IC is not yet confirmed

[Isabelle1981]

Hi everyone!
I'm new on this forum. I have been in treatment for 6 months now. But my doctor is 99% sure that I have IC but he can't prove it he says. I have most of the symptoms and I spent 3 days in hospital for a cystoscopie. Are there any people in the same situation?

I noticed that most of the people of this forum are from the USA. I don't know if there are any people from Belgium - Europe (that is where I come from ;) )
I hope I can learn a lot from this forum because little is know about this disease I think.

Greetz

[ICNDonna]

:welcome:

I'm very glad you found this site. There's a lot of information and support here.

I checked the ICN World Center at http://www.ic-network.com/world/ and there isn't an entry for your country.

I suggest you read the information in our Patient Handbook at http://www.ic-network.com/handbook/ You'll find information there about diet, as well as treatment options. Also, there's a drug glossary that will tell you about what the various medications are called in different countries.

My IC was diagnosed in 1975 and, believe me, there is life with IC. It may take some time to find exactly what works best for you, but nearly all of us do live normal lives.

Warm welcoming hugs,
Donna

[Dixiefireball]

:welcome: Glad you found the board.
i'm sorry you have ic but you will find all type of support here we all care and we are here for you.:kiss:
Rhonda

[Isabelle1981]

Interesting links :)
Thanks!

[ICchell]

Hello and welcome:hi:
Michelle

[felineperson3]

:welcome:
You will find lots of support and answers here-
Hugs & blessings to you-

[SharonA]

:hi: :welcome: Isabelle...

Glad you found us. :)

[Iris]

:welcome: Glad that you have found the IC Network and family, lots of information to be found, and a great support group to help you, any time needed. Please keep us posted as to how you are doing, hugs and a welcoming hug, Iris.:grouphug:

[Cali girl]

:welcome: :grouphug: :kiss:

You have definately come to the right place for information. I just wanted to say welcome to the site!

Cali

[MelanieJ]

Hi Isabelle,
IC can be difficult to diagnosis. Researchers in the US now say that it is diagnosed by exclusion; that is, ruling out all other diseases, and taking into consideration your medical history, reaction to medications, various test results, etc. It took me a while to get diagnosed too. What's really important is getting on a treatment plan to helps your symptoms. Have you tried any medications yet to ease your symptoms?

Let us know how you're doing, okay!
Melanie J.

[sleepyangel30]

Welcome to the group, My IC started back in Oct 03, I didn't know what was wrong with me, The 1st urologist I was going to he was only treating for over active bladder, I stuck with him for 3 more months, I decided to dump him because he did not care to help me so I headed off to another urologist and I found out on the 19 of feb that I had IC. I have no problem with my dr - i love him and the nurse to death, my dr knew from the start what was wrong with me. I'm glad my mom recommed him to me. She said he was good and he is.

[Isabelle1981]

Have you tried any medications yet to ease your symptoms?

Let us know how you're doing, okay!
Melanie J. [/B][/QUOTE]

Thank you all for the replys!

I didn't get any medication for IC because the specialist did not yet prove that I have IC but he is almost sure. But in 2weeks I have another appointment at the clinic so I'll see how that goes.

I am on Ditropan for several months now. I don't know if you know this??? This does not help IC itself but it helps you to get rid of the feeling that you have to go to the toilet every 10 minutes.

Greetings

[blue]

Is the Ditropan helping with your frequency?

[amethyst79]

Melanie, your post up there put me at some ease... I just posted my situation like a crazy woman under "how many cystos." Maybe IC, Maybe not... if not, what else???

And a huge hug and :welcome: Isabelle!!

Chelle

[kelly McC]

Just wanted to say hi :hi: and:welcome: ,
Best wishes and hope you get some answers soon.
Kelly