Pain Managment On my Last Nerve!!

[Stacydfld]

Hello All,

It has been a while since I have written.

I have been reading everything, but I don't really have internet connection anymore, but at work, so I do mostly reading.

I really need some info.

I have been seeing my pain doctor for almost 1 year now and I am really over him. He says he knows IC and then he goes and says something stupid like" We have to figure out were your pain is coming from" !!! Ok like that's enough to piss any IC patient off. Correct??? I said we know what it is from. IC??? Then he starts ya, but maybe it is still some of a GYN problem. Even thou I went thru a battery of test in the department and she even says it's my IC. He is still not buying it. The Uro see that it is my IC and so do the Neuro. It took me 12 years to get the right answer which is IC. He is making me feel like I haven't been diagones yet. I have been!!!!

From the beginning I have been on 40 mg of Oxytonin 2 times a day. And also 5mg of lortab every 8 hours. Then 3 months ago he takes me off the 40mgs and ALL my Lortab and puts me on 20 mg 3 times a day. OK I understand that he is giving it to me every 8 hours now, but 20 mgs less a day and NO BREAK thru meds, which my body was use to. He told me I would not go thru any withdraws and I did!!! He said no it had to be from something else. I was not even fine on 40mg 2 times a day and then he cuts my meds even more. I would think because of everything I have heard about Oxy that you build a fast tolerates to it. He keeps saying that I want to take you off of it. You are to young to be on this garbage. WELL HE PUT ME ON THIS GARBAGE!!!! Without it I can't get out of bed I am not sure what he is trying to do and what his plans are. And everytime I ask him he is like don't worry I am still trying to figure it out. WELL I am worried I am going to see him tomorrow and god only knows what he is going to put me on next 10 mg 2 times a day. The meds I am on now are not doing it for me. I still am missing a lot of work and in lots of pain all the time. I don't expect to be 100% but at least 50% .What to I say to get his attention??? PLEASE REALLY NEED EVERYONE'S HELP!!!

Thanks,

Stacy Q

[ICNDonna]

You might even print out the message you just wrote and take it to your appointment. Or write a letter to him including the same information. I hope your appointment goes well.

Warm encouraging hugs,
Donna

[MakinIT]

I'd agree with Donna...what a dork. (Moron, idiot, whatever you want to call it)

I do kind of understand what he means by find the source...Duh..your bladder, but there are nerves involved and he doesn't know which ones are involved...(That's why I had such a nasty block, trying to figure out which set of nerves were involved.)

Anyway...demand your relief...keep explaining. I know what a brick wall I get into sometimes. There will be a time when they take away my morphine and I'm scared to death that it will just be a random decision (you've been on too long) rather than being ready.

Courage to you!
Tracey

[Stacydfld]

Thanks guys!!!!

Yes, I think that my post would be a great Idea. I am just so afraif od him taking me off all my meds. Its like I will be punished. It's not dfair to me or any of his other patients. Not sure what to say. He makes me feel uncomforable some times. Well ALL THE TIME.

Any one else have any suggestion??

Thanks,
Stacy

[MakinIT]

A friend of mine once said urologists had the personalities of turds!:) I don't entirely agree with that as mine is a sweetheart, a woman who is very patient and let's me talk to her on the phone for 1/2 an hour if need be. But, it is very easy to be intimidated by doctors, with their big vocabs, and licenses hanging on the walls. Remember, however, you aren't just a patient. You are also a customer and this dude suffers from a need for major customer service training.

That said, even mine will tell me no when I want something, even if I stomp my feet. However, she patiently explains why/why not. I've learned through a variety of illnesses that each is human, as you are, and that Ihad to start speaking with them as one human being to another. (My husband sees doctors as these God like people....they have all the answers and you don't question them....with my illness, his perception is starting to change.)

Should you continue to feel intimidated, you need to tell him, and have him re-explain what is going on with your med reduction. Take a notepad and take notes, have your questions ready. (I always get the uncomfortable look when I bring in a notebook and take notes of my conversations, if they are disagreements on my care.) Then, for heavens sake, get another opionion and take your notepad so the new doc can see what the old doc said.

Take care....Good luck,,,let us know how it turns out.