body is just prone to UTI's. He put me on uroqid, 3 times a day for the rest of forever....well i started having diarrhea and lost 2 pounds in a day and a half..he told me to quit the uroqid and put me on a month supply of antibiotics...still no answers, so I went to another urologist. In Feb. he decided to test me for IC. He did the procedure two weeks ago yesterday where they fill your bladder up with liquid and watch it or whatever, and yesterday he diagnosed me with IC. I am starting to wonder if I really have it or not, because my pain is below my belly button on both sides and in the pelvic area and occasionally my lower lower back, right above my butt. The only time i really hurt is around the time of my period. Ive always ate whatever i wanted and still the only time i really can tell that i'm hurting is close to my period. The only urinary problem i seem to have is that I HAVE to pee at least every 3 hours or it hurts really bad. And even when i do pee that often I always sit there and feel like I still have some pee that just wont come out. There isn't any pain when I pee or anything like that...its just often and i have to go when i feel the urge or ill regret it. He put me on enablex yesterday....the commercial with the balloons dancing around the class of 68 banner. haha. I'm only 19 and I'm trying to figure out if this is a correct diagnoses because if it is...I think I will have a long hard road ahead of me. But there aren't any particular foods that i know make me hurt...I only really hurt around my period....what do you think? any of this sound familiar?:help: I'm desperately searching for answers and input.

[statesboro]

I reckon I will be the first one to chime in. It will be ok. I know that others will chime in. I can say you have found a good place by coming on here. Besides, we will understand. Many people will not. I can figure you are questioning the doctor's diagnoses of IC. Ok, then. I would figure he knows what an IC bladder looks like.(hopefully by now) I wasn't thinking IC as I was just reading about abdominal and pelvic pain. Of course, I was diagnosed without ever complaining of pain. (and saw what an IC bladder looks like)(photo of mine) Ok. I am a dude, but some females will chime and say it gets worse around their period. (and lower back pain) Oh, yeah! Some do have PFD.(pelvid floor disfunction) Maybe I don't know about that as much. By the way, I can't wait 3 hours to pee again while awake. (nope) Hey! We are all different, but feeling like you did not empty your bladder is not uncommon with me. (or not as much as earlier on) Also, some of us do feel like our bladders can't hold any more, but we know good and well our bladders can't be full yet.(irritation, or whatever, fooling us) We don't enjoy having it, but it is still good to know what we have got. (and accept) (and live with a frustrating chronic illness) Hey! You could always get to a third urologist.(or maybe not always) Ok, then. It is probably not uncommon to be in denial. Besides, I felt lost at first. Yep! That will be all now.

[leelee88]

Do you have alot of frequency and urgency? Also another thing this could be is endometriosis.

[laconmcarthur]

I had surgery last year to see if I had endometreosis and she couldn't find anything and last week she said everything was fine with my ...female parts. So I'm not sure about all of it. Some things just don't seem to add up to it being ic.

[Goldfinch]

What procedure did you have that resulted in a diagnosis? Were you under anaesthesia? When you are given antibiotics for all these UTIs is your urine cultured every time to confirm you actually have one?

[laconmcarthur]

What procedure did you have that resulted in a diagnosis? Were you under anaesthesia? When you are given antibiotics for all these UTIs is your urine cultured every time to confirm you actually have one?

Yes I was under general anaesthesia. And they did do cultures once a week and confirmed I had a uti. And I was on 6 different antibiotics throughout the 2 months :(

[bitesize]

I have a similar situation, in which the dr. thought I had endo as well, and I didn't. I haven't had any bladder tests done, and I'm iffy on my symptoms. I don't think it's as bad for me as other people.

What was th pain like when he filled up your bladder?